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Celiac.com Celiac Disease & Gluten-Free Diet Forum: Misdiagnosis - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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#1 User is offline   Lori and Kieran 

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Posted 10 July 2009 - 03:58 AM

I was wondering if anyone's DH has ever been misdiagnosed as impetigo. Ever since I was a child I will break out in a rash which I think is poison ivy and when it eventually gets to the point of going to the doctor they tell me that I have impetigo. I keep myself clean so, I really don't think I should be developing impetigo on a regular basis. Thanks.
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#2 User is offline   mindyandy420 

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Posted 10 July 2009 - 04:54 AM

Impetigo? I thought you can only get rid of impetigo with medicine? I had impetigo once (ex boyfriend and I go into a fight and he drug me across the floor and I got carpet burns this is how) and the only way to get rid of it was medicine. I dont think you can just break out with impetigo.

Just my opinion. Find a different dr next time.
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#3 User is offline   Lori and Kieran 

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Posted 10 July 2009 - 05:13 AM

View Postmindyandy420, on Jul 10 2009, 05:54 AM, said:

Impetigo? I thought you can only get rid of impetigo with medicine? I had impetigo once (ex boyfriend and I go into a fight and he drug me across the floor and I got carpet burns this is how) and the only way to get rid of it was medicine. I dont think you can just break out with impetigo.

Just my opinion. Find a different dr next time.



I was given medicine and it did eventually go away. I'm just so new at all of this. I'm trying to put all the pieces together. Thanks for your response.
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#4 User is offline   angieInCA 

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Posted 10 July 2009 - 05:35 AM

I had severe rashs when I was a kid that ran up and down my arms and down the back of my legs. I don't remember what was done about them but I do know I was never diagnosed with DH till I was 48. All my life I would get rashes or itchy bumps and I saw countless Dr.s and Dermatologists and none of them ever tested me for DH. I was given pleanty of creams and sent on my way to try them out. Of course the rash would clear up some and then I would break out again and be given yet another cream to try. It wasn't until I asked to be tested for DH that I was finally tested and diagnosed.
Transplanted Southerner in Sunny So.Cal.
Misdiagnosed 47 years
Diagnosed Gluten Intollerent Aug. 22. '08
Blood Tests Weak Positive to Negative probably due to low Gluten intake for 8 weeks before testing.
Opted not to have Biopsy.
Positive DH testing Oct. 30,'08
Gluten free since Oct. 28, '08
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#5 User is offline   Lisa16 

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Posted 10 July 2009 - 09:29 AM

Once (a blister popped and got infected.) But mostly mine was misdiagnosed as shingles. I had "shingles" three different times within a short period.

A dermatologist figured it out. That's how I got diagnosed. Smart dermatologist.
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#6 User is offline   declan 

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Posted 10 July 2009 - 03:02 PM

I donīt remember what the diagnosis was when i was a child, but it was not DH. I have however a clear recollection of the doctor (with the same surname as me) saying, there is nothing we can do for the rash Mrs D, he will die before he is 40. Put bicarbonate of soda on the rash and that should help. It did, the pain was better than the itching!

Now iīm so glad i have Dapsone, I donīt have any of the side effects that others speak of, and since they stopped manufacturing it here in Spain, i have found the designated Pharmacist to supply then to named patients in this area. Boy, was i scarred that i was going back to itching.

declan
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#7 User is offline   ravenwoodglass 

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Posted 11 July 2009 - 10:45 AM

Yes, my DH was misdiagnosed as 'poison ivy in my bloodstream' Although no doctor even called it impetigo I was sent home from school more than once during bad outbreaks because the school nurse was sure that was what it was. We had to get a note from my clueless derm stating that no it wasn't impetigo it was 'poison ivy'. Impetigo is an infection and can be cleared up with antibiotics.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
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#8 User is offline   ang1e0251 

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Posted 15 July 2009 - 11:13 AM

Impetigo is a bacterial skin infection usually caused by the skin being scatched open then infected. This is because the child usually has an itchy rash or bug bite. Children can have nails with any kind of bacteria, but impetigo is either staph or strep depending on the type. If you had impetigo, then you may have had a rash, maybe DH?, then scratched it to infection. My friend's grandson has had it frequently as he suffers from skin rashes.
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