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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Fiber And Constipation
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8 posts in this topic

I have a very strange reaction to fiber (most especially inulin/fos) and almost ALL carbs in general. I get very bloated (I look like I am pregnant..), retain a lot of fluid, get bubbles in my stomach (lower right side), joint pain, and very lethargic. Additionally, it makes me extremely constipated, for days. My worst offending foods are all fruits, especially apples, dates, berries, beans, sweet potatoes, and mostly all veggies. My diet is meat, oils, avocado, peeled and steamed zucchini, and the occasional banana or carrot when I am feeling brave. Most probiotics constipate me too. Does fiber constipate anyone else or does anyone else suffer from these symptoms?

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I have a very strange reaction to fiber (most especially inulin/fos) and almost ALL carbs in general. I get very bloated (I look like I am pregnant..), retain a lot of fluid, get bubbles in my stomach (lower right side), joint pain, and very lethargic. Additionally, it makes me extremely constipated, for days. My worst offending foods are all fruits, especially apples, dates, berries, beans, sweet potatoes, and mostly all veggies. My diet is meat, oils, avocado, peeled and steamed zucchini, and the occasional banana or carrot when I am feeling brave. Most probiotics constipate me too. Does fiber constipate anyone else or does anyone else suffer from these symptoms?

yeah i'm the same exact way, for years I had doctors tell me my nausea/extreme constipation was caused by lack of fiber so I did everything they said...and felt worse doing it (basically it increases the size but not softens so it makes it worse)

I think i've learned is when you have an intolerance to something (soy..wheat) for me it causes constipation and the colon slows down digesting foods...then to add fiber to the mix that just causes more problems.

Only thing I can think of is trying miralax (it's safe long term) and maybe mixing it directly with citrucel (a non allergenic bulker) so you could *try* that..i'm only 2 weeks off soy/wheat/lactose intolerance so.. i'm not sure how long I should way or how long it will be until I get feeling better..hopefully soon! :(

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Hello,

Miralax is helpful to get me moving again after a mistake but long term ..... magnesium supplements, tart cherry juice concentrate (I use Kings Orchard, they have a web site) and pure maple syrup are way easier on my system. Big mug of warm water with two tbs of cherry juice and two tbs of maple syrup to wash down the magnesium supplement before bed and I'm good to go within a hour of waking up in the morning.

The cherry juice helps to reduce inflammation and swelling. The syrup has potassium, calcium, magnesium, zinc and manganese. The magnesium supplements help with long muscle relaxation and contraction. It allows your muscles to relax and let it go....

Hope this helps

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Thanks for replying! I was beginning to think I was crazy. No one ever believes me and when I eat fiber rich foods, I almost die.. and I drink 3 liters of water a day so it is not that. I fear miralax may cause me issues, but I will try it with caution! Interesting about cherry juice too, thanks for the tips both of you :)

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I have a very strange reaction to fiber (most especially inulin/fos) and almost ALL carbs in general. I get very bloated (I look like I am pregnant..), retain a lot of fluid, get bubbles in my stomach (lower right side), joint pain, and very lethargic. Additionally, it makes me extremely constipated, for days. My worst offending foods are all fruits, especially apples, dates, berries, beans, sweet potatoes, and mostly all veggies. My diet is meat, oils, avocado, peeled and steamed zucchini, and the occasional banana or carrot when I am feeling brave. Most probiotics constipate me too. Does fiber constipate anyone else or does anyone else suffer from these symptoms?

I know you posted this a while back. But I just wanted to say...THANK GOD! You aren't the only one, I'm not the only one! It is so frustrating because after being diagnosed with Celiac while I was in BETTER digestive health, it wasn't perfect! I felt like I had a hard time completely eliminating, and or struggled WAY TOO MUCH! So like you I kept eating MORE FIBER! Then I had a hemorrhoidectomy (hemorrhoids were from two years of straining while undiagnosed with celiac) and the protocol for a smooth recovery is LOTS AND LOTS OF FIBER! I was probably only 6 months gluten free at the time, so one could argue not fully healed. But needless to say I COULD NOT go to the bathroom! I wasn't on pain killers (I suffered through it) I was drinking a gallon of water. I tried all kinds of fiber including prunes prune juice lots of Konsyl (sugar free gluten free psyllium) and even coconut fiber. Intuitively I knew the fiber was a menace for me, so I pulled my self off ALL OF IT! It worked! I went to the bathroom! To this day FIBER CONSTIPATES ME BAD! I think we should listen to our bodies! But it can be so hard when mainstream medicine keeps telling you otherwise. A list of foods that I tolerate fine on a regular basis are:

Quinoa,

all meats,

eggs,

soft steamed broccoli and green beans and other veggies

ice burg or romaine lettuce but not raw spinach or spring mixes,

red green peppers, almonds cashews and other nut butters, pumpkin, little bit of rice , white is better than brown. NO squash NO beans! Rarely potatoe! NO FLAX SEED!!! And I can't take pro biotics either! I did have SIBO after the celiac diagnosis or as a result of the celiac that was treated with a round of Xifaxan. But i still can't eat yogurt or take probiotics with out suffering severe constipation. I think we are just extremely sensitive to bacteria imbalances! Im just glad I am not the only one!

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I also have similiar fiber-tolerating problems. For so long I thought it would be the cure for my constipation!

Now I'm learning what foods I can and cannot tolerate: white rice, cooked vegetables in small amounts (brocolli, peas, carrots mostly), fish and eggs seem to be okay too but nothing has proven to help my constipation fully.

Something a little odd, chocolate seems to be the only thing that helps me go. Coffee makes my constipation much worse, but dark chocolate helps. Does anyone else experience this?

I'm curious about knowing what foods work for other people who are sensitive to

wheat/sugar/fiber/dairy? And how anyone else deals with these issues in general?

thank you!

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Red wine helps clean me out.

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Yes I think we have similar issues! Its so frustrating to be constantly told one thing, but respond to another thing completely! I think...for me at least, the answer lies in the rate of GI motility! or in other words how fast/slow food moves through the digestive tract. I have suffered from SLOW GI motility (Fast GI Motility would cause D)I have read that slowed GI motility can be caused by Celiac and causes constipation, bloating, etc. Its also called Gastroparesis sometimes. This is for sure what caused my initial Small Intestinal Bacteria symptoms (all related to Celiac). If you do a search for diets for Gastroparesis it pretty much confirms what we are talking about here. NOT A LOT OF FIBER, DAIRY, SOY, ETC. I hope that helps.

I wish red wine helped! I would drink more! I have noticed that I can't drink hardly any alcohol (certainly no whiskey, bourbon, gin, wheat vodka) and even Rum to a certain extent caused some issues. The grain alcohols make me feel like I have been glutened and shut down my system.

Honestly I think the sugar from the alcohol ferments in my gutt and causes some issues. I have looked into anti yeast/candida diets, even into taking coconut oil orally. But I don't feel like i eat a lot of that stuff since my carbs are from Quinoa and veggies predominantly. I drink green tea with stevia, not coffee! I know I shouldn't chew sugar free gum but I do sometimes. Maybe that should be cut out too! I tried coconut macaroons the other day made with egg whites, some sugar and unsweetened natural high fiber coconut! I was in pain for two days with a stich in my upper left abdoman. SO NO FIBER NO FIBER!!!!

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    • Weird Reaction
      Thank  you Flowerqueen and Cristiana for your replies. I'm actually feeling much better today. I got my appetite back yesterday lunchtime (a few hours after I typed the original post) and managed to keep in/hold down some chicken and lettuce!!! I also had a "fat" coffee (as I call it) before work with MCT Oil and butter (your probably going "yuk" right now but it's really nice...really haha) and started feeling a bit better after that. The nausea went away almost immediately after that although just the thought of having all that fat nearly made me sick but I just wanted to get back to normal asap. I usually have a lot of fat in my diet anyway which is normal for me so the coffee choice isn't unusual. Plus it was also the third day which was when I started feeling better after the first time. I didn't eat til lunchtime and I was good and hungry by then so I knew I was coming out of it. That nausea and trembling feeling is something I don't want ever again. I think after the workout and tearing down muscle tissue (which is a form of stress) and then not being able to hold the nutrients in for repair affected my nervous system. My theory only but to me it makes sense. Although Vitargo also comes in flavors I always get the Natural / Unflavored one so the barley is the only ingredient. As for there being something wrong with that particular batch, well, you be on to something there. Also I'm not knocking the product because as I said, I have used it before and it did exactly what it was supposed to do. But, I will never have it again. Cristiana, my last blood test revealed I had slight anaemia which really surprised me with the amount of red meat I've eaten during my life and the anxiety thing is also new as I'm usually a happy, positive person. Life is good but after this recent reaction I think it is an indirect cause of the glutening. I'm also surprised at how sensitive I've become to it and how quickly. Also what is DX? I also follow a FODMAP eating plan (I can give you more info if you haven't heard of it) which also eliminates certain foods. It's a plan directed mostly at IBS but is well worth looking into if you are suffering any gut health, digestion issues or any ailment you may have which you can't get to the bottom of. Broccoli was one of the foods which I have cut back on and I've eaten HUGE amounts of broccoli so it is a superfood for some but apparently not for others. (I even think I read somewhere it has MSG naturally in it) It's hard to find any bad articles on broccoli so this also really surprised me. It also answered a few other questions I had. Many, many thanks again to you both for your replies. It actually settled me just reading them. I'm glad I found these forums so I don't think i'll be a stranger around here for long.   Richard
    • Confused
      Okay, I get that you are not going to follow the advice from some stranger on the internet, but please read the links that I gave you.  Your doctor is not following the standard level of care.  I am dead serious.  I have Kaiser.  My own GP doesn't have a clue about celiac disease, but my Kaiser GI does.  Please, I urge you to get properly diagnosed.  All celiac testing requires you to be on a gluten diet.  If you go gluten free even for two weeks (it will take time to get the referral and appointment), it will mess up the tests.  Your GI will put you back on a gluten diet (called a gluten challenge) for 8 to 12 weeks.    Chances are (almost 100%) you will feel more miserable!  That will just delay your diagnosis.   Symptoms not bad you say?  I had pretty severe anemia, but no tummy issues.  Two months after my diagnosis, I fractured my back DOING NOTHING!  Yep, I have osteoporosis from undiagnosed celiac disease and I am an athlete!   Please take this seriously!    
    • Silent Celiac or Non-digestive symptoms
      Oh, you might learn how to tell if you had been glutened.  I just had anemia as my main symptom.  I did not have any tummy issues at all.  I was in shock when my doctor even suggested testing me for celiac disease!   Glutenings can vary as we are all different.  For some it is just a few days, others a few weeks and others months (that would be me).  My last official glutening as supported by follow-up antibody testing lasted for three months.  Guess what?  I had vomiting, abdominal pain, the works!  Funny how celiac disease can change and evolve over time.   Welcome to the forum!  Have some patience and learn all that you can.  The good news is that you can feel better and no medications are required!  
    • Confused
      Thank you for the information. I've been not sure if I should eat gluten or not right now. Dr. said I should watch what I eat when I emailed him the question. My symptoms aren't very bad (I understand that doesn't matter for celiac disease), so I can definitley tolerate the food. But I have been starving myself the last few days due to not knowing what the heck is going on. Thanks again.
    • Could this possibly be related to celiac or a gluten intolerance?
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