Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Traveling Abroad, 1st Time Since Sons Dx....help?


jmjsmomma

Recommended Posts

jmjsmomma Apprentice

Hello all,

We are 4 months into my 5 year olds celiac dx in January. He had a 3 month follow up last month and he grew 3/4 inch in those 3 months since being gluten-free! He still is not even on the growth chart, but he GREW! And more importantly, he is feeling so much better and looks healthier, has more energy, etc.

He got glutened last week at Sunday school when they played "doggy, doggy, where's your bone" with a dog bone!! Couldn't believe it but I looked at the ingredients the next day when I was at the church and sure enough the first ingredient was wheat flour. He did not wash his hands after and must've licked them. He got a terrible belly ache for which I was sad but also happy that he felt the side effect of being glutened and it strengthened his resolve to not touch gluten!

Okay, so our family takes a trip to Cozumel, Mexico each May. I refused to let this dx stop our quality of life and my son would've been devastated if we didn't go. So I was looking for any traveling advice/tips? We stay at the same resort every year and I've already talked to the manager about preparing stuff on a clean grill for him which is not a problem. I plan on taking a separate suitcase with snacks/cereals/cookies, etc for him. I would love to hear any advice you may have on making our trip a success?

Thanks so much!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MaryJones2 Enthusiast

Mexico is very celiac friendly. I've never had a problem there. I always pack a suitcase of food when I travel. I like to take along individually wrapped snacks and maybe a bag of chips or crackers for the hotel room. Other easily transportable items are jerky, peanut/nut butter and such. Shelf stable liquids like rice milk and broth also work. You might also want to take a collapsable cooler in case you go somewhere and want to take fresh fruit, yogurt, etc. Oh, and ziplock bags for make shift ice packs.

I hope you have a great time!

Link to comment
Share on other sites
jmjsmomma Apprentice

Thank you Janet! We never leave our all-inclusive resort but the baggies for ice is such an excellent tip for any future travels. I figured from past visits that Mexico was celiac friendly so I am not too worried. My son loves all meats, all fruits, veggies, rice....so I am very fortunate there in that as long as the grill is clean he will be okay. He will probably be fine....me on the other hand....I got Montezuma's revenge last year for the first time in SEVEN trips! I pray it doesn't happen again :o

Link to comment
Share on other sites
songstressc Apprentice
Hello all,

We are 4 months into my 5 year olds celiac dx in January. He had a 3 month follow up last month and he grew 3/4 inch in those 3 months since being gluten-free! He still is not even on the growth chart, but he GREW! And more importantly, he is feeling so much better and looks healthier, has more energy, etc.

He got glutened last week at Sunday school when they played "doggy, doggy, where's your bone" with a dog bone!! Couldn't believe it but I looked at the ingredients the next day when I was at the church and sure enough the first ingredient was wheat flour. He did not wash his hands after and must've licked them. He got a terrible belly ache for which I was sad but also happy that he felt the side effect of being glutened and it strengthened his resolve to not touch gluten!

Okay, so our family takes a trip to Cozumel, Mexico each May. I refused to let this dx stop our quality of life and my son would've been devastated if we didn't go. So I was looking for any traveling advice/tips? We stay at the same resort every year and I've already talked to the manager about preparing stuff on a clean grill for him which is not a problem. I plan on taking a separate suitcase with snacks/cereals/cookies, etc for him. I would love to hear any advice you may have on making our trip a success?

Thanks so much!

I purchased The Gluten Free Bible - and this book is full of helpful suggestions on travel AND has pages in the back that you can photocopy in many languages. I wonder if the library in your area would have this? Probably in Mexico you can just speak English but good to know about these pages for future travel. you can photocopy them and hand them to the server; It just explains you need gluten free options and asks for help.

It sounds like you are already doing a great job by calling. We went to Kauai and I was worried about where to eat etc. and by calling ahead and finding out where to eat and to shop made it so much easier. We also brought a few staples with us (In our suitcases and a separate box) just in case; We had a kitchen to use some of the time. The only thing that got us was a salad dressing at a restaurant; one server was sure it was gluten free and it wasn't. I have read in my book that buying an Amy's dressing and taking it to the restaurand can really help if you don't mind doing that. Have a great trip!

Link to comment
Share on other sites
swalker Newbie

I take grapefruit seed extract when I travel. It can stop montazuma's revenge in an hour.

Link to comment
Share on other sites
jmjsmomma Apprentice
I take grapefruit seed extract when I travel. It can stop montazuma's revenge in an hour.

Fortunately I did not get it till about 24 hours after our return home, but I think I'll be packing some of this just in case! I lost 4 lbs in 9 hours of throwing up which is a lot on my frame. I don't care to repeat it but am not going to lose out on a fabulous vacation either :)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    2. - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    3. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    4. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    5. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748

    Suzi374
    Newest Member
    Suzi374
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...