[JohnDory]

Hi,
Am having an extremely bad day today, and for last 2 days have been tired and unabe to think, read. Clumbsy etc.

Had positive gliadin bloods about 2months ago, been gluten free since then. (biopsy booked but live in a useless country where anything like that takes several months to get done, so not waiting till then before stopping gluten)

Ate some potato crockets (3 of them) with a steak the other night, and my mother has made me a pasta dish (gluten free) which ive been eating last two days also (and have upset stomach immediately after, think it might be the cheese/milk).

Anyway last few days have not been able to work, think, anything. Angry all the time. Puffy dry eyes, mouth ulcers, sleeping 10+ hours feeling extremely groggy. Dont want to do anytihng.

Is this likely a result of the very small amount of gluten in the potato crockets and if so when can i get back to being normal?

Any insight would be greatly appreciated,

thanks

[Foxfire62]

JohnDory, on Jun 20 2009, 12:21 AM, said:

Hi,
Am having an extremely bad day today, and for last 2 days have been tired and unabe to think, read. Clumbsy etc.

Had positive gliadin bloods about 2months ago, been gluten free since then. (biopsy booked but live in a useless country where anything like that takes several months to get done, so not waiting till then before stopping gluten)

Ate some potato crockets (3 of them) with a steak the other night, and my mother has made me a pasta dish (gluten free) which ive been eating last two days also (and have upset stomach immediately after, think it might be the cheese/milk).

Anyway last few days have not been able to work, think, anything. Angry all the time. Puffy dry eyes, mouth ulcers, sleeping 10+ hours feeling extremely groggy. Dont want to do anytihng.

Is this likely a result of the very small amount of gluten in the potato crockets and if so when can i get back to being normal?

Any insight would be greatly appreciated,

thanks

Check your iron/vitamin levels. The typical vitamins that celiacs become deficient in are iron, B12, folic acid, and vitamin D, just to name some of the main ones. But there could be others.

As for your biopsy, going gluten-free could guarantee a negative results when they biopsy your duodenum. Recommend you go back on a gluten diet at least 2-4 weeks prior to the biopsy. Either that, or just assume you are gluten-intolerant/celiac, and don't have it at all and stay on gluten-free diet the rest of your life. Your choice.

Celiacs are often lactose intolerant until their intestines heal. Also, soy, egg, nut, fish, protein, etc., are also possible intolerances that are developed. Supposedly, after the intestines heal, you can tolerate these products again. I'm beginning to tolerate some diary products, but soy is still a problem. Protein as well, but I need it.

Anyway, good luck to you, but definitely get your vitamins checked out. I remember when I was anemic, I was tired all the time and only wanted to sleep. Appeared to lose energy shortly after I woke up. It was amazing how I managed despite being anemic. (Had a dog to take care of and was getting ready to move to USA.)

I hope you can get this rectified. The best way to eat, btw, is from scratch...at least until you're healed. Then, if you wish, you could try other foods. Trust me from my experience, there are so many different things going on with your intestines when you're celiac, it's best to just go back to the basics for awhile.

One last thing, if you are iron-deficient, and you constipate easily, I would recommend taking iron in fluid form; that might work best. Iron can constipate.

Good luck!

[ann72601]

JohnDory, on Jun 19 2009, 09:21 PM, said:

Hi,
Am having an extremely bad day today, and for last 2 days have been tired and unabe to think, read. Clumbsy etc.

Had positive gliadin bloods about 2months ago, been gluten free since then. (biopsy booked but live in a useless country where anything like that takes several months to get done, so not waiting till then before stopping gluten)

Ate some potato crockets (3 of them) with a steak the other night, and my mother has made me a pasta dish (gluten free) which ive been eating last two days also (and have upset stomach immediately after, think it might be the cheese/milk).

Anyway last few days have not been able to work, think, anything. Angry all the time. Puffy dry eyes, mouth ulcers, sleeping 10+ hours feeling extremely groggy. Dont want to do anytihng.

Is this likely a result of the very small amount of gluten in the potato crockets and if so when can i get back to being normal?

Any insight would be greatly appreciated,

thanks

[ann72601]

I don't have an answer that I know will work for you; I do have a simple suggestion that has helped me clear my body of the gluten much faster, so the mental confusion, puffy eyes, tired, etc...are not completely overwhelming. I read about organic coffee enemas and then spoke with my doctor about doing them. She said to try it once a day and gradually move up to 4x daily. It helps so much that the process doesn't even matter to me anymore. It clears the liver, where everything is processed. It lightens the burden of the liver plus it removes it where it doesn't have to be roaming around your body for days.
I worry about the mental part of it so much. This disease is such a challenge and I know if you're like me, you just want to throw in the towel some days. But.....we're strong and we go on.
I'm reading the classic, "Man's Search For Meaning", by Viktor Frankl. I am so inspired by this book: I would suggest it for anyone, but for us here, I'm thinking it's a 'must'.
I hope you're better. Be well.

[Karen61]

JohnDory, on Jun 19 2009, 10:21 PM, said:

Hi,
Am having an extremely bad day today, and for last 2 days have been tired and unabe to think, read. Clumbsy etc.

Had positive gliadin bloods about 2months ago, been gluten free since then. (biopsy booked but live in a useless country where anything like that takes several months to get done, so not waiting till then before stopping gluten)

Ate some potato crockets (3 of them) with a steak the other night, and my mother has made me a pasta dish (gluten free) which ive been eating last two days also (and have upset stomach immediately after, think it might be the cheese/milk).

Anyway last few days have not been able to work, think, anything. Angry all the time. Puffy dry eyes, mouth ulcers, sleeping 10+ hours feeling extremely groggy. Dont want to do anytihng.

Is this likely a result of the very small amount of gluten in the potato crockets and if so when can i get back to being normal?

Any insight would be greatly appreciated,

thanks

[Karen61]

Hi:
I am very new to celiac disease and in fact just two weeks into this discovery entirely on my own! I have suffered for years and been diagnosed with various things with a new medication attached to each diagnosis. I have discovered in two weeks that some glutin free foods will have a personal reaction for me that is different than others. You will have to watch and listen to your body after each meal. I would suggest that you introduce one food at a time and not several to find out which one reacts. Beef is a culprit for me and I am suspecting that it is the grain fed beef because as a child we raised our beef and I didn't have these problems until I married and left home and the farm. I am presently looking into finding grass fed beef. It will get better...I feel like a new person in just two weeks...Karen

JohnDory, on Jun 19 2009, 10:21 PM, said:

Hi,
Am having an extremely bad day today, and for last 2 days have been tired and unabe to think, read. Clumbsy etc.

Had positive gliadin bloods about 2months ago, been gluten free since then. (biopsy booked but live in a useless country where anything like that takes several months to get done, so not waiting till then before stopping gluten)

Ate some potato crockets (3 of them) with a steak the other night, and my mother has made me a pasta dish (gluten free) which ive been eating last two days also (and have upset stomach immediately after, think it might be the cheese/milk).

Anyway last few days have not been able to work, think, anything. Angry all the time. Puffy dry eyes, mouth ulcers, sleeping 10+ hours feeling extremely groggy. Dont want to do anytihng.

Is this likely a result of the very small amount of gluten in the potato crockets and if so when can i get back to being normal?

Any insight would be greatly appreciated,

thanks

[ann72601]

Foxfire62, on Jun 20 2009, 09:30 AM, said:

Check your iron/vitamin levels. The typical vitamins that celiacs become deficient in are iron, B12, folic acid, and vitamin D, just to name some of the main ones. But there could be others.

As for your biopsy, going gluten-free could guarantee a negative results when they biopsy your duodenum. Recommend you go back on a gluten diet at least 2-4 weeks prior to the biopsy. Either that, or just assume you are gluten-intolerant/celiac, and don't have it at all and stay on gluten-free diet the rest of your life. Your choice.

Celiacs are often lactose intolerant until their intestines heal. Also, soy, egg, nut, fish, protein, etc., are also possible intolerances that are developed. Supposedly, after the intestines heal, you can tolerate these products again. I'm beginning to tolerate some diary products, but soy is still a problem. Protein as well, but I need it.

Anyway, good luck to you, but definitely get your vitamins checked out. I remember when I was anemic, I was tired all the time and only wanted to sleep. Appeared to lose energy shortly after I woke up. It was amazing how I managed despite being anemic. (Had a dog to take care of and was getting ready to move to USA.)

I hope you can get this rectified. The best way to eat, btw, is from scratch...at least until you're healed. Then, if you wish, you could try other foods. Trust me from my experience, there are so many different things going on with your intestines when you're celiac, it's best to just go back to the basics for awhile.

One last thing, if you are iron-deficient, and you constipate easily, I would recommend taking iron in fluid form; that might work best. Iron can constipate.

Good luck!

I just appreciate you all so much!!

Ann