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Severe Diarrhea Cant Stop It.


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22 replies to this topic

#16 mattathayde

 
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Posted 02 May 2009 - 05:53 PM

while other food sensitivities could cause it i really would think it is something more serious. while i dont know much about chrons i would think that could be it. i know one person that i had in a class in Highschool that i TA'ed who had it and my freshmen year roommates sister had it. i know the kid that was in my class had to be on a feeding tube with special foods injected into it and that was the only thing he "ate" for 3-6 months. not exactly the best thing to hear but if, IF, chrons is what is causing it that is what may need to be done to help your body heal.

it is possible that you had celiac for such a long time undiagnosed that it caused so much damage to your body that you have not healed from the gluten-free diet, it is very rare that this will happen and usually, from my understanding, it is seen more so in older people than you.

since this is soooooo bad you basically need to try an elimination diet probably, and if that still doesnt help look to other illness or infection

i understand how bad you can feel when you have the big D for such a long time since that was the thing that caused my alternative medicine person to investigate more and figure out it wa probably celiac, so i hope you can get this resolved

-matt
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#17 Kimberly Pelton

 
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Posted 02 October 2009 - 02:09 PM

I am new at this and have had alot of malabsorbation problems plus severe diarrea. I have lost 15 or more pounds and now down to 92 pounds with diarrea and just came from an ER visit last friday. They had me take 3 days of antibotics and said that it would stop the diarrea. I have had this for a month now and am off all gluten and wheat etc. I have ran out of insurance and on vitamin supplements but still sick. I am going to a county hosiptal for help with a new doctor on Monday. I cant get this to stop and 3 years ago I was so sick I got down to 69 pounds ... If you think you could help please let me know because all the stuff I am reading is getting a little over stimulanting. Thank you Kim Pelton


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#18 brigala

 
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Posted 02 October 2009 - 04:02 PM

So how are you doing now, Kim? Your post was from May but it looks like you're back. Have you had any improvement?
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gluten-free since mid-2007.
Symptoms: "IBS," chronic fatigue, chronic pain. 

Celiac is a family affair for us; my mom, sister, and one of my sons are gluten free. At least it makes holiday gatherings easier. 


#19 chiroptera

 
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Posted 03 October 2009 - 09:47 AM

PLEASE DO NOT TAKE ANYTHING TO STOP THE DIARRHEA: HERE IS WHY


You have been on antibiotics. They can cause an overgrowth of c. difficile a toxin that can be deadly. I know this because I almost passed on years ago from this problem. Had I taked immodium I would have died because it would have let all the c. difficile toxins stay in my system.

I ended up VERY seriously ill in the hospital for a week taking the strongest antibiotic (vancomycin) to get rid of the toxin.

DIARRHEA AFTER ANTIBIOTIC USE IS NOT ALWAYS HARMLESS AND MUST BE INVESTIGATED

Not trying to scare you but only want to help.......
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#20 Northern Celiac

 
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Posted 04 October 2009 - 12:32 AM

[quote name='Kimberly Pelton' date='May 1 2009, 05:02 PM' post='529960']
I am new at this and have had alot of malabsorbation problems plus severe diarrea. I have lost 15 or more pounds and now down to 92 pounds with diarrea and just came from an ER visit last friday. They had me take 3 days of antibotics and said that it would stop the diarrea. I have had this for a month now and am off all gluten and wheat etc. I have ran out of insurance and on vitamin supplements but still sick. I am going to a county hosiptal for help with a new doctor on Monday. I cant get this to stop and 3 years ago I was so sick I got down to 69 pounds ... If you think you could help please let me know because all the stuff I am reading is getting a little over stimulanting. Thank you Kim Pelton

Hi Kim
I am a severe celiac and I have had problems post diagnosis similar to yours. I am 6'5" and was down to 130 lbs possibly less at my lowest point. I understand you have insurance issues in the states but if you can afford it I use PREDNISONE to stop my flare ups. Some people will say I am wrong doing this, but I can't afford to lose any weight by letting the diahorrea run it's course. Prednisone is NOT a nice drug to use, there are long term effects if you use it for longer then 5 days at a time. But I have worked closely with my Doctor to figure out the best way to treat the situation.
Best Wishes
Mike Irwin
P.S. I am up to 155 lbs through hard work
Also becareful going through a health food store for "natural remedies". Some stores out there are just there to sell product. And if they know nothing about celiac disease then who knows what ur getting.DO NOT BE AFRAID of asking them basic questions to see if they know what celiac disease is.
Best of Luck
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#21 ERH

 
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Posted 04 October 2009 - 09:36 AM

I am new at this and have had alot of malabsorbation problems plus severe diarrea. I have lost 15 or more pounds and now down to 92 pounds with diarrea and just came from an ER visit last friday. They had me take 3 days of antibotics and said that it would stop the diarrea. I have had this for a month now and am off all gluten and wheat etc. I have ran out of insurance and on vitamin supplements but still sick. I am going to a county hosiptal for help with a new doctor on Monday. I cant get this to stop and 3 years ago I was so sick I got down to 69 pounds ... If you think you could help please let me know because all the stuff I am reading is getting a little over stimulanting. Thank you Kim Pelton


Kim,

I had the same unrelenting diarrea and other symptoms (nausea, weakness, etc.) and was down to 89 lb. After four hospital admissions in less than six months, I went to the Harvard Medical Center in Boston -- Beth Israel Hospital, Celiac Research Center -- and confirmed that I had REFRACTORY Celiac Sprue. That is a rare type of Celiac disease that does not respond to the gluten-free diet. This can be fatal if you don't get it under control. The doctor from Harvard put me on 8 capsules of Pentasa daily (4 AM and 4 PM) and on Codene Sulfate , 60 mg. 4 times a day. The Pentasa was for inflamation (which did not show up on any tests) and the Codene Sulfate was for the diarrea. FINALLY, the diarrea stopped. I went from 240 mg. of Codene down to just 60 mg. now (30 mg. twice a day) -- it took almost a year for this progress, and from 8 Pentasa capsules to 4 capsules daily -- I'm now 113 lbs. It was like a miracle. Note that the Codene is a narcotic/controlled substance so it takes a special prescription from the doctor -- is not addictive when used medically. ASK your doctors about this treatment. The Harvard doctor was Dr. C. Kelly -- a nationally recognized Celiac expert. I do have to follow a strict gluten-free diet, but it now works for me!

Good luck.

Edie H.
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#22 no-more-muffins

 
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Posted 04 October 2009 - 05:55 PM

There is a medication they give to people with microscopic colitis to help them control their diarrhea. It's called entecort. The most common symptom of microscopic colitis is constant diarrhea. You might want to check out the MC support board (link below) and ask some questions there. I'd recommend having a colonscopy and biopsy to check for MC. Lots of drs don't look for it.

http://www.perskyfar...41e8b6b4d3b1658
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No-More-Muffins
Blood and biopsy negative 6/2009, Diagnosed with IBS, "mildy active colitis" (My Dr. didn't tell me this, I saw it on the patho report)
Enterolab results negative for gluten, soy, casein, yeast and egg (maybe I have low IgA)
Gluten free diet starting post-endoscopoy 6/2009
I have found that I not only react to gluten but to soy as well. I'm still working on the dairy elimination and trial.

#23 Juliebove

 
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Posted 04 October 2009 - 10:44 PM

I had it for months following the diagnoses of my diabetes. I do not have celiac and didn't know of my food allergies back then. I drank a lot of weak black tea, chicken broth and of course, water. Ate mostly chicken and rice, boiled eggs, cottage cheese, some applesauce and did eat white bread, toasted, with no butter or margarine. Perhaps you could eat rice or tapioca bread, toasted, instead? Bananas would also be good if you can handle the carbs. I can't. And my SIL who is a nurse also recommends plain yogurt with active cultures. I just can't stand yogurt!

Mine was so bad I couldn't stray far from the bathroom or leave the house. The Dr. gave me something to make my stomach feel more settled, but it didn't work. I tried Imodium and Kaopectate. They didn't help.

I know there are prescription meds you can take. My mom used to take something called Lomotil. However, they are difficult to get these days and I think they are considered a controlled substance.

I still don't know what caused my problem, but one day it just went away.
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