Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


Photo
- - - - -

Migraines


  • Please log in to reply

Poll: If you have migraines, have they improved since going GF? (25 member(s) have cast votes)

If you have migraines, have they improved since going GF?

  1. Yes, I have fewer/they are less intense (9 votes [36.00%])

    Percentage of vote: 36.00%

  2. Yes, they have gone away! (6 votes [24.00%])

    Percentage of vote: 24.00%

  3. No, same as always... (10 votes [40.00%])

    Percentage of vote: 40.00%

Vote Guests cannot vote

32 replies to this topic

#16 darlindeb25

 
darlindeb25

    Advanced Community Member

  • Banned
  • PipPipPipPipPipPip
  • 2,324 posts
 

Posted 06 April 2005 - 01:44 PM

well--i didnt take the poll cause i have had migraines before, but probably only 5 or 6 in my lifetime--my mom has migraines and some of my kids do--one son, nick had to take inderal for them as a young child--inderal is a beta blocker---and celiac3270--keep your chin up--most boys who have migraines do out grow them--my son has headaches, but very rarely migraines anymore--i have headaches on a daily basis--i only remember one month without headaches in my life and it was january of this year--the 1st month i was here on the island i didnt have any headaches or they just couldnt touch me with how happy i was--but i am back to having them daily again--i am taking 1000 mcg of B12 daily now hoping to help my neuropathy and headaches--we will see---deb
  • 0
Deb
Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

Celiac.com Sponsor:

#17 skbird

 
skbird

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 973 posts
 

Posted 06 April 2005 - 02:12 PM

Wow Deb - back to daily after a month. I'll bet that was a good month...

I had them almost daily back 6+ years ago. I don't know what I'd do now. I did have one last fall that lasted 13 days and I even went and got a shot of pain meds at one point trying to break the darn thing. But I had been doing a cleansing protocol and had just kicked up too much stuff. It was a month after that I started my gluten free diet. I don't know what I'd do now if they came back daily.

I wonder if there is some other food or something that is getting to you? I was so disappointed when I started getting them again after not having really any for a while there. I think if they do come back for me I will start looking at my food first, not last as I keep doing now.

I can't believe that I haven't even had a hormone migraine.

Thanks for voting, those who have. This is an interesting poll so far.

Stephanie
  • 0
Diagnosed by food challenge, 10/04
Gluten-free since 10/04
Gluten-sensitive genes: HLA-DQ 1,3 (Subtype 6,9)
Interstitial Cystitis, 7/07
Fibromyalgia, 6/11

#18 Guest_ajlauer_*

 
Guest_ajlauer_*
  • Guests
 

Posted 06 April 2005 - 11:20 PM

My doctor (and past doctors) have told me I don't even have migraines, I just have kids! What is everyone's definition of a migraine? I get headaches all the time (probably 75% of my awake-time). Quite often, the pain is so bad I can hardly move. I can't focus clearly... sometimes there's like little stars floating around, or fireflies or something. Not sure how to describe it. This has been an interesting thread for me. I was just about to sign off because of the headache I have right now. Good timing!
  • 0

#19 celiac3270

 
celiac3270

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,263 posts
 

Posted 07 April 2005 - 03:39 AM

I get headaches, too, and make the distinction as a migraine having:
- The splitting pain that makes your head feel like it's going to explode.
- Sensitivity to light/sound.
  • 0

#20 Guest_gfinnebraska_*

 
Guest_gfinnebraska_*
  • Guests
 

Posted 07 April 2005 - 04:51 AM

Stephanie - I don't drink wine or any other alcoholic beverage, so maybe that is why my migraines stopped! Maybe the lettuce was the only culprit. :) I will dig around some more ... would be interesting.
  • 0

#21 skbird

 
skbird

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 973 posts
 

Posted 07 April 2005 - 07:33 AM

Kimberly -

I was thinking last night that dried fruit also contains sulfites (unless you get them sulfite free - usually pretty brown looking and not as appetizing to the eye, but tasty all the same). I know there are more but I just can't think of them.

Would sure be cool if this cleared up the mystery for you!

Stephanie
  • 0
Diagnosed by food challenge, 10/04
Gluten-free since 10/04
Gluten-sensitive genes: HLA-DQ 1,3 (Subtype 6,9)
Interstitial Cystitis, 7/07
Fibromyalgia, 6/11

#22 skbird

 
skbird

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 973 posts
 

Posted 07 April 2005 - 07:37 AM

ajlauer -

I'd say those are migraines. I don't have so much of the light sensitivity as celiac3270 mentioned, only with the *really* bad ones (the once a year kind). But if motion makes it worse, that is usually a migraine. And the floaty things you describe - sounds like visuals that are common with migraines (I don't have those but have heard others who do). You might want to ask your doctor about Imitrex or Frova or one of the triptan drugs - he could give you a sample and you could take it next migraine you get and if it works for you, there's your answer. That's how I finally got confirmed diagnosis. If it's not a migraine it won't work as it's not a pain reliever but a med that regulates how your blood vessels contract/expand (which is what happens during a migraine). If that stops the pain then you know what the problem is. THEN you just have to determine, if you can, what sets you off. Another story completely... :)

Stephanie
  • 0
Diagnosed by food challenge, 10/04
Gluten-free since 10/04
Gluten-sensitive genes: HLA-DQ 1,3 (Subtype 6,9)
Interstitial Cystitis, 7/07
Fibromyalgia, 6/11

#23 Guest_ajlauer_*

 
Guest_ajlauer_*
  • Guests
 

Posted 07 April 2005 - 09:52 AM

Thanks stephanie! You brought up some excellent points!! I'll have to hurry up and find a new doctor.
  • 0

#24 skbird

 
skbird

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 973 posts
 

Posted 07 April 2005 - 10:35 AM

Ever get the feeling we all need a new doctor??? :)

I was pretty mad when I took that Frova and it worked. Even when the doctor gave it to me he warned it probably wouldn't work because he was sure I don't have migraines. When I think of all the doctors, time, pain, etc I'd had in my life (been getting "headaches" since I was small) it really pisses me off. But I have gotten used to being disappointed in doctors.

Wish you luck in this endeavor!!!

Stephanie
  • 0
Diagnosed by food challenge, 10/04
Gluten-free since 10/04
Gluten-sensitive genes: HLA-DQ 1,3 (Subtype 6,9)
Interstitial Cystitis, 7/07
Fibromyalgia, 6/11

#25 jcgirl

 
jcgirl

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 87 posts
 

Posted 05 May 2005 - 05:41 AM

I have had migraines for 30 years. gluten-free sense January 20, 2005 and have had only one. I have noticed that when accidentally ingesting gluten I begin to get a migraine but have been able to ward them off with tylenol. I have not had to have my imetrix prescription refilled sense going gluten-free.
  • 0

#26 mytummyhurts

 
mytummyhurts

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 407 posts
 

Posted 05 May 2005 - 07:15 AM

I used to get migraines a couple times a week. But since going gluten free I've only had a couple. I'm very excited that I don't get them very often anymore because they interrupt your life considerably.
  • 0

#27 skbird

 
skbird

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 973 posts
 

Posted 05 May 2005 - 08:43 AM

Abby and Jcgirl - isn't that awesome? I can't believe how much better my life is without migraines. Or at least I can't believe I'm not having them all the time. I remember crying when I was 13 and Advil first came out as an over the counter med- first one that fixed my headaches. Isn't that a messed up thing to remember - being so happy you cry over a pain med at 13???

At least I know now...

Stephanie
  • 0
Diagnosed by food challenge, 10/04
Gluten-free since 10/04
Gluten-sensitive genes: HLA-DQ 1,3 (Subtype 6,9)
Interstitial Cystitis, 7/07
Fibromyalgia, 6/11

#28 mytummyhurts

 
mytummyhurts

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 407 posts
 

Posted 05 May 2005 - 03:25 PM

It is awesome! :lol:
  • 0

#29 Guest_barbara3675_*

 
Guest_barbara3675_*
  • Guests
 

Posted 05 May 2005 - 07:46 PM

Just checked this thread, hadn't for awhile. Notice that there was talk of Inderal. I took that for some time and it gave me asthma so bad that my doctor (the same one that was prescribing the Inderal) had me on just tons of medications for it. A specialist caught the problem and got me off all of the meds including the Inderal. I am now on Verapilmil to keep my BP low and Topomax to contol the migraines. I do have to say that I get a VERY occasional migraine which is knocked out by Frova within a half hour. Watch in Inderal, it can be bad.

Barbara
  • 0

#30 drewsant

 
drewsant

    Community Member

  • Advanced Members
  • PipPipPip
  • 48 posts
 

Posted 09 July 2005 - 04:04 PM

I'm new to Celiac Disease and have been lurking for about 3 weeks now. Strange thing is, I've had at least 3 migranes with the "flashing lights" before the headaches , since I started my gluten-free diet. I was trying to find out if maybe going on the gluten-free diet triggered them. I've never had them before. I've probably had about 12 headaches my whole life, and they are usually due to the flu, or kidney infections. Sounds like most of you had them before, but going gluten-free made them better, not worse.
  • 0




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: