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I had my first post-diagnosis reaction to gluten and I am trying to figure out what it was. The only new thing I have eaten was Pirate's Booty Aged White Cheddar. The ingredients looked gluten free and I found a website that said it was gluten free but my reaction says otherwise.
Has anyone else had a problem with this product?
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Pirate's Booty
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#1
Newbie Celiac 
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Posted 19 June 2009 - 10:39 AM
MultiQuote
#2
ravenwoodglass
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Posted 19 June 2009 - 12:00 PM
I haven't had any issues with any of their gluten-free products that I have tried. I have been known to eat a whole bag of the cheese ones in one sitting 
One thing you have to consider is that for some of us the reaction to gluten is a delayed reaction. Look at what you have eaten for up to 3 days before in addition to what you are that day. A food diary can be helpful for some in pinpointing what caused the problem.
Another possibility is that you may have an issue with dairy.
One thing you have to consider is that for some of us the reaction to gluten is a delayed reaction. Look at what you have eaten for up to 3 days before in addition to what you are that day. A food diary can be helpful for some in pinpointing what caused the problem.
Another possibility is that you may have an issue with dairy.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#3
Newbie Celiac
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- Group: Members
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- Joined: 25-April 09
Posted 19 June 2009 - 01:21 PM
Thanks - I'm thinking about all I ate 2 and 3 days ago that may be the issue. I was at a BBQ but there were other celiacs there and they are ok. Maybe I ate something contaminated.
I'm getting over my lactose intolerance now that I'm gluten free and I have eaten cheese so not sure that is the issue. Good to have it confirmed that others are not having issues so I'm sure it was something else.
I'm getting over my lactose intolerance now that I'm gluten free and I have eaten cheese so not sure that is the issue. Good to have it confirmed that others are not having issues so I'm sure it was something else.
#4
GlutenGalAZ
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- Gender:Female
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Posted 19 June 2009 - 01:31 PM
Do you notice if you have a problem with corn?
I can't tolerate yellow corn but am okay wtih white corn. I believe majority of popcorn (that you buy in bags) is yellow.
I stopped buying popcorn already made up and just buy the white kernnels and make my own at home on the stove.
Good Luck with everything
I can't tolerate yellow corn but am okay wtih white corn. I believe majority of popcorn (that you buy in bags) is yellow.
I stopped buying popcorn already made up and just buy the white kernnels and make my own at home on the stove.
Good Luck with everything
Rebecca
Partial Gluten Free March 2007
Completely Gluten Free February 2008
Tapioca Starch/Flour Free April 2008
No MSG July 2008
Cut out Nitrates//Nitrites January 2009
Problems with Tomatoes and Potatoes -- Cut out Nightshades Aug '09
Partial Gluten Free March 2007
Completely Gluten Free February 2008
Tapioca Starch/Flour Free April 2008
No MSG July 2008
Cut out Nitrates//Nitrites January 2009
Problems with Tomatoes and Potatoes -- Cut out Nightshades Aug '09
#5
ravenwoodglass
- Advanced Community Member
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- Group: Advanced Members
- Posts: 7,125
- Joined: 17-April 04
- Gender:Female
- Interests:Gardening, photograpy, painting and drawing, textile arts, glass art, reading
- Location:Upstate NY
Posted 19 June 2009 - 01:40 PM
Newbie Celiac, on Jun 19 2009, 02:21 PM, said:
Thanks - I'm thinking about all I ate 2 and 3 days ago that may be the issue. I was at a BBQ but there were other celiacs there and they are ok. Maybe I ate something contaminated.
I can't say for sure of course but you could be right about the BBQ, you could easily have been CC'd there. If you really liked the Booty you could wait until you are feeling better and then give it another try and see if the same thing happens.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
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