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I found a safe to eat list either on this site or maybe a link from this site to another and it listed brands that are gluten free. So, got a box a Corn pops, they were on the list. Ate some, Got sick. There is Wheat in the corn pops. Got the instant headache, nauseau, loopiness, fatigue. Went to bed, slept like crap, wake up feeling like crap.
Dont eat corn pops.
JBAby
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Dont Eat Kelloggs Corn Pops.
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#2
ravenwoodglass 
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Posted 18 May 2009 - 03:44 AM
They were gluten free when I was first diagnosed but when the US went on the multigrain bandwagon the company decided to add wheat starch. They used to be one of my favorite cereals so I am hopeful that eventually they will wake up and make them gluten free again.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#3
JBaby
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Posted 18 May 2009 - 07:46 AM
ravenwoodglass, on May 18 2009, 07:44 AM, said:
They were gluten free when I was first diagnosed but when the US went on the multigrain bandwagon the company decided to add wheat starch. They used to be one of my favorite cereals so I am hopeful that eventually they will wake up and make them gluten free again.
Good to know. I guess maybe I was looking at an old list.
#4
happygirl
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Posted 18 May 2009 - 08:02 AM
jbaby, I'm sorry that you got sick.
Lists like the one you probably have are notoriously unreliable. Many members have found it is best to read every label and learn which companies clearly list gluten ingredients, so that they can make informed decisions.
We've all been there, and done that, unfortunately. Join the club
. Hang in there.
Lists like the one you probably have are notoriously unreliable. Many members have found it is best to read every label and learn which companies clearly list gluten ingredients, so that they can make informed decisions.
We've all been there, and done that, unfortunately. Join the club
. Hang in there.
#5
mommida
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Posted 18 May 2009 - 08:50 AM
We still have to read the labels.
i.e. It started going around that Rice Chex was going gluten free. We really had to watch which stores had the old gluten boxes and which ones were gluten free.
i.e. It started going around that Rice Chex was going gluten free. We really had to watch which stores had the old gluten boxes and which ones were gluten free.
Michigan
#6
larry mac
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Posted 18 May 2009 - 12:17 PM
Corn Pops were my absolute favorite cereal.
#1 thing to remember when a Celiac. Must read all labels. No wheat, barley, or rye.
best regards, lm
#1 thing to remember when a Celiac. Must read all labels. No wheat, barley, or rye.
best regards, lm
gluten-free 12-18-06
colonoscopy
blood, urine, stool tests
prometheus testing
endoscopy, positive biopsies
diagnosed celiac by GI 12-18-06
"Sobriety sucks. That's why they invented booze in the first place." Denis Leary - Rescue Me
Beware the chocolate of Chiapa
Liquidum non frangit jejunum
colonoscopy
blood, urine, stool tests
prometheus testing
endoscopy, positive biopsies
diagnosed celiac by GI 12-18-06
"Sobriety sucks. That's why they invented booze in the first place." Denis Leary - Rescue Me
Beware the chocolate of Chiapa
Liquidum non frangit jejunum
#7
Juliebove
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Posted 18 May 2009 - 07:49 PM
That's why you can't go by lists and must read all ingredient lists.
IgG, me: Eggs, oysters OAS : Almonds, pistachios
IgG, daughter: Wheat, spelt, lentils, peas, peanuts, almonds
IgG, daughter: Wheat, spelt, lentils, peas, peanuts, almonds
#8
lovegrov
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Posted 19 May 2009 - 07:36 AM
There's a lot of old info out there on the Web. You must check out the age of the info.
On the positive side, that list probably doesn't include some things that weren't gluten-free then but are now, like Corn Chex.
richard
On the positive side, that list probably doesn't include some things that weren't gluten-free then but are now, like Corn Chex.
richard
Celiac.com - Celiac Disease Board Moderator
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