Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Acne, Joint Pain, Swollen Glands And Headaches
0

6 posts in this topic

I am new to the blog and haven't been diagnosed yet for gluten allergy/Celiac but I have a lot of questions about my symptoms.

For almost as long as I can remember I was always sick with cold-like symptoms but they got terribly worse after a death in my family and I began a vegetarian lifestyle. After a few months with worsening symptoms I stopped eating whole wheat and soy-based foods. Most annoying symptoms were sneezing constantly and a nose that wouldn't stop running. I went to a muscle-response doctor and he told me that I had an allergy to several grains and soy. I have gone back in forth between being gluten free and eating whatever I wanted. Sometimes immediately or days after I eat something containing gluten I break out (more than usual), sneeze, tighten glands around my neck, brain fog, poor short-term memory, headaches, joint pain, and sometimes I have stomach pain and bloating but rarely. I also suffer from bouts of depression. From my research these symptoms are more associated with a wheat allergy. I read that Celiac disease is hereditary but none of my family have been diagnosed. Many of them have had other autoimmune diseases such as Fibromyalgia and Arthritis.

I was hoping that some of you have had similar symptoms. I have been gluten free for the last week and I feel great. My energy increased, depression disappeared, flat stomach, but the acne still remains (but better). I am trying to get my mother who has both Fibromyalgia and Arthritis to stop eating gluten but I wish I had more information to give her. Any confirmation on my symptoms or information would be greatly appreciated.

0

Share this post


Link to post
Share on other sites


Ads by Google:
I am new to the blog and haven't been diagnosed yet for gluten allergy/Celiac but I have a lot of questions about my symptoms.

For almost as long as I can remember I was always sick with cold-like symptoms but they got terribly worse after a death in my family and I began a vegetarian lifestyle. After a few months with worsening symptoms I stopped eating whole wheat and soy-based foods. Most annoying symptoms were sneezing constantly and a nose that wouldn't stop running. I went to a muscle-response doctor and he told me that I had an allergy to several grains and soy. I have gone back in forth between being gluten free and eating whatever I wanted. Sometimes immediately or days after I eat something containing gluten I break out (more than usual), sneeze, tighten glands around my neck, brain fog, poor short-term memory, headaches, joint pain, and sometimes I have stomach pain and bloating but rarely. I also suffer from bouts of depression. From my research these symptoms are more associated with a wheat allergy. I read that Celiac disease is hereditary but none of my family have been diagnosed. Many of them have had other autoimmune diseases such as Fibromyalgia and Arthritis.

I was hoping that some of you have had similar symptoms. I have been gluten free for the last week and I feel great. My energy increased, depression disappeared, flat stomach, but the acne still remains (but better). I am trying to get my mother who has both Fibromyalgia and Arthritis to stop eating gluten but I wish I had more information to give her. Any confirmation on my symptoms or information would be greatly appreciated.

Hi, and welcome to the forum.

The symptoms you describe are certainly consistent with someone who has celiac disease, or at the very least gluten intolerance. It can greatly weaken your immune system, leaving you susceptible to respiratory infections--wich was me, all my life. From my personal experience with my husband it can also cause a kind of allergic rhinitis-type symptomatology which leads to sinus infections. Swollen lymph nodes, brain fog, depression, bloating, stomach pain, as you are obviously aware, are all typical symptoms of an intolerance to gluten. When you say that none of your family have been diagnosed, although suffering frrom fibromyalgia and arthritis, this is not to say that they don't have celiac, only that they have never been diagnosed. Ninety-seven percent (so I have read) of celiac sufferers have not been diagnosed. I am self-diagnosed, at age 67, because no one thought to test me. I have rheumatoid arthritis and psoriasis which is what led to my self-diagnosis. My husband has not been tested, but he has (undiagnosed) dermatitis herpetiformis if he cheats on the diet, so lack of a diagnosis in your family is not at all significant. It could just mean that, like me, no one has thought to test them. The most common diagnoses that gluten intolerant people receive from their doctors are irritable bowel syndrome and fibromyalgia.

If you were to test positive for celiac disease, it would mean, genetically, that you would have to have inherited it from one of your parents, and that would most likely be your mother.

If I were you I would ask my primary care physician to run the full celiac panel of blood tests on you. If these are positive s/he will probably refer you to a GI for an endoscopy and biopsy to confirm the diagnosis. However, even if one or both of these tests are negative it does not mean that you do not have celiac or are not gluten intolerant. Unfortunately the tests are not 100% accurate and produce many false negatives. If that were to occur, then your option is to try the gluten free diet and see if you respond positively to it. Many people are in this boat. The tests are just not that accurate., unfortunately,

Best of luck to you; I hope you get an accurate diagnosis of your problem.

0

Share this post


Link to post
Share on other sites

I can relate to almost all of your symptoms. I can also state that having one immune disorder does not preclude another. I've recently been diagnosed with "other" immune disorders....but Celiac was the first to be found. Just because your family members have not been diagnosed, does not mean it's not there. If you feel so much better on a gluten free diet, then it seems to me that you have your answer. Like Shroom has said, even with testing you can get a false negative (as it happens with so many other things). Get tested if you need to have that confirmation. How you go about it is up to you, but relief is relief is relief. If it hurts when you bang your head, then don't bang your head :P

0

Share this post


Link to post
Share on other sites

I had terrible headaches, too, that went away almost immediately after I went gluten-free. That's actually how I discovered I had celiac, by accident. I was doing an elimination diet to see if my asthma would improve and instead my headaches went away. I realized it was wheat after a week, and haven't looked back since.

I'm the only one officially diagnosed in my family, too. But I inherited it from both of my parents, and I think I have undiagnosed family members on my dad's side (maybe even him). They see how much I have benefited from the gluten-free diet, but they won't totally commit. Instead they eat gluten lite and won't get tested... oh well, they do what they do.

I also think my brother has it. He's had stomach/digestive issues since I can remember. But he won't go get tested for it either, instead he bakes his own low-wheat bread at home since it doesn't bother him as much.

Give it a real go, a month or two, and see how you feel. If you're already seeing improvement, you're on the right track. You can be tested for allergies anytime, so if you're curious as to whether it's an allergy or not, you can have that done whether you're currently eating gluten or not. The celiac testing though is based on you eating gluten, so if you want to be tested, do it now before you get too far into the gluten-free diet and decide you don't want to go back!! :lol:

0

Share this post


Link to post
Share on other sites

Hi All

I have a question mainly about the swollen glands thing. i am currently undiagnosed, but pretty sure I am celiac. My mum was diagnosed about 15 years ago, she had classic symptoms.

I have been diagnosed with IBS and other stress related intestinal issues for years now, also depression and nothing seemed to help.

Over the last 6 months I have been having more and more servere symptoms, to the point that 20 mins after eating lunch I was having trouble staying awake and certainly coudnt get alot of work done. I began to cut lunch out and found i was better. At the same time I started getting a tingling strange sensation in my toungue at the back and swollen glands at the back of my throat a jaw line and a rash or reaction has appeared on my lower legs. This twinned with the headache, fatigue and general feeling being wiped out made me not want to eat. I chatted to my mum and she suggested I go gluten free for while. I have done this for about a month now and have seen a real improvement, I am much more on form more energy and the symptoms are almost gone. What I notice now is that if I consume gluten (in error, usually disguised or not indicated) My tongue and glands react right away (15 mins), the fatigue hits and all i want to do is sleep it off.

It is like having a gluten detector, even tiny amounts can trigger it.

Anyway my quesiton i supppose is, is this normal for a celiac or at least known?

I am in the process of arranging a test, but in the UK it is not so simple. I beleive i have to eat gluten for week before the test? this fills me with dread I have to say. I want to find out if I am indeed Celiac but really dont want to week of the symptoms again.

Does anyone know what I am going on about?

0

Share this post


Link to post
Share on other sites




I am new to the blog and haven't been diagnosed yet for gluten allergy/Celiac but I have a lot of questions about my symptoms.

For almost as long as I can remember I was always sick with cold-like symptoms but they got terribly worse after a death in my family and I began a vegetarian lifestyle. After a few months with worsening symptoms I stopped eating whole wheat and soy-based foods. Most annoying symptoms were sneezing constantly and a nose that wouldn't stop running. I went to a muscle-response doctor and he told me that I had an allergy to several grains and soy. I have gone back in forth between being gluten free and eating whatever I wanted. Sometimes immediately or days after I eat something containing gluten I break out (more than usual), sneeze, tighten glands around my neck, brain fog, poor short-term memory, headaches, joint pain, and sometimes I have stomach pain and bloating but rarely. I also suffer from bouts of depression. From my research these symptoms are more associated with a wheat allergy. I read that Celiac disease is hereditary but none of my family have been diagnosed. Many of them have had other autoimmune diseases such as Fibromyalgia and Arthritis.

I was hoping that some of you have had similar symptoms. I have been gluten free for the last week and I feel great. My energy increased, depression disappeared, flat stomach, but the acne still remains (but better). I am trying to get my mother who has both Fibromyalgia and Arthritis to stop eating gluten but I wish I had more information to give her. Any confirmation on my symptoms or information would be greatly appreciated.

I am new to the gluten-free diet and have been on it for 2 months. I had blood test and biopsy that came back negative for celiac but was convinced that eating gluten was a problem for me. After the first week of being gluten free my headaches, stomach pains, lingering cough and constant runny nose and disappeared. I still have some problems with minor indigestion. My biopsy showed gastritis. I am convinced that going gluten free is helping me and is worth a try. Good luck and hope this help in your decision to be gluten free whether your tests are positive or not.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,367
    • Total Posts
      917,517
  • Topics

  • Posts

    • 9 year Old going through testing
      Yes, ATTITUDE, in all caps, and i am in the field of health care...!
    • TTg IAG > 100 but also Hasimoto's
      Thanks for pointing all that out Gemini! I look forward to finally getting off gluten for good to see how much everything changes.  I never thought about the absorption of my synthroid with all my other issues.  I just see my primary dr. for all my thyroid, perhaps I will ask for a referral to an endo dr for further evaluation and treatment.  Thanks for all the information! 
    • Gluten And Vertigo
      Christiana, I just felt to look at the site. I thought I had clicked to get email alerts. But, actually my email has been 'fritzing' sort of.  Thank you for your note. It is important for my diagnosis. I was diagnosed with chondritis of the collar bone a few months before the fall that resulted in the immobile right arm. The osteo surgeon gave me a cortosol shot that helped a lot. That MRI showed a rotator cuff tear nearly 2/3 thru the strip of tissue that connects the muscle tissue to the bone and makes the shoulder 'rotate' in place.  That was almost a year ago now. I have been learning to be very very mindful about how I use that arm, when I reach, carefully, how I rest it and sleep position. Interesting that I did see a search answer that said ' they are saying now that there could be a connection btn rotator cuff tear and inflammed collar bone. My primary doctor also said I could have an inflammed chest wall that resulted in the chondritis. I remembered that word from a child's diagnosis years ago. That was in his knees and was treated by this same osteo surgeon, by casting the legs over summer holiday, which ended in healed x-rays. That was osteo chondritis desicans. He said then, 'if it is horses, we would have to shoot them.'  I tried to get a blood test three weeks ago for the same antibody we were treating that child with thru his then pediatritian, for rheumatoid antibodies/ recurring strep throat. I had gotten a 'sort of' diagnosis, or agreement from that primary care doctor, allowing me to get the recommended antibiotics (one of the few treatments that it is allowed, because of the need to keep the hearing). But, his new nurse did not relay the request properly. I hate doctor office politics. I hope this newbie is not going to mess with this doctor's little family as well. Last month when researching Meniere's one of the things listed about it was that autoimmune disease is connected to it also. I was hurt before the falls and the inflammation and the collar bone chondritis and the rotator cuff tear. I was very very concerned about it setting off some kind of autoimmune inflammation reaction or worse that can happen when tissue cells are being repaired rapidly and it felt like lots of toxins were being cleansed and processed over a period of many months. The only similar feeling I have ever experienced was when I had a 'deep tissue massage' to release and cleanse a cortisol 'hump' I had after a prolonged period of high family stress situation. Right now, my primary (an O.D. , or osteopath) is working with me. There are two ENTs in this area he offered for Meniere's and has given me Physical Therapy at his complex for Balance Therapy. It is great that that therapist has a MIL that is also dealing with Meniere's and getting exercises from a major hospital complex in the city. I was able to give her some celiac's diagnosis information. Sounded like her MIL and her son were likely to be candidates.  I did not know what the definition was of the term 'vestibular' as in vestibular migraine, another connection to Meniere's. I just typed www.bing.com and then typed 'definition of vestibular.' That had information about the connections btn hearing and sitting positions. I will look up costochondritis. Thank you, again. Best wishes, Anne
    • What Are Your Brands & Flavors Of Gluten Free Ice Cream ?
      I don't worry about the same facility, but I check if it is on the same lines. I think it is usually a good idea to find out if things are made on shared lines. And if they are made on the same line as gluten-containing products how good is the cleaning in between? Chocolate is a good example of this. For example, I contacted a company whose chocolate I used to eat before being diagnosed and they outright told me they are not good about cleaning on shared lines and it is not safe for allergies or celiac. I have had this response from other companies as well (especially when it comes to chocolate sadly). I think this is why Godiva is not safe. Its just a good idea to check.
    • TRUSTING OTHERS about GLUTEN! how do you know if someone has used gluten free flour?
      Wow you all have more balls than I do. I've been gluten free since 2007 and I'm still afraid of offending people. It gives me lots of troubles, really. I'm more like rockstarkate I guess...the "people pleasing" aspect.  I love how you all just have the flat out rule I Will Not Eat It Unless I or a Celiac Made it. (Or a trusted family member).  I still simper and grovel and cringe and apologetically turn things away.  People still put dishes in my face and say "This should be gluten free..."  and I have to awkwardly not eat it and then seem rude.  I've done the whole...checking the bottles thing too.  I do try to dart out of things more though now. I volunteered in other countries in recent years and I felt as vulnerable as all heck, having to rely on them to make food, as well as definitely feeling like I offended people who didn't get it at all. I was feeling brave when I signed up for those but after the second time I was like okay, the fear/anxiety/stress about the food is too much. I managed to dodge out of getting sick, and for the most part people humored me...but it was pretty difficult because I don't like offending people, especially other cultures, with them trying to be nice and make food for me...pretty sure I did offend people as well as annoy many others.  Anyway...no OP, you are not alone. For sure I have trust issues eating other people's food. They say they know but I do truly doubt they are as strict as I would be.   A few times I will still brave eating something...like some little mozzarella balls with vinegar...though, I did still look at the labels.  Someone had to give me a persuasive speech and show me all ingredients (just salt and pepper) after making me chicken wings once. I do tell people, basically, NOT to make me stuff. But they still do.  Another time a friend had worked really hard and was having a terrible time and offered me a burger patty when I arrived, assuring me it was gluten free. I knew I hadn't been there to watch whether she used the "bun spatula" on it or not...but I just didn't feel like giving her a fight about it since she was having a rough time and hosts like to feel they are feeding guests, blah blah. So I ate it. And got glutened. And wailed and gnashed my teeth haha. Lesson learned.  I need to stick to my guns more. I just always feel like I'm being too "difficult" as it is. But...sigh.  It is refreshing for me to read these empowered no BS responses though. You all remind me of where I'm coming from, and not that I'm just being some kind of high maintenance, rude, crazy person. You'd think after, what, nine years now, I wouldn't still be bothered by it...
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,513
    • Most Online
      1,763

    Newest Member
    ajrosales
    Joined