Iugr - Growth Restriction - Advice On Premie - Celiac.com Celiac Disease & Gluten-Free Diet Forum

Iugr - Growth Restriction - Advice On Premie Rate Topic:

#1 MichelleinMA

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Posted 24 May 2009 - 01:21 PM

I had a normal ultrasound and amnio at 16 weeks. At a follow-up at 21 weeks, the baby's situation changed to have low amniotic fluid and slowed growth. 2 weeks later the baby has entered the official IUGR range of being below the 10th percentile of growth and the fluid has decreased to a 3.

The doctor is saying we should begin to consider delivering when the baby reaches about 500 grams (1 pound). Yikes!!!!

Does anyone have experience with IUGR this early in pregnancy? Anyone have advice on what worked for them? Do you have experience with an extremely low birth weight baby in the NICU? Any advice?

Lastly, I have two children almost 8 and 5 1/2. If you have experience, when and what to you share with older children?

Thanks for your advice and prayers.

#2 cyberprof

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Posted 24 May 2009 - 07:27 PM

MichelleinMA, on May 24 2009, 04:21 PM, said:

No advice but I'll send lots of prayers!

My sister is a NICU RN - she's worked in a Level III NICU (which is where you'll be if you need it) for 25 years since graduating from college/nursing school. Those nurses are so dedicated and so caring. You will find that they give good advice and help support the parents while they care for the babies. My best to you. Hugs and kisses for your little one.

Diagnosed by biopsy 2/12/07. Negative blood tests. Gluten-free (except for accidents) since 2/15/07. DQ2.5 (HLA DQA1*05:DQB1*0201)

Son, age 18, previously delayed growth 3rd percentile weight, 25th percentile height (5'3" at age 15). Negative blood work. Endoscopy declined. Enterolab positive 3/12/08. Gene results: HLA-DQB1 Molecular analysis, Allele 1 0201 HLA-DQB1 Molecular analysis, Allele 2 0503 Serologic equivalent: HLA-DQ 2,1(Subtype 2,5) Went gluten-free, casein-free 3/15/08. Now 6'2" (Over six feet!) and doing great.

"Great difficulties may be surmounted by patience and perseverance." Abigail Adams (1744-1818) 2nd First Lady of the United States

#3 Fiddle-Faddle

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Posted 25 May 2009 - 12:39 PM

My first baby was IUGR, but not until the second half of the pregnancy.

I'm assuming you are on bed rest?

If you are not now under the care of a high-risk specialist, I would look into switching ASAP.

Best of luck, and lots of prayers on their way to you!

#4 foodiegurl

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Posted 25 May 2009 - 12:54 PM

My daughter had IUGR (and I had severe pre-eclampsia and HELLP), but it was not caught until she was born. She was born at 38 weeks, at only 4 1/2 pounds, but other than being small, she was perfectly healthy! And by 6 mos, she was the same size as all the other 6 mos old babies

Anne in Chicago
Pescatarian since 2005
Diagnosed by blood test February 2009, biopsy June 2009, at age 36
Gluten-free since 3.16.2009

#5 wannaBAmama

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Posted 29 May 2009 - 11:15 AM

I responded to a similar post last week on sillyyaks - I'm not sure if you are the same person. I've been involved with reproductive immunologists who have been monitoring my pregnancy and treating my immune system flares (high natural killer cells) with regular IVIG infusions. I read a thread on the public support board which talks about 2nd trimester IUGR and low amniotic fluid sometimes being caused by an immune flare. Here is the info I posted there:

thread about IUGR and low fluid:
http://health.groups.yahoo.com/group/immun...t/message/88525

Alan Beer Center (note: Dr Beer passed away but other doctors have taken
it over- and there are other RI's around the world who follow their
treatments)
http://repro-med.net

good luck to you!