Posted 24 February 2004 - 03:57 AM
Would you please share some of the not so obvious things you have found to contain gluten ?
I don't know what we are going to do !
One of my boys has major challenges already nutritionally, he needs to eat MUCH more and more efficient foods than the average kid already because most of his small intestines are gone.
My other son is having a really rough night tonight, that's why I am on my computer very early in the morning (I have been up all night). He is having terrible diarrhea and has vomited about 10 x tonight. My kids went to a party Sun afternoon, and this started Mon. late afternoon. My husband took them, and is not as conscious as I am about foods.
Posted 24 February 2004 - 08:50 AM
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 24 February 2004 - 09:08 AM
I always make mini cupcakes to bring--and a beverage. That way we always have a yummy treat to eat! --and no one ever says no to more cupcakes!
How about glue, Gooze, slime, and playdough. They don't eat them, but if they don't wash their hands afterward, they are eating them!
"Would you please share some of the not so obvious things you have found to contain gluten"
We've had trouble with Purell hand sanitizer before--even though the company says it is gluten-free!
Cross-contamination with dropped wheat crumbs, or the same spoon used for many things, or anything made in a non-gluten-free kitchen....
Have you read the footnotes at the bottom of the Forbidden Foods list? It shows places where hidden glutens might be found (carmel coloring, flavoring, ect...)
Hope your boys feel better soon!
Posted 27 February 2004 - 07:23 AM
What kind of problems have you had ??
I use that stuff constantly !!! I am a fanatic about my kids keeping their hands clean, because of chronic health problems.
thank you for your responses
I have dealt with a LOT of medical problems with my triplets, especially one of my sons (32 surgeries, chronic horrible pain and many consequences from having most of his intestines removed, SID, ADHD, fine and gross motor problems, 12 different specialists ....)and chronic health issues myself, but for some reason, this one is kind of 'putting me over the edge'. I guess I am still in a little bit of 'denial' as far as the huge amount of changes/adjustments needed.
This is probably the key to almost all of the issues (except you can't get back your intestines ) so I need to start seeing it that way I guess.
Posted 27 February 2004 - 07:35 AM
I'm not telling anybody to not check, but I think the warning about gluten in meats is overblown. If somebody can name some brands of fresh turkey, chicken or pork that do indeed have gluten please do so.
Posted 01 March 2004 - 11:48 PM
Have you eliminated all foods containing milk and dairy (including butter, milk chocolate, casein, whey), egg whites, and yeast? Maltodextrin also can be a problem. These are all problems for those of us in our family who have Celiac. Best wishes. Welda
Posted 02 March 2004 - 07:24 AM
Posted 02 March 2004 - 08:47 AM
About the Purell, the second time I noticed it to be a problem for me, I was sitting at the computer first thing in the morning, put some on my hands (it was cold season) and, while thinking, put my fingers in my mouth... 20 minutes later I had my horrible "World's Worst 9-hour Stomach Ache"(my gluten reaction)....
I hadn't eaten anything--or anything! So....I believe it bothers me!
The first time, we were at the county fair and I took some with us so that I wouldn't get sick... ! I thought the stomach ache was from the cotton candy I couldn't help but eat and just discounted it!
Maybe I'm just sensitive to something else in it, but so far only gluten gives me the same reaction!
Anyone else have trouble when they eat Purell?
gluten-free since 1-'98
Posted 02 March 2004 - 09:55 AM
I did know about meats and most of the sources of hidden gluten (I think) already, but hadn't thought about playdough. I always make my kids wash their hands after they create their masterpieces anyways , but it is good to know that they need to be more aware of it too.
Posted 02 March 2004 - 12:17 PM
Right now this is just circumstancial evidence, but I recently ate a very simple meal of Bell & Evans chicken and vegetables and developed a migraine immediately afterward. This is one of my possible reactions to gluten, and it was also the first time I had ever eaten this brand of chicken. I also remember someone posting here on the board that "minimally processed" poultry is often soaked in a solution that contains gluten, so I won't trust Eberly's poultry until I have gotten a response from them regarding gluten.
I believe it was on the old board that someone posted the warning that Wal-Mart's store brand of chicken is NOT gluten-free.
gluten-free since November 1, 2003
Posted 03 March 2004 - 07:12 AM
I've never checked on the Walmart brand but I have checked on Perdue, Tyson, Kroger, Food Lion, Wampler, Bell & Evans, and at least two others I can't think of now and none have had gluten. Perdue has a very long list of gluten-free items, including all of their plain chicken. Call 1-800-473-7383 and they'll send it to you. Not only is Tyson plain chicken gluten-free, but so is their precooked chicken (at least as of a few weeks ago).
I've never found a turkey with gluten and I've checked nearly every major brand here in the East. I've never found plain, unmarinated beef with gluten. And I'm pretty certain I've never found pork -- except a glazed or honey ham -- with gluten. Sterling Silver, a large pork producer, puts "natural flavor" in their pork but the natural flavor is ..... pork. No gluten.
I still call manufacturers but my experience tells me that meat is one of the safest things -- at least as far as gluten. Of course you might not want the enhancers and stuff they put in there for other reasons.
Posted 03 March 2004 - 07:33 AM
i'm a member of coeliacs uk and every year they send me a food and drink directory listing brand named foods and supermarket branded foods that are safe and do not contain gluten. each month we get up dates and ammendments to the directory.
isn't there a US version of this? it makes life alot easier. i do still contact manufactorures but as the directory is so detailed and contains so many foods i hardy need to.
search the internet for a local group also as they can offer lots of good advise and its nice to meet others with a similar problem.
hope this helps, nic.
Posted 08 March 2004 - 04:22 PM
Posted 09 March 2004 - 11:54 AM
Deli meat sliced at the counter is indeed a potential problem, but there are many, many packaged meats that are gluten-free. I think all of Hillshire Farm are gluten-free but if you call them they'll tell you. All Carl Buddig meats are gluten-free. Virtually all Oscar Meyer ones (maybe all) are and you don't even have to call them. Because they are a Kraft company, all you have to do is read the ingredients. Virtually all Sara Lee ones are gluten-free but there are a few to avoid so you'd have to call the company. And all but either two or three Boar's Head meats are gluten-free. There are many, many, many more gluten-free meats than ones with gluten.
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