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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Ouch! Now What Do I Eat?
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17 posts in this topic

Newbie - going on week 3 gluten-free.

Was starting to feel so much better and then I made some bad choices and am paying dearly with GI upset, fatigue, nauseau, and severe mood swings (mostly between nasty/irritable to crying for no reason).

I'm hungry but the usual "safe" lunch salad does NOT appeal to me since I'm having so much cramping and diarrhea. I used to eat saltines and coke when my stomach was upset (imagine that making me feel better now :)

What do you eat when your tummy hurts and you are making fast trips to the bathroom? Due to complications, and recent illness and surgeries, I've lost too much weight and really cannot afford to skip meals right now.

Without rolling your eyes so hard in your head they might get stuck, please help me out with these two ingredients.

Teriaki sauce (NOW I know, but the company said their sausages are gluten-free and I feel like a bumblehead for not checking my list first) - ingested last night: onset of symptoms

Worstechire sauce (Lea and Perrins) - 2 tsp in main dish. Ingested Monday night: mild discomfort began. Wasn't sure if it was this or just eating beef, which I rarely eat

I'm guessing (since I'm at work and can't read a label right now) from how I am feeling that both are probably made of gluten with a dash of food coloring.

What do you use to substitute for these when you are cooking? I have several recipes I'd like to keep using, but need to know what to use instead.

Many hugs to those out there today - I could use one myself today.

- Robin

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Lea & Perrins is gluten-free. I don't know about the other. There are gluten free crackers out there that make my stomach feel better. I buy them from http://www.glutensoluctions.com, they are Glutino brand. Good luck!!

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If you are in the U.S., the Lea and Perrins worchestershire sauce is gluten-free. If you are in Canada, it is not gluten-free. Teriyaki sauce usually does have wheat in it, but not always. It depends on the brand. I'm not absolutely sure which brands are gluten-free (Angostura might be) right now. You can also do a google search and find a recipe for making your own. It's not hard.

richard

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These are some brands of food that Richard(lovegrov) posted a while back. These brands will list wheat,rye, barley, oats on the label. If you do not see one of those ingredients on their labels then they are safe for us.

Aunt Nelly's

Balance

Baskin Robbins

Ben & Jerry

Betty Crocker

Blue Bunny

Breyers

Campbells

Cascadian Farms

Celestial Seasonings

Country Crock

Edy's

General Mills

Good Humor

Green Giant

Haagen Daz

Hellman's

Hershey

Hormel

Hungry Jack

Jiffy

Knorr

Kozy Shack

Kraft

Libby's

Lipton

Martha White

McCormick

Nabisco

Nestle

Old El Paso

Ortega

Pillsbury

Popsicle

Post

Progresso

Russell Stover

Seneca Foods

Smucker

Stokely's

Sunny Delight

T Marzetti

Tyson

Unilever

Wishbone

Yoplait

Zatarain's

When my stomach hurts I eat rice or mashed potatoes and have some peppermint tea.

Also you may want to get on a good probiotic and enzyme.

Ensure Plus is a good way to get some calories and they are gluten free. Make sure if you try them you chill them because they taste much better that way.

Also have you made sure you are gluten free completely? Have you checked lipsticks and so forth?

You also need to give it time to feel better. It took me 3 months to feel a big difference and then another few months to get back to normal.

http://www.celiac.com/st_main.html?p_catid=12

Here is a link to safe and forbidden lists you may find helpful as a guideline...you just need to be careful with what you eat and make sure it is gluten-free before you eat it...you don't want to give your body damage and make yourself feel like crap....best of luck :D

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I can relate to how you feel completely. Once my glutened symptoms come on, my appetite is completely diminished if I have any at all.

I build the courage to eat some rice, steamed veggies things along those lines. There is a brand of soy sauce (for the life of me I can not remember the name) that I have found in every grocery store I've shopped in (Giant, Kroger, Food Lion, Meijer) and its a blue label. I've found no wheat ingredients and this brand also makes a wonderful teriyaki sauce. I'll post the name of it when I have a chance to spot it at home tonight.

If you enjoy rice, another cooking concept is I will cook it then, toss it in a frying pain with a bit of butter spray or oil and some garlic salt and cook it up nicely almsot so its a bit crunchy! Great for something different and fairly mild to the stomach.

Good luck.. and as I learned just obsessively read those package labels!! :)

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"There is a brand of soy sauce (for the life of me I can not remember the name) that I have found in every grocery store I've shopped in (Giant, Kroger, Food Lion, Meijer) and its a blue label. "

LaChoy. Also Kroger (last time I checked) and San J Wheat-Free tamari.

richard

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When I'm not feeling well, and want something easy on my intestines, I make chicken soup with rice - a big pot, so I can have leftovers in the fridge. Chicken, well cooked rice, cooked carrots, and cooked onions are - for most people - not too hard on the intestines, and has the taste/smell of comfort food (to me, anyway).

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Chicken and Rice Soup always helps me out.

Buy couple of bone in checken breasts.

Boil them in a pot with salt, pepper, herbs, garlic cloves, diced carrots, onion, and yellow food coloring (makes it look like the real stuff).

Cook for around an hour. Add water if you lose too much to steam and evaporation.

Take chicken out.

"Pick" out chicken meat from bones. Add meat back to soup (discard bones) Salt and pepper to taste.

Add some spinach and serve......yum yum! (or you just buy Healthy Choice Chicken and Rice soup) :D

Hope this helps,

Bronco

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I find bananas, apples, cooked carrots and cooked buckwheat soothing to an insulted bowel. :P

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I love that - "insulted bowel"!

I had a bowl of hot cereal (quinoa flakes) and some cooked yam mixed in this morning and so far that seemed to be a pretty good idea. I have also in the past mixed cooked butternut squash in with my hot cereal. It's really good, believe it or not.

Stephanie

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Hi Kaiti,

I saw that you mentioned lipsticks. Do you know which brands are gluten free?

Thanks,

June :D

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Continuous color by CoverGirl is supposed to be gluten free.....

I use almost all Bare Escentuals...their whole makeup line is gluten free so it makes it alot easier.

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Wow Kaiti,

That was a fast response!! Thanks! Thats good to know since I have some BareEscentuals lipsticks. :D

June

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LaChoy also produces a wheat-free Teriaki sauce. Chun King Soy sauce is also gluten-free (last I checked. I haven't seen it in a while.) STAY AWAY FROM KIKKOMAN! I have a little bottle of LaChoy in my desk, for those times someone in the office suggests sushi. :)

As far as I can tell, French's Worchesterchire sauce is gluten-free as well. (No reactions from me, and the ingredient list is safe.)

As for comfort food, if you're a pasta person, there are several GREAT lines of gluten-free pasta. Combine those with a nice pasta sauce and you're set (I really like the Classico line of pasta sauces; all are gluten-free. Their Sun-Dried Tomato and 4 Cheese Alfredo sauces are to die for! Mix in some chicken and top on some Pastariso Linguini [below] and you have a meal that beats anything from Olive Garden or Macaroni Grill!

-Quinoa Harvest (RED STRIPE ON LABEL. The ones with the BLUE STRIPE on the label are whole-wheat.) This is a great, high-protein, high-fiber line of pasta. Quinoa is mixed with corn to give it its unique nutty taste and high protein content. I really like the shells and elbow pastas. My non-celiac wife loves this stuff too.

-Pastariso Rice Pastas. Spaghetti, Linguini, Lasagna, Rotelli. For the spaghetti-style stuff, I prefer this brand. It has the best consistency, I think, in comparison to the Quinoa Harvest spaghetti noodles.

The key is to READ EVERYTHING. Even when a manufacturer states that their stuff is gluten-free, I check the label.

I would suggest taking a trip to your local health food store, and take a look around. There's LOTS of stuff to choose from these days, including gluten-free bread from Food For Life, and doughnuts from Ener-G Foods. Usually, the people who work there know enough about a gluten-free diet to help you out. Mother's Market, Wild Oats and Whole Foods are particularly good, at least in my neighborhood.

Cheers,

-Pat

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Since going gluten-free a month ago, I can't eat things that I could before. Tomato based products (that I think are safe) are bothering me. But my stomach burns, I eat and within 30 minutes I feel hungry again. Someone mentioned L-Glutamine tabs which seem to help some. I guess I am just impatient and want to be well NOW!!

Fonda

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It just takes time Fonda. You will get there! :D

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After having a couple bad days here recently, I made some tapioca pudding today....had a nice bowl of warm tapioca pudding. It really felt soothing and I think I have found a new comfort food. :P

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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
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