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Trials For Celiac Vaccine Have Begun


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30 replies to this topic

#1 amber

 
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Posted 03 June 2009 - 03:22 PM

If you click on the link below you will go to a very interesting story from Australia which describes the celiac vaccine which is now being trialled. If you click on video you will be able to see the story which was screened during the news here.




http://www.abc.net.a.../13/2541789.htm
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#2 MySuicidalTurtle

 
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Posted 03 June 2009 - 06:28 PM

Eh, I'd rather not eat gluten again. Too many horrible memories.
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#3 Takala

 
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Posted 04 June 2009 - 12:25 AM

I have multiple different side effects and other problems from a lifetime of being misdiagnosed. So I have no official sanction. If I were to be somehow officially diagnosed, now, in my country I would be uninsurable. I can't get officially diagnosed because some insurance conglomerate somewhere has set up criteria many people with the disease will never meet. Now somebody wants to eventually sell me a vaccine so I could imitate everybody else's really bad eating habits. After food manufacturers finally start noticing we have needs. Not that it could change my simple carbohydrate intolerant metabolism at this point.

Typical.

Pardon my total lack of enthusiasm.
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#4 mushroom

 
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Posted 04 June 2009 - 01:18 AM

Aaah, Takala, you are sounding very jaded. At least they are recognizing there is a problem. Even if you don't agree with their solution :rolleyes: When people are as far gone as we are their solutions are worthless, but for others coming along, who knows?? Don't deny others the chance of eating junk food :ph34r: The world is going to have to devise a way of killing people off after all.
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#5 mommida

 
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Posted 04 June 2009 - 04:56 AM

I am wondering about those of us who have developed other sensitivities. If this vaccine contains eggs for example, how many Celiacs still won't be able to get the vaccine?
Can you imagine the vaccine adds telling how bad and life threatening Celiac and gluten sensitivity is to scare the general population into getting the vaccine? I'm sure there will not be a genetic pre-screening before getting the vaccine either.
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#6 leadmeastray88

 
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Posted 04 June 2009 - 05:34 AM

I'm sure there will not be a genetic pre-screening before getting the vaccine either.


I'm sure you're right. Too much money :rolleyes:
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~Kim~ Gluten-Free since July 2008
9 inguinal hernia surgeries in 3 years (2004-2007)
Symptoms Pre-Dx: constant abdominal cramps, acid reflux, nausea, vitamin B12 deficiency, chronic constipation, fatigue, hyperhidrosis, migraines
July 7/08 - tTG 1 (+>4) - Diagnosed with IBS, given Rx, sent home to "relax"
Gastro refused biopsy as I had "already been though enough"
Enterolab Results (Aug 2008) - Fecal Antigliadin IgA 11 (Normal Range <10 Units)
HLA-DQB1 Molecular Analysis, Allele 1 0202
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#7 Lisa

 
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Posted 04 June 2009 - 05:35 AM

"Australian scientists have developed a vaccine which could mean patients could eat all kinds of foods without any side effects."

This first statement in the quoted article is solely based on the presumptive success of the trials.

Desensitising the body to an allergy is one thing. Attempting to do the same with an autoimmune response may be another. I think you have to be very careful when tampering with the immune system.

I wish the Australian study every success and I'll pray for the volunteers. But I won't hold my breath.
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Lisa

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#8 GottaSki

 
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Posted 04 June 2009 - 05:35 AM

Hmmm...after 43 years of damaging my body by eating the wrong food for I find out all I have to do is not eat Gluten to have some healing and be healthier for the rest of my life. The last thing I want is to eat gluten under any circumstances and with my funky chemistry the vaccine will probably make my body allergic to vegies!

That being said...I do hope the vaccine is successful and not harmful...it may be nice some day to know that an accidental glutening won't harm us. Especially for kids and teens whom may not have much damage from Celiac Disease.
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-Lisa

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3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

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"LTES" a Gem :)


#9 ravenwoodglass

 
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Posted 04 June 2009 - 07:12 AM

"Australian scientists have developed a vaccine which could mean patients could eat all kinds of foods without any side effects."

This first statement in the quoted article is solely based on the presumptive success of the trials.

Desensitising the body to an allergy is one thing. Attempting to do the same with an autoimmune response may be another. I think you have to be very careful when tampering with the immune system.

I wish the Australian study every success and I'll pray for the volunteers. But I won't hold my breath.


My thoughts exactly.
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#10 mommida

 
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Posted 04 June 2009 - 09:12 AM

It doesn't say anything about the individuals in the trials even being genetically predisposed to Celiac.
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#11 Tim-n-VA

 
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Posted 04 June 2009 - 09:36 AM

"Australian scientists have developed a vaccine which could mean patients could eat all kinds of foods without any side effects."

This first statement in the quoted article is solely based on the presumptive success of the trials.


Isn't that why the sentence says "could" instead of "will"? Or am I missing your point?
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#12 Lisa

 
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Posted 04 June 2009 - 09:54 AM

Isn't that why the sentence says "could" instead of "will"? Or am I missing your point?


Yes, in so much as it "could" do damage as well and that has yet to be determined.


http://celiac-diseas...celiac-vaccine/

"According to The Australian, it looks like this April 40 volunteers will be tested with the worlds first Celiac Disease vaccine. This trial will last a total of 11 months and attempt to determine if the vaccine does any harm."


As I already said, I wish this trial every success.
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Lisa

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"Not all who wander are lost" - JRR Tolkien

#13 Gemini

 
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Posted 04 June 2009 - 10:00 AM

"Australian scientists have developed a vaccine which could mean patients could eat all kinds of foods without any side effects."

This first statement in the quoted article is solely based on the presumptive success of the trials.

Desensitising the body to an allergy is one thing. Attempting to do the same with an autoimmune response may be another. I think you have to be very careful when tampering with the immune system.

I wish the Australian study every success and I'll pray for the volunteers. But I won't hold my breath.


I also totally agree with these statements, Momma Goose! Allergy is not the same as an intolerance. I used immunotherapy for my seasonal allergies and had great success with that but Celiac is entirely different. My immune system is wonky enough without introducing a vaccine which claims to allow people to eat whatever they want with no side effects. <_<

The second issue I have with this article is the attitude that Celiacs do not eat normally, as stated by that woman in the article. I have no idea what she eats but I certainly do eat a normal diet. It's a healthy, normal diet also....not the crap that I see people in the US eat on a daily basis. As for more variety, yup, I do that to. I guess it all depends on how much work you are willing to put into one of the most important aspects of a healthy life.....food. All restaurants have gluten-free options too. A piece of pan seared fish or steak plus a baked potato is gluten-free enough for me. Couple that with a good salad and eating gluten-free out is not as hard as some like to think. This disease is as easy or hard as you make it.

Doctors are looking for ways to make money off of Celiac Disease or it's treatment. If they ever do come up with something, whatever form that may take, all of a sudden people will be screened for the smallest amount of acid reflux and put on a pill for life. They will also be (my favorite medical term) monitored, ad nauseum, because this requires regular visits to a medical person. There is no money in celiac disease right now as it only requires adherence to a healthier diet. I'll take that over pills, questionable vaccines and surgery any day!
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#14 Roda

 
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Posted 04 June 2009 - 08:51 PM

My husband heard me listening to the news article and later asked me if it worked would I get it and eat what I used to. I told him that I would not go back to eating gluten even if I got a vaccine. If it is successfull, where I think it will be popular is with people that have celiac, but are in denial and don't want to change. I am thinking of my own brother, whom I suspect is celiac. He was dx with sarcoidosis in 1991, chronic rashes on his body, and gi issues. He has no desire to know if he has it or treat it. My other question is do you think if someone who has celiac , is not on a gluten free diet and has intestinal damage takes the vaccine and continues their gluten filled diet, I wonder if the intestinal damage would heal as well? I guess theoretically it should if they are stopping the autoimmune response. Just thinking out loud.
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Me:
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease


DS2(age 9):
celiac disease(positive IgA tTG, no biopsy- 11/2010)


DS1(age 13):
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.


#15 amber

 
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Posted 04 June 2009 - 11:04 PM

It doesn't say anything about the individuals in the trials even being genetically predisposed to Celiac.




The people in the trial are definately all celiacs and have to fit very strict criteria before they could be part of the trial.
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