Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Pyloric Stenosis, Raynaud's, And Celiac
0

14 posts in this topic

I had pyloric stenosis that was corrected surgically when I was a few weeks old. I've had Raynaud's for years and just recently was diagnosed with Celiac, I am about to get tested for Crohn's. Are these diseases related?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I don't know about the pyloric stenosis but the others are all auto immune conditions. One theory about pyloric stenosis is that it is an allergic reaction.

0

Share this post


Link to post
Share on other sites
I had pyloric stenosis that was corrected surgically when I was a few weeks old. I've had Raynaud's for years and just recently was diagnosed with Celiac, I am about to get tested for Crohn's. Are these diseases related?

I was just told I have celiac sprue last month and on top of that I also have endometriosis, raynaulds and am now in the process of confirming a diagnosis of rheumatoid arthritis and possible hypoparathyroidism. I think celiac's can act as a domino effect if it isn't found soon enough. I've read that some people's other problems can lessen or go away with the diet. I've definitely noticed some relief in other areas when I'm doing well with the diet (I'm still struggling a month into this with cross contamination and faulty label reading). But when it's right, everything goes away for me - the joint pain, belly bloat, the ice blocks for hands and feet, etc, etc. :)

Good luck! The good days make it worth everything.

0

Share this post


Link to post
Share on other sites
I had pyloric stenosis that was corrected surgically when I was a few weeks old. I've had Raynaud's for years and just recently was diagnosed with Celiac, I am about to get tested for Crohn's. Are these diseases related?

I also had pyloric stenosis corrected as a newborn. I don't think it's related to celiac disease, but anyway here's two of us. I believe that my mom was celiac; if yours is as well, then maybe there's the connection. Maybe we should ask Will Ferrell; he has the most famous pyloromyotomy scar (those of us born in the '60s have a gigantic scar from the operation) going.

0

Share this post


Link to post
Share on other sites

My son had pyloric stenosis surgery in '83. He doesn't have celiac disease but I do....

0

Share this post


Link to post
Share on other sites




wow, i had pyloric stenosis also (surgically corrected at a few weeks old)

0

Share this post


Link to post
Share on other sites

I also had pyloric stenosis corrected a 5 weeks old. I have Hashimoto's and now suspect gluten is an issue. I recently had a saliva test that showed slightly low IgA and elevated gliadin antibodies. I've read that a gluten free diet can help with thyroid antibodies. Anyone find this to be true?

wow, i had pyloric stenosis also (surgically corrected at a few weeks old)
0

Share this post


Link to post
Share on other sites

wow this is interesting. I may have to do some googling...

My brother, born in 1960, had pyloric stenosis.... and now has diverticulitis.

I have had a rash (now resolving on the gluten-free diet) that has many of the characteristics of DH.

Another brother has a rash, also on his legs....his doctor is treating it like excema...

My niece has benefited from a gluten free diet, as my daughter has.

no diagnosed celiacs in the family (yet) but certainly seems like there are gluten connections.

0

Share this post


Link to post
Share on other sites

Would make an interesting research study.

0

Share this post


Link to post
Share on other sites

I did do some googling, but I couldn't come up with any references that indicated a link or a causal relationship between pyloric stenosis or celiac or gluten intolerance.

However, I did find out that pyloric stenosis is genetic. So if it happens that you have family members that had PS, and family members with celiacs.... it probably just means your gene pool is doubly blessed :lol:

0

Share this post


Link to post
Share on other sites
I also had pyloric stenosis corrected as a newborn. I don't think it's related to celiac disease, but anyway here's two of us. I believe that my mom was celiac; if yours is as well, then maybe there's the connection. Maybe we should ask Will Ferrell; he has the most famous pyloromyotomy scar (those of us born in the '60s have a gigantic scar from the operation) going.

my little brother had quite the scar from his operation. My mother used to tell him he was special, like one of Dr. Seuss's Star Bellied Sneetches.

0

Share this post


Link to post
Share on other sites

I found this:

Children between 9 and 24 months tend to present with bowel symptoms and growth problems shortly after first exposure to gluten-containing products, pyloric stenosis[4] sometimes being a factor. Older children may have more malabsorption-related problems and psychosocial problems, while adults generally have malabsorptive problems. Many adults with subtle disease only have fatigue or anaemia. [2]

http://wapedia.mobi/en/Coeliac_disease

0

Share this post


Link to post
Share on other sites

I was diagnosed with Celiac's in April of 2010. I also was born with pyloric stenosis, which was surgically corrected when I was 8 weeks old. I have wondered since my recent diagnosis if there was any relation between celiac's and pyloric stenosis. Sounds like it could be possible!

0

Share this post


Link to post
Share on other sites

Old topic, but I've just been trying to find if there was a link, was googling and this came up. ;)

Reading another thread about children got me thinking about my children.

My son had pyloric stenosis which was surgically treated when he was 5 weeks old. I tested positive on the celiac blood test, and am awaiting confirmation by biopsy, but my son has had a bloated looking belly since he was born, and I've noticed that he never wants lunch.

Since doing the gluten challenge, and noticeing how my stomach never seems empty, always full and bloated, well.....it made me wonder. He has weetbix for breakfast......

If there is a link at all, I wonder if it's being carried by someone with untreated celiac, or if it's when they are first introduced to any gluten containing products. ie if they had any formua, or if the breast milk contained gluten.....

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,146
    • Total Posts
      919,572
  • Topics

  • Posts

    • Hi, I am 20yrs old and have had this weird stomach pains on and off for 2 years. They started by just having pains on my left side when I sucked in or pressed on my tummy. In the last 3 months they have gotten really bad, with a lot of bloating and used to occur almost every time just before bed I would get bloated, and feel constipated like I just needed a hole in my stomach to release the pressure. I have had tests for lactose and gluten, and they both came back negative. I was not having any gluten at the time of the test which I have read can affect the results. I had little help from my doctor so I went gluten free which was working really well and I would only have pain once every two weeks. The last three nights were awful, I was in so much pain I struggled to walk, and again they would go away in the morning. I looked like I was pregnant and relief was only through passing wind (sorry for the detail!). I was wondering if anyone has had similar experience, or could point me in a direction to help me. The weird thing is that I did have gluten one day and that didn't seem to affect me at all. Then I will have something like vegemite (I'm from Australia) and this is the only thing that I can think off that would set me off (it contains wheat). So I don't really know what do to or where to go, these stomach pains have been heightened since I had a horrible gastro for a week, and went to hospital. Could it be possible that my gut lining has been damaged? I have become really stuck on what I should do next, as tonight my stomach is fine, I actually feel hungry (previously I have felt super full as a result of being bloated), so I have no idea what triggered that horrible episodes before I went to bed for the last few nights. Any thoughts or suggestions would be amazing, thank heaps
    • I found when I went gluten free I started eating more dairy and that gave me worse stomach aches and bloating than the gluten did. So now I have to avoid gluten and dairy.  Maybe you have a similar problem with something you are eating.  I hope you feel better soon.  
    • Hi! I received my "official" celiac diagnosis last week. I had an endoscopy last month that was originally looking for ulcers and h. pylori, but they did some biopsies of my duodenum since they were in the neighborhood and the biopsy came back "consistent with Celiac's disease" and later. They urged me to get my blood checked and follow up with my primary doctor. My blood work came back negative, but my doctor was confident it's Celiac so told me to stay away from gluten. I've been completely gluten free (or to the best of my knowledge) for 2 weeks now, and my results are mixed. At first, I felt great! My stomach was no longer CRAZY bloated once I stopped eating pasta and bread, my acne started healing, and the red rash on the back of my arms started to fade. That was the first few days. Lately, though, my acne is once again flaring up and I've been SO EXHAUSTED. I feel so tired all the time. Even now I have fatigue in my head, limbs, and I could hardly walk or move my body earlier today. I'm overweight and I like to go to the gym, but what used to be an easy workout for me is kicking my ass! I used to go to the gym and tear it up: HIIT on the treadmill followed by 40 minutes of heavy weight lifting. Now I can hardly finish 3 reps in my first set without feeling like a nap. I can't run anymore because my body feels clumsy and heavy. Also, I'm still bloated. I don't suffer from painful, acute bloating, but I struggle to pass gas and I look like I have pregnant belly. I think I'm also retaining water all over my body, and I'm not sure if that's normal? For whatever reason, I have this belief that water is mainly retained in the core and not arms, legs, and face. Anyway, I'd love to hear what you have to say/what you've experienced. Is this typical to first going gluten free?
    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,178
    • Most Online
      1,763

    Newest Member
    Sarah.e.may9602
    Joined