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Building A Gluten Tolerance
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Celiac disease is NOT an allergy. It is an autoimmune disease. What may work for an allergy is not going to work for Celiac disease.

I'm going to repeat myself . . .

Celiac disease is NOT an allergy. This type of therapy would be dangerous for someone with Celiac Disease.

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" while it doesn't mention gluten, I think it can be applied to it..."

NO. <_<

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... it does not mention gluten I think it can be applied to it:

Of course it can be applied to gluten, if you are ALLERGIC to it, but trying this with a celiac disease is like trying to cure diabetes buy using gradually smaller doses of insulin. It's not gonna work.

From what I've read so far, there are documented cases when diagnosed celiacs, after their symptoms disappeared on gluten-free diet, started to eat gluten again and the symptoms didn't reappear until years, in one case over 30 years, later. But at the same time, the symptoms can be so diverse that the first one you notice may as well be cancer. Is the taste of wheat really worth the risk? (IMHO, lot of gluten-free grains taste much better than wheat ;) )

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Of course it can be applied to gluten, if you are ALLERGIC to it, but trying this with a celiac disease is like trying to cure diabetes buy using gradually smaller doses of insulin. It's not gonna work.

From what I've read so far, there are documented cases when diagnosed celiacs, after their symptoms disappeared on gluten-free diet, started to eat gluten again and the symptoms didn't reappear until years, in one case over 30 years, later. But at the same time, the symptoms can be so diverse that the first one you notice may as well be cancer. Is the taste of wheat really worth the risk? (IMHO, lot of gluten-free grains taste much better than wheat ;) )

That's right. That's why a long time ago doctor's thought you could outgrown Celiac disease. When kids went gluten free they healed, their symptoms went away and the doctors told them they were cured! They could eat gluten again! Only now we know that is not true at all! Once you have Celiac disease you have it forever.

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Only now we know that is not true at all! Once you have Celiac disease you have it forever.

I'm wondering how we know this. What studies prove it? I've posted this question several times before and never gotten the answer.

Please note that I am not disputing that celiac is a lifelong disease, just wondering about research that steered the medical community away from the belief that gluten tolerance could be regained.

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I think it can be applied to it

Celiac disease is NOT an allergy. This type of therapy would be dangerous for someone with Celiac Disease.

:D

Personally, I've seen the opposite of the article. I switched to gluten-free because of non-bathroom related symptoms. After almost a year of being gluten-free, I have more symptoms now than I did before I switched to the gluten-free diet. It is VERY frustrating in the short term, but I know I am better off in the long run.

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:D

Personally, I've seen the opposite of the article. I switched to gluten-free because of non-bathroom related symptoms. After almost a year of being gluten-free, I have more symptoms now than I did before I switched to the gluten-free diet. It is VERY frustrating in the short term, but I know I am better off in the long run.

I have had similar issues. I had a very rapid improvement when I went gluten-free, then I started to deteriorate again. As I eliminated various things I found that I am sucrose (sugar), soy, and casein (I knew this from my lab work but didn't want to accept it) intolerant. I actually have an almost immediate response to soy that is even worse than my gluten response.

I'm doing much better now, and I'm losing weight for the first time in 20 years.

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I think when you're immune system isn't constantly bombarded with stuff it finds issue with it can mount a stronger attack when it does find badness. So lets say your immune system is working at 80% trying to deal with what it thinks is a foreign invader, gluten. It doesn't have the resources to deal so much with soy and casein, or whatever else is bugging you. So when it finally calms down from the gluten it might have additional resources to apply to other things it dislikes. That's what I think happens.

And when you finally get everything out that your body dislikes... then when you get accidentally glutened you're going from 0% immune response to 100% and it's a pretty violent shift.

Anyway that's how I think of it. :)

I think allergies operate similarly, I heard some allergy doctors talking about a patient who wasn't allergic to ferrets. His ferret died, he got a new one, and suddenly he was allergic. They suggested he probably was allergic before but his immune system getting a rest from it responded much, much stronger when he got the new ferret.

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I'm wondering how we know this. What studies prove it? I've posted this question several times before and never gotten the answer.

Please note that I am not disputing that celiac is a lifelong disease, just wondering about research that steered the medical community away from the belief that gluten tolerance could be regained.

I don't have a scientific link to post here for you. All I know is that reading the signatures of members and hearing their stories, I am convinced it is true. I have to keep in mind there's a lot the medical community doesn't know about celiac disease and what they seem to know, they argue about like the different genes linked to it.

I'm not looking for a cure because I don't think I would believe the truth of it anyway. I have been overlooked by dr's for years from their ignorance and I have seen many "great" drugs pulled after they killed people. I have to go with my gut and my gut says I'm off gluten for life.

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I'm wondering how we know this. What studies prove it? I've posted this question several times before and never gotten the answer.

It's just a theory. Leading and generally accepted theory based on current research. There's nothing like proving a theory right in science. You can prove it wrong or prove the opposing theory wrong to support the original theory. It like you don't get "true" and "false" theories, just "false" and "not-yet-false" ones.

Maybe someone should go through medical records and find out what happened to all those "cured" celiacs, who were diagnosed while CS was believed to be a childhood disease. It would be a good topic for some med student disertation.

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    • Advil (ibuprofen) is gluten-free, but can be a stomach irritant, especially if taken on an empty stomach. That said, I will also place my bet on the garlic and onions. As Raven said, eating more than once a day may also help. An empty stomach is likely to be an irritable stomach.
    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
      1 activated vitamin b12 daily
      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
    • Thank you. This is really helpful. I will call around next week.  I just want to heal! 
    • My endoscopy showed i had decreased folds in my duodenum. The biopsy came back and showed that my villi were fine... i have been on a gluten free diet for 6 years because i was just told i was intolerant but never had any testing before. when i eat gluten i get sick for 2 weeks. i came down with issues of other foods in march so they were trying to figure out why and wanted to know if i had celiac are not because that would explain why dairy and fructose are a problem.. both intolerant test for both were negative but the fructose test made me extremely sick but it was negative...      Im trying to figure out why i have decreased  folds in the first place. my Gi doctor is stumped on that to why the endoscopy would show damage but the under the microscope are fine. She is going to call the dr who did my scope and then is supposed to get back to  me..    would being gluten free for 6 year make it so there was damage and then my vili are now fine but still cant be seen in the endoscope?
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