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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Does Anyone Know How Much Blood They Take For Test?
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5 posts in this topic

I just had blood taken on Monday & they only took 2 viles of blood. Does anyone know if that is enough to do the complete panel or do you think they only did a partial? I don't want to call & ask because I've called there so much lately. I just called my doctors office last week & asked if the doctor could do some blood work to check for celiacs & food allergies. They said ok & to come in to take blood.

Anyone know how much blood they need to take to do the full celiac panel?

Thanks!

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has anyone had the full blood panel done & know how much blood they took?

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If you are concerned about whether or not they ran the full panel, the best thing to do would be to call the office and ask them to specifically tell you all the tests that were ordered. If they say "Celiac panel" you can ask specifically what that includes, if they don't know, either one of you can call the lab and ask specifically what that lab's panel includes. This information should be relatively easy to obtain and you have a right to it. I recently requested a test(panel) from my doctor and he researched it before ordering it, because he didn't know if it was available through the lab that his office uses. I had brought in a photocopy of a description of a similar tets that another lab uses. His assistant called up the lab and asked them what they had like that and they reserched it and told her what they had available. It was similar but with one difference. You may end up having a conversation about it when the results come back anyway so it may be more efficient to wait until then.

The waiting is the hardest part. You'll make it through. Just find something else to focus on/ distract yourself until then. Do something nice for yourself. If for some reason, everything is not in order, you can address it then. If then you see that further steps need to be taken, it's not too late. I'm confident that you'll still have options. Hang in there.

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Thanks for your advise. I think I will just wait for the results to come in & find out if he did the full panel. They took the bloodwork on Monday, so I'm hoping & praying that the results come in on Monday. I have an appoinment with my GI doctor on Wednesday so I would really like to have the results when I go so we can either rule it out or go from there (note, my family dr is the one who took the bloodwork).

Does anyone else know how much blood they need to take for the full panel (just for my mind's ease)?

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I just had a panel done today. I called (pestered) my doc to order one for me. When i went in today they took about 6 vials of blood. I was curious if they took more than normal, maybe doc asked to have other tests done while I was there. Hmmm... we shall see. I have to wait 4-5 business days (a week) for the results.

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  • Topics

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    • How do you know what's causing what?
      I am in same boat, yesterday my stomach was churning and bloated and I don't know what the cause was.  How about keeping a food diary? Just note what you ate and how you feel. A few days may be sufficient to discern a pattern, either some rogue product or a previously unknown intolerance. I have read that after gluten is removed further intolerances which were hidden can become apparent.  I don't know whether you could cut yourself some slack from a full vegan approach whilst your body heals? If not, maybe you could substitute say milk with coconut milk or similar to give your body a break whilst keeping calcium levels high? If you join coeliac uk you can check your sauces etc on their gluten-free database, they'll also send you a book which became my bible until I got a hang of which brands I could eat safely. Finally, have you excluded cross contamination from pots and pans, toasters, shared condiments etc?  Good luck!
    • Blood results - odd
      My results were similar – Low ferritin but normal B12. Although my ferritin levels were low, my Iron serum levels were normal. So might be worth getting your iron levels checked out to see if you have any deficiency in Iron. Also I was deficient in Vitamin D, which is perhaps more of a problem in England rather than the US - Our milk isn’t supplemented with vit D and we obviously have less sunshine.
    • How do you know what's causing what?
      Hi Kam, If you are going to continue the celiac testing with an endoscopy, you need to keep eating gluten until it's done. It can be hard for vegetarians to keep their vitamin D levels up.   This Vitamin D  Council link has some good info on ways to boost your levels. https://www.vitamindcouncil.org/about-vitamin-d/
    • Blood results - odd
      Your ferritin was very low!  My result was a 2 when I was diagnosed.    I hard a hard time breathing and the fatigue was awful due to low hemoglobin levels.  But after going gluten free and taking iron for a few months, I quickly recovered from iron-deficiency anemia.  I still have hemologobin levels that are slightly below range due to Thalassemia which is genetic and my body has adjusted for it.   My B12 and folate levels are  super high.  My B12 is over 2000!  Yeah, I googled and ruled out cancers, etc.  Looks like some of us do not process man-made B12 often included in supplements.  I opted for natural sources of B-12 and folate and my levels have come down a bit.   Let us know your results.  Read the Newbie 101 section under "Coping" within this forum for tips.   Be patient.  It can take months, to years to feel good.  But it will happen!    
    • How do you know what's causing what?
      Welcome to the forum!   Well.....in theory you should be able to heal within a few months (grow new villi, etc.).  The reality is that it takes so much longer -- like a year or two (I kid you not!)  Why?  celiac disease can damage more than just the gut.  Depending on what was damaged (nerves, bones, etc) can impact healing time.  The gluten-free diet has a very steep learning curve.  It's not just giving up gluten.  It's avoiding cross contamination.  Becoming an expert in reading labels.  Learning to avoid foods processed on shared lines in a facility.  Then there are intolerances that most celiacs develop.  The most common ones is lactose.  Why?  The villi tips release the enzymes to digest lactose.  No villi tips?  Then you can not digest lactose.  Often this is temporary, but if you are one of the many adults in this world, you might already be lactose intolerant or might become so as you age.   Other intolerances that members often report include corn or soy.   Some celiacs react to oats, even gluten free.  So avoid oats for six months.  So, try cutting out dairy for a few days and see how you feel.  Then add in those items that have the least lactose:  hard cheese, butter, yogurt and see how you feel.   Avoid eating out for six months until you have seen some improvement.   Read our Newbie 101 thread under coping for more ideas!  Hope you feel better soon.   
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