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Got My Biopsy Results What Should I Do?
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5 posts in this topic

I got a letter in the mail today indicating, my colonscopy was normal and my endoscopy indicated: normal duodenum, inflamed esophagus.

That is it! I haven't a clue what to do. Does, that mean they checked for celiac? anything? When they send the biopsies to the lab, do they check for everything/anything. I feel very confused and very frustrated that after going through such a procedure they would send a letter. I feel at a loss and wonder what I should be doing next. Anyone have this experience. Should I continue eating Gluten and then get a blood test? Who do I go to?? I feel terrified to eat Gluten after almost 1 week Gluten free.

If anyone has a suggestion, please let me know. :(

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I got a letter in the mail today indicating, my colonscopy was normal and my endoscopy indicated: normal duodenum, inflamed esophagus.

That is it! I haven't a clue what to do. Does, that mean they checked for celiac? anything? When they send the biopsies to the lab, do they check for everything/anything. I feel very confused and very frustrated that after going through such a procedure they would send a letter. I feel at a loss and wonder what I should be doing next. Anyone have this experience. Should I continue eating Gluten and then get a blood test? Who do I go to?? I feel terrified to eat Gluten after almost 1 week Gluten free.

If anyone has a suggestion, please let me know. :(

I would call your doctor immediately and ask him/her to explain it to you.

And if you don't mind me asking, have you noticed a difference being gluten-free for the week? Has it help with what ever symptoms you were experiencing?

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Yes, I feel 90% better than I did wednesday night a week ago. I am so fearful of a flare up to totally discount the gluten free factor.

My thought is, perhaps I should just remain on this type of diet, and check and see. My fear is that I feel like a poser. Like I am not really a celiac, therefore, I shouldn't be following this, since I have not been diagnosed.

I will call the doctor tomorrow, I just wonder if there are specific questions I should ask? Like did you check for celiac? what does the inflammation mean? How should I handle this?

I would call your doctor immediately and ask him/her to explain it to you.

And if you don't mind me asking, have you noticed a difference being gluten-free for the week? Has it help with what ever symptoms you were experiencing?

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I got a letter in the mail today indicating, my colonscopy was normal and my endoscopy indicated: normal duodenum, inflamed esophagus.

That is it! I haven't a clue what to do. Does, that mean they checked for celiac? anything? When they send the biopsies to the lab, do they check for everything/anything. I feel very confused and very frustrated that after going through such a procedure they would send a letter. I feel at a loss and wonder what I should be doing next. Anyone have this experience. Should I continue eating Gluten and then get a blood test? Who do I go to?? I feel terrified to eat Gluten after almost 1 week Gluten free.

If anyone has a suggestion, please let me know. :(

Definitely call your doctor and ask for additional information. An inflamed esophagus could be many things, two of which are acid reflux and Eosinophilic Esophagitis (EE), both of which can cause inflammation (my daughter has both). Ask him specifically if they did a biopsy of the esophagus and if they tested for the # of eosinophils (anything higher than I think 10 is indicative of acid reflux and/or EE).

Your doctor's office should have called you (either way). If you're not happy with what he/she tells you, get a second opinion.

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I got a letter in the mail today indicating, my colonscopy was normal and my endoscopy indicated: normal duodenum, inflamed esophagus.

That is it! I haven't a clue what to do. Does, that mean they checked for celiac? anything? When they send the biopsies to the lab, do they check for everything/anything. I feel very confused and very frustrated that after going through such a procedure they would send a letter. I feel at a loss and wonder what I should be doing next. Anyone have this experience. Should I continue eating Gluten and then get a blood test? Who do I go to?? I feel terrified to eat Gluten after almost 1 week Gluten free.

If anyone has a suggestion, please let me know. :(

Hi,

I too had a clonoscopy years ago and was told I had mild case of bowel dissorder and they basically did nothing or gave me any advice about what to do about it.

here is my story- I am 45 no but at 21 years of age I had problems with my bowels- I had an operation and was told I'll be fine. I went on my way to find that as I aged I seemed to get really bad symptoms- I went to the allergist and was tested- again nothing. I went to my doctor and was told I was fine. Very frustrating becasue I knew there was something wrong- but I couldn't figure it out.

During a very stressful divorce- my symptoms got really bad and I blew up like a blow fish- had (too many symptoms to list here-hah) very bad cramps, and was not able to get a hold of the problems- the sysmptoms I felt just got worse. I went to a naturopath and i took a voodoo type of test- but I went with the results and followed the prescription that I was given. Wow within a month I was feeling 100% better and had energy and felt good about myself. My body went back to normal and I was in good shape and feeling really good.

The problem I faced after- was it possible to maintain the lifestyle my naturopath told me to follow- NO WAY. I was eating nothing but basic basic foods and very difficult to do when you are on the road 5 days a week. So over the years I introduced new foods one at a time and thought it was at least livable.

Time moves forward and another stressfull time happened and boom- I am full blown out symptoms and no where to get advice- Now I got to my doctor and explained every sysmptom I had and my doctors said I should take a Celiac blood test.

I too am waiting to get the results- I know I have food allergies- I am not sure if it is gluten- my bet is YES! either intolerance or Celiac- either way I know how my body reacts.

Follow your instincts- you may want to try fasting on strictly soy beverages and brown rice for a few days or a week- then try eating a few peanuts- see how your body reacts. Wait a few more days and try some corn and them other foods. If it isn't Celiac- it could very well be other foods or chemicals.

I wish you the best.

Shawn

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    • Hi Lisa, I completely understand why you didn't do a biopsy on your daughter.  I went through the appendix thing myself...not fun!  I was diagnosed with just bloodwork and no biopsy, but did have the full panel.  I would go back to your PCP and ask for a full panel to include TTG, EMA and DGP tests.  Since she was already willing to test you, I'm sure she would be willing to order these.  Good luck!
    • What a gross title–it bothers me and I wrote it! It wasn't my idea originally. The research paper the data came from was entitled, "Experimental hookworm infection and gluten microchallenge promote tolerance in celiac disease" published recently in the Journal of Allergy and Clinical Immunology. View the full article
    • katesyl.........this is an older topic so the OP most likely won't answer.  I can, however, offer a piece of advice for you. Just going gluten free will probably not drive your inflammation markers down into normal.  It does depend on how high they were to begin with but with all autoimmune diseases, there will be inflammation going on forever.  Get used to wonky blood work because most of us will have that issue. I have 4 autoimmune diseases in total and, although I have driven certain inflammatory markers way down, my recent sed rate number was elevated.  The normal is supposed to be 30 and under in a woman my age but mine is 50.  With 4 AI diseases, I doubt it will ever be normal and I don't let it bother me. I am not willing to take major meds at all and use more natural anti-inflammatory supplements.  You can do whatever you feel comfortable with in regards to treatment but don't expect normal numbers with Celiac Disease. Inflammation will improve but normal?  Most people never get there completely.
    • My daughter's PCP did not go against anything, she offered to do the biopsy - I was the one opposed to it. My DD, who was 10 at the time had just spent 3 weeks in the hospital, very sick with a ruptured appendix, then had 2 surgeries a few months after. I didn't see the need to put her through anything else with her numbers so high and all the classic symptoms. Apparently, in some other countries, if your numbers are all high, they forego biopsy. Anyway, I was really asking about myself and whether I should push for add'l testing. I am still new this this and trying to get up-to-date and wasn't sure if my PCP should conduct other blood tests before I go completely gluten-free. I have been somewhat gluten-free, but not entirely. I have no problem going gluten-free, but want to make sure that I am doing it for the right reasons. I wasn't sure if the Gliadin Abs IgA was sufficient to point to Celiac and possibly doing a biopsy for me. Or if additional blood test would make more sense.   Thanks!!
    • I would like to know if you have found out the source of your inflammation yet. I'm gluten free three years but my inflammation test was high.
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