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Eye Troubles


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29 replies to this topic

#1 BRS-07

 
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Posted 19 May 2009 - 12:30 PM

So I've been gluten free for about 7 weeks. I've been dealing with my actual eyes being overly dry for about two years, but about 10 weeks ago my eyelids and the inner part of the bottom of my eye have been really really dry and occasionally itch. I have a tendency to rub my eyes alot when I get tired and the more I mess with my eyes the more scaley they look. I wash my face everyday and any liquid touching my eyes, no matter contact solution of water, stings. I talked to my doctor and he said my vitamin A deficiency could cause it, but I have not heard of vitamin A causing skin problems around the eye and he just shrugged it off. I have also just switched my eye makeup to the bare minerals brand to see if makeup was the problem, but nothing has changed. Does anyone else have any eye issues or know what this could possibly be caused from?
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#2 GFinDC

 
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Posted 19 May 2009 - 02:54 PM

I think this could be related to a condition call sjogren's. You might try a search on it and see what turns up on the board. Quite a few posters seems to have it or symptoms like dryness.
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#3 flourgirl

 
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Posted 19 May 2009 - 05:25 PM

Does sound like it could be Sjogrens to me. Look it up and see what you think. There are tests for it, but the down side is that there is no "cure". It is another immune system disorder....they seem to travel in "packs", so to speak. You could use eye drops for relief. I do. I carry them with me everywhere. Hope this helps :)
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#4 BRS-07

 
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Posted 20 May 2009 - 06:25 AM

Wow I've never heard of that before, but I'm definently going to make an appointment to talk to my doctor and get tested. My doctors have shrugged off my dry eyes and my eye doctor has had me on Restasis for over a year already but just said some people live with dry eyes. Thank you both for your help.
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#5 mamaw

 
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Posted 20 May 2009 - 12:25 PM

Here are two other things to look for as well: rosacea ( it can make scaly crusts) & a rare disease Dysthyroid Obitopathy...... this can be accompanied before a thyroid issue or after a thyroid issue or neither......
hth

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#6 Jestgar

 
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Posted 20 May 2009 - 12:31 PM

Wow I've never heard of that before, but I'm definently going to make an appointment to talk to my doctor and get tested. My doctors have shrugged off my dry eyes and my eye doctor has had me on Restasis for over a year already but just said some people live with dry eyes. Thank you both for your help.

There is no treatment for Sjogren's. The symptoms it causes are treated (like, Restasis for dry eyes). How will have a label benefit you?
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#7 AWonderTree

 
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Posted 20 May 2009 - 05:07 PM

Do you have any eye inflammation?

I'm allergic to dust mites, and the only symptom I notice from it is eye inflammation.
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#8 BRS-07

 
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Posted 21 May 2009 - 08:21 AM

Do you have any eye inflammation?

I'm allergic to dust mites, and the only symptom I notice from it is eye inflammation.


I don't really have inflammation. It's just chronic dry eyes and all around my eye seems to be really dry, scaley almost, itchy, and depending on the day it may burn when any type of liquid touches the eye area. I've been paying really close attention to everything that touches my eyes to mark out any types of reactions from products, but it doesn't seem to be an allergic reaction that I can pinpoint at least. Plus the problem around my eye is fairly new, about 2 - 3 months I think.
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#9 BRS-07

 
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Posted 21 May 2009 - 08:27 AM

There is no treatment for Sjogren's. The symptoms it causes are treated (like, Restasis for dry eyes). How will have a label benefit you?


It's not that I'm looking for a label, cause I really don't want anything else to go along with celiac. I'm trying to pinpoint what could possibly be causing the breakout around my eyes. It has been getting worse, so I figure anything I can ask the doctor about to get to the bottom of this problem would be helpful. I'm not going to assume I have anything till I know for sure, especially since that is how little problems sometimes become bigger ones because self diagnosis can be wrong.
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#10 Gemini

 
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Posted 21 May 2009 - 08:30 AM

So I've been gluten free for about 7 weeks. I've been dealing with my actual eyes being overly dry for about two years, but about 10 weeks ago my eyelids and the inner part of the bottom of my eye have been really really dry and occasionally itch. I have a tendency to rub my eyes alot when I get tired and the more I mess with my eyes the more scaley they look. I wash my face everyday and any liquid touching my eyes, no matter contact solution of water, stings. I talked to my doctor and he said my vitamin A deficiency could cause it, but I have not heard of vitamin A causing skin problems around the eye and he just shrugged it off. I have also just switched my eye makeup to the bare minerals brand to see if makeup was the problem, but nothing has changed. Does anyone else have any eye issues or know what this could possibly be caused from?


I have Sjogren's Syndrome and my eyes got pretty bad before I started on the Restasis eye drops. They make a huge difference for many people. Fish oil is also good to take and is most potent when you get it from it's natural food source, but the caps are good too.

The tests you would want to request are the SS-A and SS-B antibody tests. However, some people, even with full blown Sjogren's, may test negative on the blood work. I am one of those people who test positive, like clockwork, on all my antibody tests so answers are easy for me. Not always welcome, but easy!

Use warm compresses on your eyes at night so ease the symptoms and also use OTC eye drops to lubricate during the day. If you have seasonal allergies or are allergic to mold or dust mites, this will aggravate the condition. I have bad allergies but the only symptoms I get are with my eyes. Not too much congestion of the sinuses or chest but my eyes pay the full price during allergy season. It can be controlled once you learn your triggers.

I would advise seeing an ophthalmologist for this as Sjogren's can really mess your eyes up. If they become too dry, it can affect your vision. I go yearly and am glad I do.....one of the few doctors I've had luck with. She also does not push other dry eye treatments on people if she feels they will not benefit or the side effects might be really bothersome. It's important to take good care of your eyes.

Don't worry about the make-up. I wear eye make-up and it has absolutely no effect one way or another on my Sjogren's. What does is how I treat the problem. You may have outbreaks of scaliness or redness and irritation but overall, it can brought under control so you'll be more comfortable.
Good luck to you!
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#11 BRS-07

 
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Posted 21 May 2009 - 09:56 AM

I have Sjogren's Syndrome and my eyes got pretty bad before I started on the Restasis eye drops. They make a huge difference for many people. Fish oil is also good to take and is most potent when you get it from it's natural food source, but the caps are good too.

The tests you would want to request are the SS-A and SS-B antibody tests. However, some people, even with full blown Sjogren's, may test negative on the blood work. I am one of those people who test positive, like clockwork, on all my antibody tests so answers are easy for me. Not always welcome, but easy!

Use warm compresses on your eyes at night so ease the symptoms and also use OTC eye drops to lubricate during the day. If you have seasonal allergies or are allergic to mold or dust mites, this will aggravate the condition. I have bad allergies but the only symptoms I get are with my eyes. Not too much congestion of the sinuses or chest but my eyes pay the full price during allergy season. It can be controlled once you learn your triggers.

I would advise seeing an ophthalmologist for this as Sjogren's can really mess your eyes up. If they become too dry, it can affect your vision. I go yearly and am glad I do.....one of the few doctors I've had luck with. She also does not push other dry eye treatments on people if she feels they will not benefit or the side effects might be really bothersome. It's important to take good care of your eyes.

Don't worry about the make-up. I wear eye make-up and it has absolutely no effect one way or another on my Sjogren's. What does is how I treat the problem. You may have outbreaks of scaliness or redness and irritation but overall, it can brought under control so you'll be more comfortable.
Good luck to you!


Thanks for the information. Can eye troubles be the only symptom for Sjogren's, or does the dry mouth and swollen glands accompany the dry eyes? I'm asking cause my eyes seem to be the only thing bothering me, could I still have Sjogren's or would that mark it out?
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#12 Gemini

 
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Posted 21 May 2009 - 10:43 AM

Thanks for the information. Can eye troubles be the only symptom for Sjogren's, or does the dry mouth and swollen glands accompany the dry eyes? I'm asking cause my eyes seem to be the only thing bothering me, could I still have Sjogren's or would that mark it out?


Typically, dry mouth and swollen lymph nodes are coupled with the dry eyes in Sjogren's but I never had the swollen lymph glands. I have severe dry mouth and eyes but none of the other. I personally think it's because I take baths instead of showers and use a wash cloth to massage my neck area, like a person would in Shiat'zu massage. This is a common technique used in Chinese medicine to drain the lymph system and keep it moving. My niece, on the other hand, who also has Sjogren's as badly as I do, blows up like the Hindenburg around her face area but she is not being good about her health. Very bad habits and a refusal to believe she has celiac disease so her symptoms are out of control. Drinking a lot of water and good fluids helps very much also.

I think that there are people who don't have ALL of the typical symptoms but maybe a few. Same as celiac disease and I just think it's the quirky nature of autoimmune disease. You may want to have the blood work done anyway to see what comes up. Just remember you could have Sjogren's, even though the blood work may be negative. I also noticed that eye doctor's seem to know anyway if you have it or not. When an eye specialist looks into your eyes and says.... :o "Your eyes are SO VERY DRY!", it did not inspire a warm, fuzzy feeling in me! <_<
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#13 cyberprof

 
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Posted 21 May 2009 - 11:21 AM

I have a lot of the Sjogrens symptoms but my eyes and mouth have gotten so much better recently.

Try flax seed oil (capsules or liquid). My eye doctor told me to take the dose listed on the bottle for six weeks, and that'd I'd see a difference. Fish oil, he said, wasn't as useful for eyes. He also said six weeks on and then four-six weeks off, so I do that and when I'm not taking the flax oil I take fish oil.

I tried it and it worked.

I recently stopped using Zyrtec and generic Zyrtec for my allergies and went back to the Claritin I'd used for years. That has made so much of a difference. Of course, I knew that antihistamines could cause dry eyes and mouth but since I've been on them for 30 years, I didn't realize that changing from Claritin to Zyrtec could make a difference but it did. The long-winded point I'm trying to make is that you might ask your doc if other meds you're taking could be the problem. Or maybe it is allergies that is doing it. You could be allergic to the moisturizer that you use, for example.

Best of luck.

~Laura
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#14 Gemini

 
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Posted 21 May 2009 - 01:27 PM

I have a lot of the Sjogrens symptoms but my eyes and mouth have gotten so much better recently.

Try flax seed oil (capsules or liquid). My eye doctor told me to take the dose listed on the bottle for six weeks, and that'd I'd see a difference. Fish oil, he said, wasn't as useful for eyes. He also said six weeks on and then four-six weeks off, so I do that and when I'm not taking the flax oil I take fish oil.

I tried it and it worked.


You know, that's interesting you should say that about the flax seed oil. Another eye doctor I used to go to said the same thing regarding flax seed vs. fish oil and after doing a trial run, I didn't notice any difference whatsoever between the fish oil and the flax seed oil. Both seemed to help as much as the other. I know they are metabolized differently but maybe not the case with me.

The best thing I have done is use Restasis. If you have true Sjogren's, it will help out tremendously.
It's the first medication that actually helps with the more profound symptoms. I hate using meds but if it's a choice between that and possibly losing my eyesight due to complications, I will take the meds.

Staying on a strict gluten-free diet has been an amazing help also. It really does make a difference!
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#15 Yellow Rose

 
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Posted 30 May 2009 - 08:06 PM

Could be Chronic Blepharitis. It is a mild eye irritation. Characterized by slight redness, itching and burning, and small, white crusts that form at the base of the lashes. It is caused by excessive oily secretions on the eyelid margins and may be worsened by bacteria around the roots of the eyelashes. It is not contagious or painful.

To control clean the eyelid margins in the morning and at bedtime with moist washcloth or a Qtip moistened with warm tap water diluted with baby shampoo. Then apply a very warm moist washcloth to the eyelid for 5 minutes and then massage the eyelids. After several days of treatment the eyelids may become more red and swollen this will gradually diminish. Symptoms will be helped by using Preservative Free Artificial tears as needed
After the second week of treatment there should be marked improvement. Continue the treatment for 3-4 weeks and keep using the hot soaks as a routine part of face washing. Treatment requires persistence and must be done over a period of months or more. If symptoms return resume using the scrubs and compresses again until gone This info comes from the San Antonio Eye Center.
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27 years of misdiognoses
seziures summer of 1979 lasted 10 years had maybe a dozen in that time Dr.s never could find what was causing them blamed it on lack of sleep and maybe nutrasweet
rheumatoid arthritis May 1980
wrist joint replacement Jan 1984
fibromyalgia May 1980
insomnia since the 80's
diarrhea 1995-2000 blamed on arthritis meds
Crohn's 1998 after two operations to fix fissures caused by the diarrhea
Other symptons over the last 27 years that have been treated for symptoms not causes:
depression, anemia, constipation, tooth discoloration, tremors in hands, tingling and numbness in feet and hands, fatigue, high blood pressure due to arthritus meds, flushing in face, severe muscle pain and thinking I was going crazy thanks to Dr.'s attitudes.

After diognoses my mother tells me I have an aunt and a cousin with Celiac. Mother tested negative but thinks she is intolerant to wheat and is changing her diet.
Suspect all three of my children have it as well but still trying to convince them to go get tested.

In answer to my prayer, "Lord Please Heal My Broken Body". May 2007 Celiac antibody test positive
Matthew 7: 8 Ask and ye shall receive, Seek and ye shall find, Knock and it shall be opened unto you.




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