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Newly Diagnosed.....chewing Tobacco
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Hi, well my husband was just diagnosed with celiac last week! Our world has been turned upside down as you all know! I am a nervous wreck not to mention his feelings of anger.....he is a tobacco chewer. Recently he has been using Grizzly smokeless. Does anyone know if any of it is safe? Please help me.....I know I will be depending on your responses to very many questions. We have found that in our area it is not well known and we feel like we are on our own with this.... :( Thanks in advance. kymom

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Hi, well my husband was just diagnosed with celiac last week! Our world has been turned upside down as you all know! I am a nervous wreck not to mention his feelings of anger.....he is a tobacco chewer. Recently he has been using Grizzly smokeless. Does anyone know if any of it is safe? Please help me.....I know I will be depending on your responses to very many questions. We have found that in our area it is not well known and we feel like we are on our own with this.... :( Thanks in advance. kymom

:o The best advice I have for your husband is to "STOP CHEWING TOBACCO!!!!" The increased risk of mouth cancer, tongue cancer, esophageal cancer, stomach cancer, etc., due to chewing tobacco is well documented.

I realize that the addiction is quite strong due to the nature of chewing tobacco and the addicting additives, but if he is going to follow the celiac diet to maintain his health, it makes sense that he would quit chewing tobacco to maintain his health.

The only other way to find out if his "brand" is gluten free is to call the manufacturer. My gut guess is that it is not...

Good luck to you and your husband in your life changing journey!

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:o The best advice I have for your husband is to "STOP CHEWING TOBACCO!!!!" The increased risk of mouth cancer, tongue cancer, esophageal cancer, stomach cancer, etc., due to chewing tobacco is well documented.

I realize that the addiction is quite strong due to the nature of chewing tobacco and the addicting additives, but if he is going to follow the celiac diet to maintain his health, it makes sense that he would quit chewing tobacco to maintain his health.

The only other way to find out if his "brand" is gluten free is to call the manufacturer. My gut guess is that it is not...

Good luck to you and your husband in your life changing journey!

Why is it there is always someone who likes to lecture people on tobacco use? I am sure that everyone who smokes and uses chewing tobacco knows it is not healthy for them but they need to come to their own decision about quitting. Any guy that has been diagnosed with Celiac and is going through the anger phase of things is not going to quit this habit overnight. And everyone who smokes and uses chewing snuff does not get cancer either. It's an increased risk, not a foregone conclusion.

As for it's gluten-free status, if it is a flavored tobacco, it may not be gluten-free. If it is plain tobacco, it probably is but he needs to call the tobacco manufacturer to verify.

They may not even know themselves, due to the nature of their product. Can you list the ingredients here?

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Why is it there is always someone who likes to lecture people on tobacco use? I am sure that everyone who smokes and uses chewing tobacco knows it is not healthy for them but they need to come to their own decision about quitting. Any guy that has been diagnosed with Celiac and is going through the anger phase of things is not going to quit this habit overnight. And everyone who smokes and uses chewing snuff does not get cancer either. It's an increased risk, not a foregone conclusion.

As for it's gluten-free status, if it is a flavored tobacco, it may not be gluten-free. If it is plain tobacco, it probably is but he needs to call the tobacco manufacturer to verify.

They may not even know themselves, due to the nature of their product. Can you list the ingredients here?

Thanks Gemini, I was thinking the same thing when I read svs response. These two people need support on a loss not a lecture about chewing. I recently stopped smoking and it took me years to come to terms with it.

Like Gemini said, best thing to do is call the company. This is a very supportive site and people here are very helpful, dont ever hesitiate to ask questions. Welcome to the boards =)

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I use something called "snus" which is tobacco that goes in the upper lip but im sure you could use in the lower lip. I order it online, it comes from sweden, and they are very good about their ingredient listing and only using all natural ingredients. They use no preservatives which means you have to keep it refrigerated, but also means less ingredients that would trigger celiacs. I use it daily with no problem.

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Added thanks to Gemini.

The woman was asking a question and noticeably concerned, not looking for a lecture.

I have the same question, and nobody has ever posted back that they have contacted the manufacturer so I will make that a "todo" item.

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Added thanks to Gemini.

The woman was asking a question and noticeably concerned, not looking for a lecture.

I have the same question, and nobody has ever posted back that they have contacted the manufacturer so I will make that a "todo" item.

Hey ronschon, here is a link to someone who posted on this before, it looks like they contacted the company, but it didn't help much:

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Added thanks to Gemini.

The woman was asking a question and noticeably concerned, not looking for a lecture.

I have the same question, and nobody has ever posted back that they have contacted the manufacturer so I will make that a "todo" item.

I don't know if they make chewing tobacco but after diagnosis I switched to a totally additive free tobacco made by a company called Natural American Spirit. Their cigs and tobacco are just tobacco nothing else.

Incidentally I went from being a pack a day smoker to someone who now smokes the equivalent of a pack a week with no effort whatsoever. 3 drags off a cig and I don't need another for at least 3 hours whereas when smoking regular cigs I would crave another within minutes. Seems I was more addicted to the additives than the tobacco. The one drawback is that the cigs do go out quickly if you are not drawing on them since they don't have all the additives to keep them burning.

You may want to check and see if they make chewing tobacco. The company is located in Santa Fe NM. I have no affilitation with them.

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I'm not sure if you will get much info from the tobacco companies. They are famous for not wanting to tell people (even the government) what kind of additives they put in cigarettes. I'm not sure about chew though. Maybe because it goes in the mouth where there is a chance of actually ingesting some, the rules would be different.

I understand why svs'ndvs posted the "lecture" though. I was tempted to do the same. As a smoker who knows this habit is killing me, I'd like to lecture everyone about not STARTING, because I know how hard it is to quit. And I also am surrounded by people who chew, and yes, quite a few people I know have gotten oral cancer. And it is so GROSS when someone who chews comes into my shop spitting that ugly brown "juice" into a cup or used soda bottle.

But on the other hand, I realize that giving up gluten will be hard enough without trying to give up tobacco at the same time. If it turns out the chew is gluten-free, it will be at least SOMETHING enjoyable from the days BEFORE gluten-free that he can take comfort in. (That was just ONE of my excuses to continue smoking.)

One bad habbit at a time. Fix the gluten problem and worry about the chew later. I'll be giving up the cigarettes too...later.

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My problem has been mostly taken care of. I used the product for about 30 years before finally quitting. Now, a very small bit, I use the chewing tobacco pouches made by UST - skoal xtra pouches.

To quantify the change, probably less than 10% a day than what I used for so many years.

I have only been gluten-free for 4 days, so it will take time before I know if it will have to be 100% gone.

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Added thanks to Gemini.

The woman was asking a question and noticeably concerned, not looking for a lecture.

I have the same question, and nobody has ever posted back that they have contacted the manufacturer so I will make that a "todo" item.

Just a note that the " lecture" was 3 years ago. :D

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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