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Building A Gluten Tolerance
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Celiac disease is NOT an allergy. It is an autoimmune disease. What may work for an allergy is not going to work for Celiac disease.

I'm going to repeat myself . . .

Celiac disease is NOT an allergy. This type of therapy would be dangerous for someone with Celiac Disease.

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" while it doesn't mention gluten, I think it can be applied to it..."

NO. <_<

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... it does not mention gluten I think it can be applied to it:

Of course it can be applied to gluten, if you are ALLERGIC to it, but trying this with a celiac disease is like trying to cure diabetes buy using gradually smaller doses of insulin. It's not gonna work.

From what I've read so far, there are documented cases when diagnosed celiacs, after their symptoms disappeared on gluten-free diet, started to eat gluten again and the symptoms didn't reappear until years, in one case over 30 years, later. But at the same time, the symptoms can be so diverse that the first one you notice may as well be cancer. Is the taste of wheat really worth the risk? (IMHO, lot of gluten-free grains taste much better than wheat ;) )

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Of course it can be applied to gluten, if you are ALLERGIC to it, but trying this with a celiac disease is like trying to cure diabetes buy using gradually smaller doses of insulin. It's not gonna work.

From what I've read so far, there are documented cases when diagnosed celiacs, after their symptoms disappeared on gluten-free diet, started to eat gluten again and the symptoms didn't reappear until years, in one case over 30 years, later. But at the same time, the symptoms can be so diverse that the first one you notice may as well be cancer. Is the taste of wheat really worth the risk? (IMHO, lot of gluten-free grains taste much better than wheat ;) )

That's right. That's why a long time ago doctor's thought you could outgrown Celiac disease. When kids went gluten free they healed, their symptoms went away and the doctors told them they were cured! They could eat gluten again! Only now we know that is not true at all! Once you have Celiac disease you have it forever.

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Only now we know that is not true at all! Once you have Celiac disease you have it forever.

I'm wondering how we know this. What studies prove it? I've posted this question several times before and never gotten the answer.

Please note that I am not disputing that celiac is a lifelong disease, just wondering about research that steered the medical community away from the belief that gluten tolerance could be regained.

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I think it can be applied to it

Celiac disease is NOT an allergy. This type of therapy would be dangerous for someone with Celiac Disease.

:D

Personally, I've seen the opposite of the article. I switched to gluten-free because of non-bathroom related symptoms. After almost a year of being gluten-free, I have more symptoms now than I did before I switched to the gluten-free diet. It is VERY frustrating in the short term, but I know I am better off in the long run.

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:D

Personally, I've seen the opposite of the article. I switched to gluten-free because of non-bathroom related symptoms. After almost a year of being gluten-free, I have more symptoms now than I did before I switched to the gluten-free diet. It is VERY frustrating in the short term, but I know I am better off in the long run.

I have had similar issues. I had a very rapid improvement when I went gluten-free, then I started to deteriorate again. As I eliminated various things I found that I am sucrose (sugar), soy, and casein (I knew this from my lab work but didn't want to accept it) intolerant. I actually have an almost immediate response to soy that is even worse than my gluten response.

I'm doing much better now, and I'm losing weight for the first time in 20 years.

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I think when you're immune system isn't constantly bombarded with stuff it finds issue with it can mount a stronger attack when it does find badness. So lets say your immune system is working at 80% trying to deal with what it thinks is a foreign invader, gluten. It doesn't have the resources to deal so much with soy and casein, or whatever else is bugging you. So when it finally calms down from the gluten it might have additional resources to apply to other things it dislikes. That's what I think happens.

And when you finally get everything out that your body dislikes... then when you get accidentally glutened you're going from 0% immune response to 100% and it's a pretty violent shift.

Anyway that's how I think of it. :)

I think allergies operate similarly, I heard some allergy doctors talking about a patient who wasn't allergic to ferrets. His ferret died, he got a new one, and suddenly he was allergic. They suggested he probably was allergic before but his immune system getting a rest from it responded much, much stronger when he got the new ferret.

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I'm wondering how we know this. What studies prove it? I've posted this question several times before and never gotten the answer.

Please note that I am not disputing that celiac is a lifelong disease, just wondering about research that steered the medical community away from the belief that gluten tolerance could be regained.

I don't have a scientific link to post here for you. All I know is that reading the signatures of members and hearing their stories, I am convinced it is true. I have to keep in mind there's a lot the medical community doesn't know about celiac disease and what they seem to know, they argue about like the different genes linked to it.

I'm not looking for a cure because I don't think I would believe the truth of it anyway. I have been overlooked by dr's for years from their ignorance and I have seen many "great" drugs pulled after they killed people. I have to go with my gut and my gut says I'm off gluten for life.

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I'm wondering how we know this. What studies prove it? I've posted this question several times before and never gotten the answer.

It's just a theory. Leading and generally accepted theory based on current research. There's nothing like proving a theory right in science. You can prove it wrong or prove the opposing theory wrong to support the original theory. It like you don't get "true" and "false" theories, just "false" and "not-yet-false" ones.

Maybe someone should go through medical records and find out what happened to all those "cured" celiacs, who were diagnosed while CS was believed to be a childhood disease. It would be a good topic for some med student disertation.

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    • This is EXACTLY what happens to me. It has twice now and both times was after both glutening episodes but once it was the day after and the other time it was a week and a half. So I'm still not sure if it's related or strange bug bites...

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    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
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    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
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