[IxMissxMysticxPizza]

It really gets me down when I watch my friends eat their cheesey pizza at the mall or at lunch, I feel like I'm watching through a glass window or a bubble, I can't reach them. I can't eat the normal food like them. Or when I go to a party and people are devouring a delicious looking cake. Being different is hard, espically when your a teen so I started this topic so other teens can talk about it.

[Aroostook]

I felt that way too at first! Then I just started ordering around my Celiacs! Hamburger, no bun please! Then I pull a bun from my purse or hoodie pouch! Tater skins and cheese with bacon! At first the family was embarassed but I didn't care! I have to live too, and now they all laugh and support me! I have a great family who are supporting me! When I want pizza I make my own massive topping pizza at home and freeze what is left for another day! I have cookies, cake, donuts, and have adapted most of my recipes to my flour. Granted I am "old" (55) but I am just now starting to live. I have been sick for over 35 years and no one knew what was wrong. Now we do and I have time to make up for!! Drag your cookies along in your purse. Like I said, Pack a homemade hamburg bun in your purse too! Then you can enjoy too! Where there is a will there is a way! And you don't have to go without! If you can't find a good pizza recipe contact me and I'll share mine with you! Have a super day!
Starting my life over at 55! NIN's (for those who don't know that's Nine Inch Nails!) for ever! Living without pain for the first time in over 35 years! Aroostook, the CompUMom

[IxMissxMysticxPizza]

Aroostook, on May 5 2009, 07:51 AM, said:

I felt that way too at first! Then I just started ordering around my Celiacs! Hamburger, no bun please! Then I pull a bun from my purse or hoodie pouch! Tater skins and cheese with bacon! At first the family was embarassed but I didn't care! I have to live too, and now they all laugh and support me! I have a great family who are supporting me! When I want pizza I make my own massive topping pizza at home and freeze what is left for another day! I have cookies, cake, donuts, and have adapted most of my recipes to my flour. Granted I am "old" (55) but I am just now starting to live. I have been sick for over 35 years and no one knew what was wrong. Now we do and I have time to make up for!! Drag your cookies along in your purse. Like I said, Pack a homemade hamburg bun in your purse too! Then you can enjoy too! Where there is a will there is a way! And you don't have to go without! If you can't find a good pizza recipe contact me and I'll share mine with you! Have a super day!
Starting my life over at 55! NIN's (for those who don't know that's Nine Inch Nails!) for ever! Living without pain for the first time in over 35 years! Aroostook, the CompUMom

thanks for the advice! i guess i could always bring alternatives to parties and stuff. like if im going to a place that has cake, i'll bring a gluten free candy bar or if im at quizno's or something i'll buy some chips. i do that sometimes and i feel less left out. but i haven't had pizza in years. i just cant seem to find a good gluten free pizza so if its not too much trouble, could ya send me ur recipe???? i miss that cheesy goodness very much! thanks again! p.s. nine inch nails rock.

[IxMissxMysticxPizza]

Aroostook, on May 5 2009, 07:51 AM, said:

I felt that way too at first! Then I just started ordering around my Celiacs! Hamburger, no bun please! Then I pull a bun from my purse or hoodie pouch! Tater skins and cheese with bacon! At first the family was embarassed but I didn't care! I have to live too, and now they all laugh and support me! I have a great family who are supporting me! When I want pizza I make my own massive topping pizza at home and freeze what is left for another day! I have cookies, cake, donuts, and have adapted most of my recipes to my flour. Granted I am "old" (55) but I am just now starting to live. I have been sick for over 35 years and no one knew what was wrong. Now we do and I have time to make up for!! Drag your cookies along in your purse. Like I said, Pack a homemade hamburg bun in your purse too! Then you can enjoy too! Where there is a will there is a way! And you don't have to go without! If you can't find a good pizza recipe contact me and I'll share mine with you! Have a super day!
Starting my life over at 55! NIN's (for those who don't know that's Nine Inch Nails!) for ever! Living without pain for the first time in over 35 years! Aroostook, the CompUMom

thanks for the advice! i guess i could always bring alternatives to parties and stuff. like if im going to a place that has cake, i'll bring a gluten free candy bar or if im at quizno's or something i'll buy some chips. i do that sometimes and i feel less left out. but i haven't had pizza in years. i just cant seem to find a good gluten free pizza so if its not too much trouble, could ya send me ur recipe???? i miss that cheesy goodness very much! thanks again! p.s. nine inch nails rock.

[ambuh23]

Aroostook, on May 5 2009, 07:51 AM, said:

I felt that way too at first! Then I just started ordering around my Celiacs! Hamburger, no bun please! Then I pull a bun from my purse or hoodie pouch! Tater skins and cheese with bacon! At first the family was embarassed but I didn't care! I have to live too, and now they all laugh and support me! I have a great family who are supporting me! When I want pizza I make my own massive topping pizza at home and freeze what is left for another day! I have cookies, cake, donuts, and have adapted most of my recipes to my flour. Granted I am "old" (55) but I am just now starting to live. I have been sick for over 35 years and no one knew what was wrong. Now we do and I have time to make up for!! Drag your cookies along in your purse. Like I said, Pack a homemade hamburg bun in your purse too! Then you can enjoy too! Where there is a will there is a way! And you don't have to go without! If you can't find a good pizza recipe contact me and I'll share mine with you! Have a super day!
Starting my life over at 55! NIN's (for those who don't know that's Nine Inch Nails!) for ever! Living without pain for the first time in over 35 years! Aroostook, the CompUMom

Where do you find these buns and things?? so far all i've found are some cookies and some breakfast bars. Basically the gluten free section at the ingles market. i cant cook, every time ive order around a menu item at a resturant they mess it up and i send it back and by the time i get it back it's either a)still worng or b)everybodys done and i gave up and go home. my family doesn't really cook i'm an only child and my mother pulls long shifts at work. my dad doesnt cook either. so i'm up the creek without a paddle...can i borrow your paddle??

[hannahp57]

I understand how you feel. i have had times at a restaurant where i will order a sandwich without the bread and the waitress looks at me like i am a freak. other times i'll get the sandwich with no bread and explain that i am allergic and ask for a salad with no croutons and they'll mess that up. then look annoyed when i ask for a fresh one!!

you'll start learning to cook more when you are older or just done paying the ridiculous prices! trust me, i only recently started baking and exploring...and its not so hard once you get the hang of it. i promise.

one good brand that makes sandwich buns in schar. you may find it on amazon perhaps.

here's some recipes that i know will turn out well if you ever do decide to try out baking.. of course it will require a special shopping trip because i have yet to find xanthan gum in a regular store..

http://killthegluten.blogspot.com/2007/09/...e-brownies.html

http://www.celiac.com/gluten-free/index.ph...hl=pamela's (the very last post has a bread recipe)
it also mentions pamela's bread mix, which means you would only need to use a bread machine or mixer and oven. it is really a good bread. i liked it alot

http://travsgoneglutenfree.blogspot.com/20...-chex-bars.html
a very good treat. you won't feel so bad about missing that cake!

i was diagnosed at sixteen. and i have a twin who is not gluten free and she refused to accept a gluten-free cake on our birthday...so have had to stare at my own cake without being able to taste it. eventually i decided it was time i could take care of myself. three years later (almost!) and i have made just about everything that i have ever stared at with jealousy... oh and one more recipe. poptarts are one thing that made me cry when i first changed to gluten free. if you're in the same boat give these a shot!

http://jacobithe-glutenfree.blogspot.com/2.../pop-tarts.html
hope this all helps at least a little bit

[ambuh23]

we sell xanthum gum at ingles!!!! i work there by the way so you can find it there, most every store laid out the same so it should be on aisle 4 or you you flours if tehir gluten free section isn't on aisle 4.

Thank you so much for the recipes, i probably would've started cooking by now if my dad (who doesnt cook) would let me cook...confusing i know. Wow a twin without celiacs...now thats a tricky combo...i can't believe that they made you stare at a cake you couldnt touch....im sorry *HUG*

[vickysmores]

first, to the twin who has a non celiac twin- i´m sure your twin will apologize at some point when he or she realizes how insensitive that was!

to the original post- it can be tough i know. my best friend sometimes yells at me to "get that look off of my face" when he is eating a pizza or garlic bread etc. and my eyes kinda glaze over. i´m not craving his food as much as pondering how crazy it is that that food was the culprit for making me sick for so long. it´s also tough when you go to a party and someone offers you a beer, you say no thanks, they ask why, and you explain and you get "omg i would die without beer." although that is a sad state for them to live in, it will probably annoy you just as much. all i can say is that you will get used to it, and you could also suggest going to other places where they would have something for you to eat. OR bake some amazing looking cookies or brownies and they will beg you for your own special food.

[hannahp57]

I dont know if this happens anywhere other than my hometown but here is a typical conversation when offered a beer at a party

"hey you wanna beer?"
me-"no thanks
"why not?"
me-im allergic
"Really? Thats weird. what are you allergic to?"
me-Wheat
"you're allergic to Weed?!"
me-NO. WHEAT!
"oh thats even worse... (and of course) I would DIE without wheat"

that makes me die a little inside every time i have it (haha just kidding). people are genuinely ignorant at times
haha i just had to throw that in. has anyone else ever been misunderstood to have said weed instead of wheat

[Angels~Exist]

It's kind of cruel that we all crave the food we aren't allowed to have! It's worse when someone shoves it in your face. I pretty much gave up on eating out anywhere. Either I take my own food or wait to eat until I get home. I have a celiac card but people just treat me weird when I use it. Sometimes I'm just not in the mood to go through all that!

[G-freegal12]

I know what you mean about being a "freak" but, I hope that once we are older, we will have explained this disorder to so many people everyone will know about it!

[tepy]

hannahp57, on Jun 13 2009, 06:28 PM, said:

I dont know if this happens anywhere other than my hometown but here is a typical conversation when offered a beer at a party

"hey you wanna beer?"
me-"no thanks
"why not?"
me-im allergic
"Really? Thats weird. what are you allergic to?"
me-Wheat
"you're allergic to Weed?!"
me-NO. WHEAT!
"oh thats even worse... (and of course) I would DIE without wheat"

that makes me die a little inside every time i have it (haha just kidding). people are genuinely ignorant at times
haha i just had to throw that in. has anyone else ever been misunderstood to have said weed instead of wheat

yea i get that HEAPS, people makes jokes about me beingallergic to food in general saying that 'tepy is allergic to evreything' when someone offers me a cookie or something... its almost like people act like i am a hassle to be around-what the hell to the think its like to live this way..ignorant f***************

[hannahp57]

tepy, on Aug 7 2009, 05:54 PM, said:

yea i get that HEAPS, people makes jokes about me beingallergic to food in general saying that 'tepy is allergic to evreything' when someone offers me a cookie or something... its almost like people act like i am a hassle to be around-what the hell to the think its like to live this way..ignorant f***************

oh yeah that too.. for my a while my friends and people at my high school would always say "oh yeah hannah is allergic to lunch" and crap like that. and for a while at work they called me the girl allergic to everything "even water"
but that last one made me laugh water allergy

[UnhappyCoeliac]

I get where you are coming from
I am 22 but it definitely is socially awkward being young with this disease.

Instead of being ridiculed for being different or not being able to have something I simply dont let on I have it and sometimes refuse food I had one friend saying "oh just because you cant eat this, thats why you think it craps"

If I act like I can have it but then refuse it, it works better for me, good luck its tough

[Jaded]

I used to feel that way all the time and sometimes still do. Especially at family gatherings. Like on thanksgiving when they make the pie ;and the stuffing and you can't have any you have to bring your own. At my best friends wedding i had to make a cake and rolls for me and my parents to take. luckily her cousin was celiac and we saved her from having to make one herself. It was weird cuz when i told her mom i would make a cake she hugged me. but yeah i know. what i thought was worse is when my friends parents make a big deal when they eat. They yell at her for eating when i can't. that pisses me off. I like it better when she just teases me. like making sugar cookies and talking about how good they are.