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Vacations And A Gluten Free Diet
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My 5-year-old was just diagnosed with celiac disease. We have a vacation planned to Disney World. Does anyone have suggestions of what to eat while visiting amusement parks all day? Most gluten-free foods seem to need time to prepare them. The first few days will be fine. I can cook a big meal and then heat it up when needed. But I am at a loss for the rest of the trip. Ideas??

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Hello: My 3 year old son has celiac disease. We went to Disney World in July. If you are staying at a hotel, ect. Call them. They are very familiar with celiac disease in Disney World.

I stayed at the Grand Floridian. I let them know ahead of time that I would need gluten free foods. They were extremely accomodating. Since we ate at a different restaurant each night, I called each and every one to speak to the Chef. (Call at least a week before you go). Most places actually made me Gluten Free bread from scratch!!!!!!!. Most places have Gluten Free waffle and pancake mix also. There is also a category on the Disney World website for food specialties. I would call the 1-800 # for that also. Good luck!!!

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P.S. I forgot to answer your original question: At the amusement parks I brought my own food. I packed a cooler full of fruit, juices,gluten-free peanut butter (they come in squeezable single serving sizes now!!!! (by Skippy), Organic crispy rice bars made by Invirokidz. I would also make a sandwich of peanut butter and Jelly on rice cakes. I used the apple cinnimon flavored by Quaker. I hope this helps!!

Have a great vacation!!!!

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I found this really good article about vacationing at Disney World Gluten Free.

Here is the link enabling.org

It is from one of their old newsletters.

Once there click on "Doing Disney World Gluten Free".

I hope you have a wonderful vacation. don't let them hassle you about bringing in your ice chest full of food either! You have a right to bring in anything that is medically necessary.

God bless.

Mariann

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I'm just curious: do you have to be officially diagnosed and/or carry a doctor's note to be able to take medically necessary food into amusement parks and such places, or do they actually take your word for it that you have celiac disease? My in-laws want to take all of us to Idlewild park this summer, and the last thing I would want is to find myself all tangled up in red tape--my life is already complicated enough, and I need a lot of work on being more assertive when I am face-to-face with someone who disagrees with me!

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Thank you everybody for all the great suggestions. It makes me feel so good to know that there is some support, especially when you are new to this whole gluten-free thing. About the amusement park, I was also wondering the same thing: Do you need a letter or do they take your word for it that you have Celiac Disease? I actually just got a letter from my daughter's doctor, so I will be sure to keep copies handy...one for income taxes, one for parks, backup, etc.

Thanks again everybody!!

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    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
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