Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Vacations And A Gluten Free Diet
0

6 posts in this topic

My 5-year-old was just diagnosed with celiac disease. We have a vacation planned to Disney World. Does anyone have suggestions of what to eat while visiting amusement parks all day? Most gluten-free foods seem to need time to prepare them. The first few days will be fine. I can cook a big meal and then heat it up when needed. But I am at a loss for the rest of the trip. Ideas??

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hello: My 3 year old son has celiac disease. We went to Disney World in July. If you are staying at a hotel, ect. Call them. They are very familiar with celiac disease in Disney World.

I stayed at the Grand Floridian. I let them know ahead of time that I would need gluten free foods. They were extremely accomodating. Since we ate at a different restaurant each night, I called each and every one to speak to the Chef. (Call at least a week before you go). Most places actually made me Gluten Free bread from scratch!!!!!!!. Most places have Gluten Free waffle and pancake mix also. There is also a category on the Disney World website for food specialties. I would call the 1-800 # for that also. Good luck!!!

0

Share this post


Link to post
Share on other sites

P.S. I forgot to answer your original question: At the amusement parks I brought my own food. I packed a cooler full of fruit, juices,gluten-free peanut butter (they come in squeezable single serving sizes now!!!! (by Skippy), Organic crispy rice bars made by Invirokidz. I would also make a sandwich of peanut butter and Jelly on rice cakes. I used the apple cinnimon flavored by Quaker. I hope this helps!!

Have a great vacation!!!!

0

Share this post


Link to post
Share on other sites

I found this really good article about vacationing at Disney World Gluten Free.

Here is the link enabling.org

It is from one of their old newsletters.

Once there click on "Doing Disney World Gluten Free".

I hope you have a wonderful vacation. don't let them hassle you about bringing in your ice chest full of food either! You have a right to bring in anything that is medically necessary.

God bless.

Mariann

0

Share this post


Link to post
Share on other sites

I'm just curious: do you have to be officially diagnosed and/or carry a doctor's note to be able to take medically necessary food into amusement parks and such places, or do they actually take your word for it that you have celiac disease? My in-laws want to take all of us to Idlewild park this summer, and the last thing I would want is to find myself all tangled up in red tape--my life is already complicated enough, and I need a lot of work on being more assertive when I am face-to-face with someone who disagrees with me!

0

Share this post


Link to post
Share on other sites




Thank you everybody for all the great suggestions. It makes me feel so good to know that there is some support, especially when you are new to this whole gluten-free thing. About the amusement park, I was also wondering the same thing: Do you need a letter or do they take your word for it that you have Celiac Disease? I actually just got a letter from my daughter's doctor, so I will be sure to keep copies handy...one for income taxes, one for parks, backup, etc.

Thanks again everybody!!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,639
    • Total Posts
      918,434
  • Topics

  • Posts

    • How effective is HD skin biopsy after being gluten free for a year
      DH is celiac disease that appears on the skin (gluten triggered).  It does not appear when you are consuming dairy, which sounds like a separate issue for you.   A DH biopsy requires active lesions (new/fresh) from consuming gluten.  So, if you want to be tested via a skin biopsy you must go back on gluten.  Finding a dermatologist who knows exactly how to biopsy for DH is often difficult.  Be sure your Derm is knowledable and has biopsied for DH before. Why no endoscopy for now?  I bet your GI  knows that your insurance will deny the endoscopy.  After all, you tested negative to the blood panel.  Your GI should not even ordered the blood panel knowing that you had been gluten free for months.  You have to be consuming gluten daily for 8 to 12 weeks for the blood test to be accurate.   Did you ever test positive?  Why did your primary diagnose you?  Having the gene just means you can develop celiac disease.  Some 30% of the population carries the genes.  The gene test should only be used to help rule out celiac disease.  
    • How effective is HD skin biopsy after being gluten free for a year
      No one can say exactly how long you might be able to get a positive dh biopsy after having been gluten free as long as you have been. The Chicago Celiac Disease Center says this: http://www.cureceliacdisease.org/faq/im-scheduled-to-have-a-skin-biopsy-to-screen-for-celiac-disease-should-i-maintain-a-gluten-containing-diet-similar-to-those-who-are-being-screened-via-blood-or-intestinal-biopsy/ http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ You said you had a flare of the plaque psoriasis -- that is NOT dh so why do you think the dh biopsy will show positive? Testing positive for the celiac genes does not mean you have celiac disease. 30+% of the population have the celiac genes but only very, very small fraction of those people do or will present with celiac disease. The gene tests are only used to rule OUT celiac NOT to diagnose it. Frankly, I can understand why your GI does not put any stock in your Primary doc's thinking you have celiac disease. A positive celiac gene and the boils in your armpits which the GI never saw and were never biopsied for dh but they resolved on a gluten free diet and so did your plaque psoriasis. That's all the GI has to go on. I don't know why you are pushing an endoscopy. If you've been eating strictly gluten free then an endoscopic biopsy for celiac will be negative.  Your PCP should have done a celiac blood panel on you back when you were still eating gluten rather than dx you based on the celiac gene you tested positive for.
    • How effective is HD skin biopsy after being gluten free for a year
      I've been gluten free for a year now and my gastro wants to wait for the endocopy until I'm eligible for the colonoscopy when I turn 50 later this year. I don't think she believes I have celiac, even though I tested positive for one of the genes associated with celiac and my primary has diagnosed me as having celiac. The gluten sensitivity blood tests came back negative, of course, since I was gluten free for 9 months at that time. Why is she waiting? At any rate, My digestive system has improved greatly, but when I reintroduced non fat Greek yogurt in my diet, the plaques psoriasis returned on my elbows. My primary believes it is dermatitis herpetiformis (as well as I, since before going gluten free, I used to get boils in my armpits) and I'm scheduled for a skin biopsy in 3 weeks. However, I eliminated dairy from my diet 4 weeks ago and the plaques psoriasis is healing like it did when I eliminated gluten from my diet a year ago. If the scar is reduced to eczema, does that mean there still are IGA deposits in my skin? I don't want to resume dairy since I experienced a cross reaction to the casein in cheese and found lactose was on that same list. So my question is, how long do the granular IGA deposits remain in the skin in order to have a valid skin biopsy test performed for dermatitis herpetiformis? Since it takes 1-2 years for dermatitis herpetiformis to heal on a gluten free diet and I just had a recent flare up, can I continue on my dairy free diet or should I resume eating non fat Greek yogurt for the next 3 weeks just for this skin biopsy?
    • Celiac Night Vision
      Thanks Cristiana. It was Mistyx7 and night driving. Migraine type is very personal but does not appear to be closely connected to celiac or my peculiar scotomas. If you think going gluten-free has improved it that deserves a separate topic!
    • Burning Sensation
      The last post was from 2011.   if you can eat a regular pizza crust with no issue, then gluten isn't your problem.  You might want to look for something else.  The amount of gluten in a beer or fryer cc is very very small compared to eating a pizza crust.   I am assuming you do not have Celiac disease.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,732
    • Most Online
      1,763

    Newest Member
    SueJ
    Joined