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Nathaniel Scott made a VERY unexpected early arrival on June 15 at 7:10pm. He was 8 weeks premature!! He was 2 lb and 12 oz but a whopping 17" long!!
He's doing very well in the NICU - breathing on his own and being a truly feisty little trooper! Looks like he will stay with them until close to his original due date. I was finally able to come home from the hospital yesterday and can now hustle up and get the house ready for our little cherub when he is able to safely come home.
I'm so proud of my little fighter! What an amazing experience!
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I'm A Proud Momma!
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#2
Jestgar 
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- Posts: 8,768
- Joined: 13-June 06
Posted 21 June 2009 - 05:54 AM
CONGRATULATIONS!!!!!!
"But then, in all honesty, if scientists don't play god, who will?"
- James Watson
My sources are unreliable, but their information is fascinating.
- Ashleigh Brilliant
Leap, and the net will appear.
Celiac.com - Celiac Disease Board Moderator
- James Watson
My sources are unreliable, but their information is fascinating.
- Ashleigh Brilliant
Leap, and the net will appear.
Celiac.com - Celiac Disease Board Moderator
#3
blueeyedmanda
- York Fair 2009
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- Joined: 24-January 06
Posted 21 June 2009 - 05:55 AM
congratulations Amy!!!
~~~~Gluten Free since 9/2004~~~~~~
Friends may come and go but Sillies are Forever!!!!!!!
Friends may come and go but Sillies are Forever!!!!!!!
#4
TrillumHunter
- Advanced Community Member
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- Group: Advanced Members
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- Joined: 18-April 07
Posted 21 June 2009 - 06:38 AM
Congratulations to you both! Grow, Nathaniel, grow so you can go home to Mom and Dad!
#5
lizard00
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Posted 21 June 2009 - 07:51 AM
Congratulations! I am so glad to hear that he is doing so well for being so early.
Get some rest!!!! I know it'll be hard, but try.
Get some rest!!!! I know it'll be hard, but try.
Be yourself, everyone else is taken.
Oscar Wilde
Gluten free November 2007
IgA Deficient, Neg Bloodwork, Double DQ2 Positive
Dietary and Genetic Diagnosis June 2, 2008
Soy free Jan 09
Celiac.com - Celiac Disease Board Moderator
Oscar Wilde
Gluten free November 2007
IgA Deficient, Neg Bloodwork, Double DQ2 Positive
Dietary and Genetic Diagnosis June 2, 2008
Soy free Jan 09
Celiac.com - Celiac Disease Board Moderator
#6
jerseyangel
- Tyler
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- Posts: 19,481
- Joined: 29-September 05
Posted 21 June 2009 - 08:01 AM
Congratulations!!!! 
Patti
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
Celiac.com - Celiac Disease Board Moderator
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
Celiac.com - Celiac Disease Board Moderator
#8
ravenwoodglass
- Advanced Community Member
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- Group: Advanced Members
- Posts: 12,491
- Joined: 17-April 04
Posted 22 June 2009 - 04:07 AM
Congrats on his arrival. I am glad he is doing well despite being in a hurry to get here.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#12
amybeth
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- Group: Advanced Members
- Posts: 356
- Joined: 02-August 05
Posted 26 July 2009 - 02:09 PM
Update:
Six weeks later, Nathaniel is doing beautifully! He is almost 5lb and it seems like he will be home from NICU within the next 10 days.
He struggled a bit with food --- they were fortifying it to give him more calories and he had a bad reaction to the fortifier (need to remember to check the ingredients on that....), but once they stopped adding it, he bounced back.
He will come home on an apnea monitor (sometimes he just plain forgets to breathe), a few medications, and supplements for his anemia, but overall he is growing, gaining weight, and getting cuter by the day! We cannot wait to get him home!
Six weeks later, Nathaniel is doing beautifully! He is almost 5lb and it seems like he will be home from NICU within the next 10 days.
He struggled a bit with food --- they were fortifying it to give him more calories and he had a bad reaction to the fortifier (need to remember to check the ingredients on that....), but once they stopped adding it, he bounced back.
He will come home on an apnea monitor (sometimes he just plain forgets to breathe), a few medications, and supplements for his anemia, but overall he is growing, gaining weight, and getting cuter by the day! We cannot wait to get him home!
Amy
Gluten Free since 4/05 - adult onset
Symptoms for 4+ years prior
Immediate family tests negative
No Known family members w/ celiac disease
Gluten Free since 4/05 - adult onset
Symptoms for 4+ years prior
Immediate family tests negative
No Known family members w/ celiac disease
#13
G-freegal12
- Advanced Community Member
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- Group: Advanced Members
- Posts: 88
- Joined: 16-July 09
Posted 27 July 2009 - 09:57 AM
There must be evil glutenin that fortifier 
....but CONGRATULATIONS!!!anyway!!!
....but CONGRATULATIONS!!!anyway!!!
Went gluten free as of the summer of 2009
I have also now declared doctors as not really very smart
(No offense to all the good ones)
Gluten is sneaky and not to be trusted...
I have also now declared doctors as not really very smart
(No offense to all the good ones)
Gluten is sneaky and not to be trusted...
#14
ravenwoodglass
- Advanced Community Member
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- Group: Advanced Members
- Posts: 12,491
- Joined: 17-April 04
Posted 27 July 2009 - 04:40 PM
amybeth, on Jul 26 2009, 03:09 PM, said:
Update:
Six weeks later, Nathaniel is doing beautifully! He is almost 5lb and it seems like he will be home from NICU within the next 10 days.
He struggled a bit with food --- they were fortifying it to give him more calories and he had a bad reaction to the fortifier (need to remember to check the ingredients on that....), but once they stopped adding it, he bounced back.
He will come home on an apnea monitor (sometimes he just plain forgets to breathe), a few medications, and supplements for his anemia, but overall he is growing, gaining weight, and getting cuter by the day! We cannot wait to get him home!
Six weeks later, Nathaniel is doing beautifully! He is almost 5lb and it seems like he will be home from NICU within the next 10 days.
He struggled a bit with food --- they were fortifying it to give him more calories and he had a bad reaction to the fortifier (need to remember to check the ingredients on that....), but once they stopped adding it, he bounced back.
He will come home on an apnea monitor (sometimes he just plain forgets to breathe), a few medications, and supplements for his anemia, but overall he is growing, gaining weight, and getting cuter by the day! We cannot wait to get him home!
I am so glad to hear that he is coming home soon. Enjoy him for they grow up way to soon.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#15
jerseyangel
- Tyler
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- Group: Moderators
- Posts: 19,481
- Joined: 29-September 05
Posted 27 July 2009 - 05:00 PM
OMG--Nathaniel's adorable! Thanks for the update--so glad he's coming home soon.
Thanks for the update--so glad he's coming home soon.
Patti
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
Celiac.com - Celiac Disease Board Moderator
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
Celiac.com - Celiac Disease Board Moderator
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