Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

What Do I Need To Eat Before celiac disease Blood Test?
0

7 posts in this topic

Hi there

I am very sensitive to gluten and want to be tested for celiac disease.

I know that you need to eat a load of gluten before the tests, and eating wheat bread would be intolerable for so long - I would be laid out for the whole time!!!

I know that Spelt has less of an effect on me, and I would only be deeply uncomfortable for the period if I was eating Spelt bread. (And it would give me a few weeks to enjoy the wonderful Sourdough Spelt loaf that I used to love, even if I have to suffer for it...)

Is Spelt as good as standard wheat to eat before the test?

Thanks for any advice

Guy

0

Share this post


Link to post
Share on other sites


Ads by Google:

Well, we're all different, but I'd have to guess that a lesser outward reaction could mean a lesser immune response. Thus it might make the test results even more unreliable than they already are, if you were to eat spelt instead of wheat.

However, if the blood test is like the biopsy in terms of how long you need to be eating gluten, you're looking at at least six weeks of misery. And if you've already been gluten-free for awhile, the reaction may be worse. IMHO, you already know you cannot eat wheat, and if other gluten grains also effect you, then whether or not it is Celiac doesn't seem to make much difference in terms of diet. But, if it helps you to stick with it, then by all means get tested. Just keep in mind that the test results may be negative for Celiac, even if you do have it. Especially since you've apparently been gluten-free. In addition, if you decide to go for the biopsy (which many doctors insist upon before giving a firm diagnosis of Celiac), you would have to intentionally damage your small intestine by ingesting gluten for a sufficient period of time. How long that is seems to vary from person to person, but the two weeks which doctors often suggest has been repeatedly shown to be inadequate. Six weeks is usually suggested here on the board, as a minimum.

0

Share this post


Link to post
Share on other sites
Well, we're all different, but I'd have to guess that a lesser outward reaction could mean a lesser immune response. Thus it might make the test results even more unreliable than they already are, if you were to eat spelt instead of wheat.

not necessarily.

However, if the blood test is like the biopsy in terms of how long you need to be eating gluten, you're looking at at least six weeks of misery. And if you've already been gluten-free for awhile, the reaction may be worse. IMHO, you already know you cannot eat wheat, and if other gluten grains also effect you, then whether or not it is Celiac doesn't seem to make much difference in terms of diet. But, if it helps you to stick with it, then by all means get tested. Just keep in mind that the test results may be negative for Celiac, even if you do have it. Especially since you've apparently been gluten-free. In addition, if you decide to go for the biopsy (which many doctors insist upon before giving a firm diagnosis of Celiac), you would have to intentionally damage your small intestine by ingesting gluten for a sufficient period of time. How long that is seems to vary from person to person, but the two weeks which doctors often suggest has been repeatedly shown to be inadequate. Six weeks is usually suggested here on the board, as a minimum.

it really depends on which test. more than likely gliadin antibodies will be present in your blood as long as you are consuming gluten (whether wheat/rye/barley/spelt). there does, however, need to be sufficient intestinal damage to result in the breakdown of the endomysium (hence, endomysial antibodies) or TTG (tissue transglutaminase).

the intestine repairs itself very quickly; remember that the intestinal tissue (just like your skin) grows quickly and replaces itself by sloughing off older cells. this means that even with a week off of gluten, you will have much less endomysial protein or TTG in your blood to stimulate the production of antibodies. it is also why you need to be consistently consuming gluten if you intend on having an endoscopy.

0

Share this post


Link to post
Share on other sites

Thanks RiceMan and gfb1

I have been looking into it today, and do not think I can go through the 1-2 months of agony!!!! I will just assume that I am coeliac and live accordingly. It can't do me any harm. It means that I won't get all my gluten free food free on the NHS (I am from the UK), but to be honest, I know what a couple of days is like on wheat, and cannot imagine a couple of months!!!

0

Share this post


Link to post
Share on other sites

Guy - I couldn't agree more with what RiceGuy said about suffering for something you already know to be true. I'm happy to read you are going to forgo the test, because honestly what does it do for us? We eat gluten-free and are finally HAPPY and feel GREAT, then we have to torture ourselves and destroy our bodies, for a doctor to call us and say "oh, yep, you were right." Or even worse, they call and say the test shows a negative. But you were SO miserable leading up to the test, so you will go back to gluten-free anyway because that's the only time you feel great. I agree you will be happier just continuing to eat gluten-free knowing your own diagnosis.

If it was required to have a diagnosis in order to receive treatment that would be different - but since the only treatment is changing the foods you put into your body, receiving the diagnosis is just kind of.... pointless. NOW, if you had no or low symptoms (which some Celiac's do) while eating gluten, the test would be helpful since the symptoms are so mild it is hard to tell if the diet works.

Consider you have it, and consider you might pass it on as there can be family history of Celiac.

That's how I roll. B)

:D

0

Share this post


Link to post
Share on other sites




Thanks for this, TiffLovesBread

BTW - what bread do you love and how to you make it? I made my first gluten-free (sourdough) bread today using Rice, Tapioca, Potato, Gram and Sorghum flours, with a brown rice flour starter and small amounts of Xanthan Gum, sugar, honey and live yoghurt. Tasted great, but heavy as a brick!!! Any idea how to make it lighter???

0

Share this post


Link to post
Share on other sites

It might be possible to use baking powder, I use that, or you can try the artisan bread recipe where you keep the dough (gluten-free) on the kitchen counter for 8 hours, and heat a cast iron pot in the oven to very hot, and then dump the dough into the hot pot and put the lid on. I read long threads about that method where they rave about it. Should be somewhere online.

In your shoes, I might still consider going back on gluten for the diagnosis. my daughter did , despite of awful symptoms. She did get a diagnosis despite of negative tests because of these terrible symptoms on gluten and that they all went away off gluten. We get about 200dollars a month with an official diagnosis. (in cash)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,631
    • Total Posts
      918,407
  • Topics

  • Posts

    • No gluten allergy because I don't have classic symptoms of celiac
      I've been strictly gluten free for four years. Three years I went off other grains such as rice which tested very high . I have one of the genes. My mother has Celiac and I had an endoscopy for reflux and the took biopsies and Doctor said " You Do Not Have Celiac" . This is the office that said just eat a cracker before the endoscopy and it will show up if you have it. I did not eat that one cracker LOL  I don't have "typical" celiac symptoms and have tested positive for multiple food sensitivities. Having those tests done helped enormously. One   one accidental exposure last fall which gave me my first case of Dermatitis Herpetiformis which left scars )  does indicate Celiac . I'm really rattled because endoscopy for reflux said I have reflux and chronic gastritis ( and I did not know that already?) I've done so much research I have books ! and watched my mother suffer so much and this just flies in my face. So you need to trust your gut most of all( or your symptoms)  I honestly did not expect him to find anything at all but to be told with absolute certainty I do not have celiac and don't need to worry  feels nutty to me .   Next time I get the rash( I hope I don't) I will get a biopsy . 
      "Dermatitis herpetiformis, also known as DH and Duhring’s disease, is a skin manifestation of celiac disease. Extremely itchy bumps or blisters appear on both sides of the body, most often on the forearms near the elbows, as well as on knees and buttocks"
    • A good diet for avoiding type 2 diabetes
      Hey, I am a member of that forum (not very active though).  But that's exactly how I eat.  They base their diet on this site: http://www.phlaunt.com/diabetes/ A year after my celiac disease diagnosis, my GP tells me that I am prediabetic via an email.  Instructs me to improve my diet and exercise more.  What?  I exercise more that most my age.  I run, swim, bike and teach a few exercise classes.  Change my diet?  I am gluten free.  I can not give up my gluten-free goodies!  It was asking for too much.  But I did know about celiac disease and the connection to Type 1 diabetes and Type 2 runs in my family.  So I found Jenny's site.  It made sense and I continued to research more.  Bought a Walmart meter, started testing my foods and found that "snap" I had huge spikes!  Kept meticulous data for a month and went back to my doctor.  He agreed.  I am insulin resistant and the writing's on the wall.  How to stop or slow the progression?  A low carb high fat diet.  Within three days, my blood sugar readings were normal.  Keep tracking and went back to my doctor who was amazed.  He told me to keep doing what I had been doing -- and it's been 2-1/2 years! Here's a recent study from the University of Alabama: https://www.uab.edu/news/innovation/item/4997-low-carb-diet-recommended-for-diabetics Sometimes you just have to take things into your own hands.  If I had just cut down on sugar, I 'd be on drugs and insulin and struggling to keep my feet from being amputated.  That's an exaggeration (not really), but really who cares if my foot gets chopped off?  My doctor?  He's nice, but pretty busy.  No, it's all on me!   Guess what?  I am happy on my diet.  I was addicted to sugar.  What's the biggest thing to change in our diet over the last 100 years?  Sugar.  It's in everything!  California just released a study stating over 50% of all Californians are prediabetic or have diabetes and most don't even know they have it (hummm....sounds like celiac disease).   http://newsroom.ucla.edu/releases/majority-of-california-adults-have-prediabetes-or-diabetes Enough of my soapbox talk......I've got to get some stuff done!  
    • healthy bread recipe?
      One month into the diet and she's probably very constipated because she HAS celiac disease.  She needs more time to heal.  Maybe six months to a year.  Why so long?  In theory, she should heal within weeks, but it takes a long time to really master the gluten free diet and learn about cross contamination and shared manufacturing lines.  Plus, consuming lots of gluten-free items right off the bat, may be contributing more to her health problems.  We had kids on this forum who did not drop their antibody levels until they eliminated processed foods.  20 parts per million may just be too much for her to handle right now. I would recommend reading our Newbie 101 section under "Coping".  It has some nice tips.  I would strongly recommend feeding her whole foods.  She can get plenty of fiber from fruit and veggies.  I do not even eat any grains at all, but that's my choice because grains spike my blood sugar just the same as cane sugar (I have diabetes too).   After she has healed, you can introduce breads and all kinds of junk food!     By then you will not remember what real bread tastes like.  Ask my non-celiac kid.  She's likes gluten-free pasta now.  She admits that she has forgotten what real pasta tastes like.  She adores all my baked-from-scratch gluten free cakes and cookies (that I can not eat! ) When I was diagnosed, my learning curve was easy.  My hubby had been gluten free for 12 years!  So, I ate like him.  Turns out that I was reacting.  Found out that because I was in the healing stage, I could not tolerate additives like Xanthan Gum (really needed to replace gluten in bread), preservatives, etc.  found in commercial breads and baking flour mixes.  I had lots of food intolerances that eventually resolved and some did not!   Okay. Villi damaged but not gone?  Is your doctor crazy?  Your daughter has celiac disease!  I strongly recommend getting her records and lab results and getting a second opinion.  She should have been diagnosed by now.  You should be looking into keeping her safe at school with a 504 plan (but a 12 she shouldn't be playing with playdough, but colleges will have to accommodate her diet and that's coming up faster than you think!)   Welcome to the forum!  I hope this helps.  
    • Received Results. Looks like not Celiac?
      If I were in your shoes, I would first test out a histamine intolerance diet before going gluten free.  Migraines and  fatigue seems to scream histamine intolerance.  It's most widely known in Europe, but it is gaining some ground here in the US.   But, I am not a doctor and I do not know you.  What I can suggest is that you do some research and continue to advocate for your health.   If you go gluten free, then it's six months.  If you had celiac disease, it would take that long to heal or longer!  It's a hard diet to follow when your results are negative, but nothing's impossible!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,720
    • Most Online
      1,763

    Newest Member
    Fendell
    Joined