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Pirate's Booty


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#1 Newbie Celiac

 
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Posted 19 June 2009 - 10:39 AM

I had my first post-diagnosis reaction to gluten and I am trying to figure out what it was. The only new thing I have eaten was Pirate's Booty Aged White Cheddar. The ingredients looked gluten free and I found a website that said it was gluten free but my reaction says otherwise.

Has anyone else had a problem with this product?
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#2 ravenwoodglass

 
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Posted 19 June 2009 - 12:00 PM

I haven't had any issues with any of their gluten-free products that I have tried. I have been known to eat a whole bag of the cheese ones in one sitting :ph34r:
One thing you have to consider is that for some of us the reaction to gluten is a delayed reaction. Look at what you have eaten for up to 3 days before in addition to what you are that day. A food diary can be helpful for some in pinpointing what caused the problem.
Another possibility is that you may have an issue with dairy.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#3 Newbie Celiac

 
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Posted 19 June 2009 - 01:21 PM

Thanks - I'm thinking about all I ate 2 and 3 days ago that may be the issue. I was at a BBQ but there were other celiacs there and they are ok. Maybe I ate something contaminated.

I'm getting over my lactose intolerance now that I'm gluten free and I have eaten cheese so not sure that is the issue. Good to have it confirmed that others are not having issues so I'm sure it was something else.
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#4 GlutenGalAZ

 
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Posted 19 June 2009 - 01:31 PM

Do you notice if you have a problem with corn?

I can't tolerate yellow corn but am okay wtih white corn. I believe majority of popcorn (that you buy in bags) is yellow.
I stopped buying popcorn already made up and just buy the white kernnels and make my own at home on the stove.

Good Luck with everything
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Rebecca

Partial Gluten Free March 2007
Completely Gluten Free February 2008
Tapioca Starch/Flour Free April 2008
No MSG July 2008
Cut out Nitrates//Nitrites January 2009
Problems with Tomatoes and Potatoes -- Cut out Nightshades Aug '09

#5 ravenwoodglass

 
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Posted 19 June 2009 - 01:40 PM

Thanks - I'm thinking about all I ate 2 and 3 days ago that may be the issue. I was at a BBQ but there were other celiacs there and they are ok. Maybe I ate something contaminated.


I can't say for sure of course but you could be right about the BBQ, you could easily have been CC'd there. If you really liked the Booty you could wait until you are feeling better and then give it another try and see if the same thing happens.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#6 mimommy

 
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Posted 20 June 2009 - 04:05 AM

My little girl is pretty sensitive and she has never been cc'd by Pirates Booty, so I trust the brand.
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#7 whidbeywoman

 
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Posted 16 January 2013 - 08:14 PM

Hi NC, I also ate Pirates Booty and had a very bad reaction (twice). My theory is that they're using cheese from a preshredded source, & that the cheese is tainted by being dusted with a modified food starch that contains gluten. In my experience, I'm not willing to have another episode so if it doesn't say "certified gluten free" it's off limits for me. Good luck!
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#8 mushroom

 
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Posted 16 January 2013 - 08:23 PM

This is a very old post that you are responding to so any information may be out of date and the posters are no longer frequenting the forum to see your reply.
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

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Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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