Confused, Scared --in Process Of Testing
Posted 24 February 2004 - 05:58 AM
After 2 years i couldn't bear to see her ribs and pelvic bones stick out. So I have just changed doctors and the new doctor suspects celiac. she has the stomach pains but not diaherrea. (she goes twice a day does that fall into diaherrea?) Also now she has become milk intolerant and has really itchy skin. feels like sandpaper.
I have a GI appt in 2 months but what should i do in the meantime. How many months and tests before the results come in? I feel depressed for not changing doctors sooner and impatient and scared of what will happen in the future. if it is celiac my daughter will have to give up more of her favorites. Life is bad enough without eggs , chicken and wheat-----how can i tell her now more stuff has been added to that list!!!
i just need some advice and a hug!!!!!!!
Posted 24 February 2004 - 11:05 AM
Hi and welcome to the board, this is a great place for support, advice and to vent!! Do not feel guilty for not changing doctors sooner, we as mothers and fathers do the best we can.
As far as testing for Celiac it can sometimes take a while for a diagnosis. I hate to tell you this but she needs to remain on gluten until the testing is over. I know you must be feeling a lot of emotions right now and understand you not wanting your daughter to have to give up more of her favorite foods but I speak from experience when I say she will adjust to the diet. My daughter was SO picky before the diet and now she can't have her favs either but she has found new favs!!!
I hope you find encouragement here and know that you are not alone
Hang in there
Posted 24 February 2004 - 11:23 AM
Maybe you can take your daughter to the emergency room, go to the GI's office and sit there until they do squeeze you in, or call around to see if you can get your daughter an appointment any sooner.
I would think that the doctor(GI) she is currently scheduled to see, could order her blood tests now (and have the blood drawn at the lab) -- there are 5 tests she needs to have for the complete celiac panel.
If she is celiac, and the villi are pretty flattened - that would explain the lack of tolerance for milk. Once diagnosed, if she goes on a gluten free diet, the villi should heal and she probably will be able to have milk (lactose) again.
Hang in there and be persistent.
Posted 26 February 2004 - 03:18 PM
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