Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

New To Celiac


MAYzar29

Recommended Posts

MAYzar29 Newbie

I am new to celiac and not sure where to start.

I am 31 and have a long list of medical problems that are really hindering my progress in life. I have always battled with diarrhea, severe bloating and gas. I also have early signs of osteoporosis/osteoarthritis with multiple surgeries for hyper mobility. I was recently looking up AVN a disease my mother has in both hips as I wanted to see if it was hereditary and for the second time in my life I was introduced to celiac. I started looking more into it and I have just about every symptom right down to having a child that was growth restricted or IUGR intrauterine growth retardation(for unknown causes); fortunately he is now healthy and seems to be growing fine. I have unexplained sores in my mouth batteled with anemia all my life and never made it over 100lbs until I was 23.

The biggest issue is that my doctor wanted to just put me on the medications to help the diarrhea and that was it. What ever happened to getting to the source of the problem. When I mentioned celiac she started to jump around trying to make me second guess myself. I guess after telling her that I was going to start wearing depends when I get in my car is what made her decide to test me. I am not sure of the results yet and this is where I am at. Where do i go from here? I have a military provider who fortunately has recently been to the conference and has the new numbers on celiac so I am able help them to get the ball rolling about this disease and hopefully getting it more awareness. What do I do in the mean time and should I start going gluten-free now? I am very emotional about this since my younger years were full of pain, embarrassment, and feeling like I could always do better in school but never I just never knew what was wrong with me. I have a brother who is just like me and I am hoping that he will get tested as well. Please help me try to get a better grasp on this before I find out if this is what I have. sad.gif

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



OptimisticMom42 Apprentice

First you have to decide if you are going to wait until the testing is done or dive right in and see what happens. If you're going to dive in, start with a simple menu and shopping list.

Here is what mine looks like.........

Breakfast

2 eggs fried in olive oil

1 banana

2cups black coffee

Lunch

apple slices

all natural peanut butter

cherry juice (real juice and water, no corn syrup or additives)

Snack

Rice Chex

Rice Milk

Supper

Meat

potato or rice

veggies

This is an easy way for me to stay Gluten, Dairy and Soy free.

Most of us have several food intolerances beyond gluten so you should read up on the elimination diet. It will teach you how to identify and eliminate foods that you are not tolerating. And it will help you find foods you can add to your menu..........like Enjoy Life Chocolate Chips :D

Hope you and your brother feel better real soon,

OptimisticMom42

Link to comment
Share on other sites
luvthelake21 Rookie

Just wanted to say welcome and you have found the best place for answers. My 13 year old daughter doctor told us she had Celiac and he could not help us on how to live gluten free but told us to come here. I have been here reading alot of the diffrent forums from the past and have learned alot over the last couple of years. Do not know the answers to you questions just wanted to say hi. :)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results

    2. - Aussienae replied to Aussienae's topic in Coping with Celiac Disease
      65

      Constant low back, abdominal and pelvic pain!

    3. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    4. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    5. - mishyj replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,220
    • Most Online (within 30 mins)
      7,748

    Random.user556
    Newest Member
    Random.user556
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bayb
      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
×
×
  • Create New...