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How Long Until Symptoms Disappear?


Desy

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Desy Rookie

I'm sure it varies from individual to individual, but I'm wondering how long it takes for your symptoms to disappear once you totally remove gluten from your diet.

I'm especially interested in how long it takes for one to regain one's energy, how long it takes for the excess weight to come off & also how long it takes for the acne to fade, but I'm happy to read about all other symptoms as well.

Thanks, everyone.

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shirleyujest Contributor

I'm early on, gluten-free about 3 weeks, but the past week or so my energy went up markedly. I've started walking every other day and having very productive days. Today I relapsed, maybe because of g exposure (see toaster post :P ) had serious brain fog, hit a post pulling out of a parking spot. :o

Stomach pain continues, am swollen through middle. I have not lost any weight so far, but I've been "allowing" myself sweets to help me emotionally a little, to not feel deprived. My urge for sweets is fading a bit on its own. My big thing is to keep up the exercise to build stamina and a little more muscle tone.

Everyone's story will be a little different, although reading of people's recovery it sounds like the digestive issues are not the first to resolve.

Not sure about acne.

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ang1e0251 Contributor

I saw some symptoms clear up in 24 hours (formed BM), some in 72 hours (color in my cheeks). Then other things took weeks like DH to clear up and some months like some of the neurological stuff. But I was not as careful as I should have been. I thought I was, but I was getting CC'd a few times a month. I still felt pretty terrific considering. Although now, taking full precautions, I've never felt better.

Bloating for me came and went with my carelessness. I started a low carb diet a couple of months ago to finally deal with my blood pressure and weight. When I cut out all grains for the diet, I realized I had reached a new high in well being. I'm feeling better than ever with no bloating. It's great. I've increased my dietary fats and am building muscle without increasing exercise.

The other turning point came when I started supplementing the vitamins suggested here and by my own research. B12 made a huge difference in the foggy, sleep feeling I fought every day. Magnesium helps my sleep and tight muscles, even BM's.

I guess just dropping the gluten helped my complexion too. About 2 months in gluten-free, I had to cancel my orders of Proactive. I'd used it for many years. To my surprise, with just homemade skin products, I wasn't getting breakouts. That had never happened! It was great.

So hang in there. It can take time, it can take refinement of your diet, and it for sure takes patience. Listen to what your body tells you and you'll be fine in the end.

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    • Anmol
      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
    • trents
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    • knitty kitty
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    • trents
      Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The onset of celiac disease can happen at any stage of life and the size of the score is not necessarily an indicator of the progress of the disease. It is likely that you you experienced onset well before you became aware of symptoms. It often takes 10 years or more to get a diagnosis of celiac disease after the first appearance of symptoms. In my case, the first indicator was mildly elevated liver enzymes that resulted in a rejection of my blood donation by the Red Cross at age 37. There was no GI discomfort at that point, at least none that I noticed. Over time, other lab values began to get out of norm, including decreased iron levels. My PCP was at a complete loss to explain any of this. I finally scheduled an appointment with a GI doc because the liver enzymes concerned me and he tested me right away for celiac disease. I was positive and within three months of gluten free eating my liver enzymes were back to normal. That took 13 years since the rejection of my blood donation by the Red Cross. And my story is typical. Toward the end of that period I had developed some occasional diarrhea and oily stool but no major GI distress. Many celiacs do not have classic GI symptoms and are "silent" celiacs. There are around 200 symptoms that have been associated with celiac disease and many or most of them do not involve conscious GI distress. Via an autoimmune process, gluten ingestion triggers inflammation in the villous lining of the small bowel which damages it over time and inhibits the ability of this organ to absorb the vitamins and minerals in the food we ingest. So, that explains why those with celiac disease often suffer iron deficiency anemia, osteoporosis and a host of other vitamin and mineral deficiency related medical issues. The villous lining of the small bowel is where essentially all of our nutrition is absorbed. So, yes, anemia is one of the classic symptoms of celiac disease. One very important thing you need to be aware of is that your PCP may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining to confirm the results of the blood antibody testing. So, you must not begin gluten free eating until that is done or at least you know they are going to diagnose you with celiac disease without it. If you start gluten free eating now there will be healing in the villous lining that will begin to take place which may compromise the results of the biopsy.
    • Anmol
      Hello all- my wife was recently diagnosed with Celiac below are her blood results. We are still absorbing this.  I wanted to seek clarity on few things:  1. Her symptoms aren't extreme. She was asked to go on gluten free diet a couple years ago but she did not completely cut off gluten. Partly because she wasn't seeing extreme symptoms. Only bloating and mild diarrhea after a meal full of gluten.  Does this mean that she is asymptomatic but enormous harm is done with every gram of gluten.? in other words is amount gluten directly correlated with harm on the intestines? or few mg of gluten can be really harmful to the villi  2. Why is she asymptomatic?  3. Is Gliadin X safe to take and effective for Cross -contamination or while going out to eat?  4. Since she is asymptomatic, can we sometimes indulge in a gluten diet? ----------------------------------------------------------------------------------------------- Deamidated Gliadin, IgG - 64 (0-19) units tTG IgA -  >100 (0-3) U/ml tTG IgG - 4   (0-5) Why is this in normal range? Endomysial Antibody - Positive  Immunoglobulin A - 352 (87-352) ------------------------------------------------------------------------------------------------ Thanks for help in advance, really appreciate! 
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