Jump to content



   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

I Think There's Gluten In That "gluten Free" Food!


  • Please log in to reply
18 replies to this topic

#1 The Gigglah

The Gigglah

    New Community Member

  • Members
  • Pip
  • 6 posts

Posted 23 June 2009 - 08:43 AM

Has anyone else gotten sick from eating something marked Gluten free? I picked up a new type of Gluten free pizza crust that Giant Food started to carry, and got Violently ill. I used all the same products(sauce,cheese, pepperoni) that I usually use, so I know it was the crust. I thought it tasted to good to be true. I can't remember the brand name , but I have never gotten sick from Schar pizza crusts.
  • 0

Celiac.com Sponsor:

#2 OptimisticMom42

OptimisticMom42

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 408 posts

Posted 23 June 2009 - 08:51 AM

I haven't gotten a gluten type reaction from anything marked gluten free but I know that these foods contain ingredients by body is not use to and my reactions have been weird.
  • 0
Dx Celiacs March '09

#3 marie06

marie06

    New Community Member

  • Advanced Members
  • Pip
  • 19 posts

Posted 23 June 2009 - 10:41 AM

Has anyone else gotten sick from eating something marked Gluten free? I picked up a new type of Gluten free pizza crust that Giant Food started to carry, and got Violently ill. I used all the same products(sauce,cheese, pepperoni) that I usually use, so I know it was the crust. I thought it tasted to good to be true. I can't remember the brand name , but I have never gotten sick from Schar pizza crusts.


Yup....several times. Some Trader Joes products, Bella Monica pizza and a salad dressing. The first 2 I doubt were made on a gluten-free only line and when I turned the salad dressing around (that was marked "Gluten Free" on the front), the ingredients listed BARLEY.....so now I read EVERYTHING two and three times. :angry:
  • 0

#4 FMcGee

FMcGee

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 273 posts

Posted 23 June 2009 - 11:07 AM

I do too. I have a gluten reaction from Sweet Baby Ray's barbecue sauce, which is totally fine for most people.
  • 0

#5 Foxfire62

Foxfire62

    Community Member

  • Advanced Members
  • PipPipPip
  • 74 posts

Posted 23 June 2009 - 11:34 AM

Unless it's a company that caters specifically to celiacs, I don't buy it.
  • 0

#6 The Gigglah

The Gigglah

    New Community Member

  • Members
  • Pip
  • 6 posts

Posted 23 June 2009 - 02:33 PM

I checked and the brand was kinnikinnick. The only weird thing listed was Yeast...so not sure if it was a Gluten free yeast or not. Oh well. Thanks for the replies everyone!
  • 0

#7 Lisa

Lisa

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,799 posts

Posted 23 June 2009 - 03:21 PM

I checked and the brand was kinnikinnick. The only weird thing listed was Yeast...so not sure if it was a Gluten free yeast or not. Oh well. Thanks for the replies everyone!



Yeast should not be a problem. Kinnikinnick is an excellent company. Have you writtten or called the company and inquired about their ingredients? I'm pretty sure they they test their products for quality controll regarding the gluten free status of their products, and they have dedicated facilities.

Here's a little background:
http://consumer.kinn...fo.history.html
  • 0
Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

#8 bklynceliac

bklynceliac

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 116 posts

Posted 23 June 2009 - 05:19 PM

Yes, I would say it's extremely unlikely that you were glutened by kinnikinnick. In fact, I'm not sure I could name a company I trust more. But the good news you've just gotten a new clue about other intolerances you might have.
  • 0
Diagnosed through Enterolab (9.27.06)
Antigliadin IgA 164 (Normal Range <10 Units)
Antitissue Transglutaminase IgA 75 Units (Normal Range <10 Units)
Quantitative Microscopic Fat Score 874 Units (Normal Range <300 Units)
Fecal anti-casein (cow’s milk) IgA antibody 73 Units (Normal Range <10 Units)
HLA-DQ 2,1 (Subtype 2,5)

#9 hannahp57

hannahp57

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 370 posts

Posted 23 June 2009 - 05:40 PM

I read that you used all the same cheese sauce and things. did you double checks those? like companies say in their disclaimer they can change their ingredients at any time without public notification. I would look into that, Kinnikinnick is one of those products i trust completely and they havent ever burned me. im not totally discounting what you're saying. every company can mess up. but it could be one of those other products
  • 0

#10 JennyC

JennyC

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,013 posts

Posted 23 June 2009 - 08:19 PM

My son was getting glutened by Wellshire kids dinosaur shaped chicken nuggets. The Chicago Tribune even did an article stating that their products tested positive for gluten , at times very high levels, on numerous occasions! I am still furious. My son's tTG level went from 4 to 19 (reference range <21) during the year he was frequently eating their products. Since I removed them from his diet his tTG is back down to 3.
  • 0
Jenny

Son 6 yrs old, Positive blood work, Outstanding dietary response, no biopsy.
Household mostly gluten free since 3/07

Me: HLA-DQ 02 & 0302 (DQ 08), which I ran & analyzed myself!Currently gluten lite, negative tTG, asymptomatic

#11 nasalady

nasalady

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 445 posts

Posted 23 June 2009 - 08:26 PM

Has anyone else gotten sick from eating something marked Gluten free? I picked up a new type of Gluten free pizza crust that Giant Food started to carry, and got Violently ill. I used all the same products(sauce,cheese, pepperoni) that I usually use, so I know it was the crust. I thought it tasted to good to be true. I can't remember the brand name , but I have never gotten sick from Schar pizza crusts.


I've been glutened by Arrowhead Mills Millet Flour. I read a post on this forum that said that some Arrowhead Mills products had issues with cross contamination and sure enough, as soon as I stopped using it my symptoms went away.

Please see topic at following URL:

http://www.celiac.co...showtopic=56278
  • 0
Multiple autoimmune diseases, including celiac, Hashimoto's, psoriasis, autoimmune hepatitis, RA, SLE. Also have fibromyalgia.

Tested Fall 2008: bloodwork, biopsy negative; HLA DQ8. Doctor believes results negative due to prednisone and Imuran taken for autoimmune hepatitis.

Dx with celiac disease because of dietary response, genetics, and family history of celiac disease.


Dx with Lyme Disease Jan 2010; Lyme likely triggered some of the AI diseases.

Gluten free since 25 Nov 2008

#12 stillclueless

stillclueless

    New Community Member

  • Advanced Members
  • Pip
  • 15 posts

Posted 24 June 2009 - 08:02 PM

I've been glutened by Arrowhead Mills Millet Flour. I read a post on this forum that said that some Arrowhead Mills products had issues with cross contamination and sure enough, as soon as I stopped using it my symptoms went away.

Please see topic at following URL:

http://www.celiac.co...showtopic=56278



I would also greatly trust Kinnikinniknnikninknkkiin whatever - I love, love their products and have never had a problem and I seem to be very sensitive. I cannot, however, eat Van's gluten-free waffles. I have tried several times over the last three years with no success with that brand... Anyone else?
  • 0

#13 Fiddle-Faddle

Fiddle-Faddle

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 4,159 posts

Posted 25 June 2009 - 05:24 AM

I react quite strongly to maltodextrin, even though my gluten reactions are mild to the point of being unnoticeable at times.

At first, I was convinced that maltodextrin must contain gluten, since I was reacting to it--but apparently, it doesn't. I can only conclude that rather than being allergic to it or intolerant to it, my body simply recognizes it as something it doesn't like and tries to get rid of it quickly!

Our systems, as a rule, are awfully sensitive, what with damaged intestines, etc. So I think we are likely to react to things that aren't necessarily gluten, especially until our intestines are fully healed--which can take months.

I also had unpleasant reactions in the beginning to ALL gluten-free bread products--it felt like I'd swallowed a brick. I didn't learn until later that that is typical for a celiac with unhealed intestines.

If you've only been gluten-free for a short time, the usual (and good) advice is to avoid gluten-free bread products entirely and stick with fresh fruits, veggies, meat, fish, chicken, rice, potatoes, eggs, etc. AVOID MILK PRODUCTS, as damaged intestinal villi are unable to produce lactase, and the resulting irritation from the milk products will prevent healing.
  • 0

#14 jerseyangel

jerseyangel

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 20,938 posts

Posted 25 June 2009 - 07:01 AM

My guess is that there's something else in the crust that you are reacting to. Although Kinnikinnick is an excellent company, I can't eat their products because they use pea (legume) flour. I'm extremely sensitive to legumes, and get a reaction from them much worse that with gluten. It's as though I've been poisoned.

Another reason I can't eat certain certified gluten-free foods is that they contain tapioca or soy. Perhaps you have an additional intolerance?
  • 0
Patti


"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

#15 Bella Monica

Bella Monica

    New Community Member

  • Members
  • Pip
  • 1 posts

Posted 06 July 2009 - 07:46 AM

Yup....several times. Some Trader Joes products, Bella Monica pizza and a salad dressing. The first 2 I doubt were made on a gluten-free only line and when I turned the salad dressing around (that was marked "Gluten Free" on the front), the ingredients listed BARLEY.....so now I read EVERYTHING two and three times. :angry:


Dear Marie06

My name is Trevor Chambers and I am the owner of Bella Monica FlatBread Company. I hope this note finds you well as I was very sorry to hear that you think you may have been "glutened" by one of our products. Although I am not sure what may have caused your illness I want you to know that we do take our responsibility to make clean, safe food very seriously. All of our products are tested at the ingredient stage before production begins and retested upon completion. We use the ELISA EZ Gluten Test which will measure down to 10ppm, the level currently under consideration by the FDA for a product to be Gluten Free. We have never had batches test beyond the 10ppm limit and if we ever do test beyond 10ppm the product would never be put into distribution.

I understand your concern and if I became ill after eating something it would be suspect in my mind as well. Was this the first and only time you have tried our pizzas? Is it possible that you may have an allergy or intolerance to some other ingredient? Was there something else that you ate within a short period of time before or after eating our pizza? Was there any chance of cross-contamination during preparation? I can only assure you and all our customers that we take every precaution possible to produce a Gluten Free product and will continue to use good manufacturing practices to that end.

Dialogue with our customers provides both parties with the chance to better understand each other and ultimately make their experiences with our family’s food more fulfilling. That said, we would love the opportunity to communicate with you directly. If you into it, please feel free to contact me directly via email at trevor@bellamonica.com .


With kind regards,

Trevor Chambers
President and Owner
Bella Monica FlatBread Company
  • 0


0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: