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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Red Rash On Forearms
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5 posts in this topic

I posted this under someone else's topic in another catergory so I thought I would repost it here.

I am dealing with a crazy rash on my arms. Mine are tiny red raised bumps that are forming a huge raised patch on both of my forearms and are now extending up past my elbows. They are extremely itchy. I don't have blisters that I can see, but when I scratch them I can feel a watery liquid. Even though it has raised bumps my skin feels slick like everything is burned together. I have had them since last Wednesday and no medicine is working on it. I suspected my daughter as having celiac and she was diagnosed with DH in May. I went gluten free with her to make it easier on her. We both ended up getting glutened last week. She has a few bumps, I have a ton. Any idea what this could be. Thanks, Claudia

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Could be exactly what you think it is, DH. Why don't you go have it tested where your daughter was tested? As you know, celiac disease is hereditary.

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Hi ang1e0251,

Thanks for your reply. I didn't get it tested because we don't have insurance anymore. With all of my daughters health problems they raised it twice in one year and we couldn't afford it anymore. The itching isn't as bad as it was, but the bumps are still there. We are double checking everything we eat now and we are making sure we are gluten free. I don't want her to get as sick as she was last year. She missed her junior year of high school and was on the homebound program. She also doesn't want the rash to come back like it was in March. It lasted 2 months.

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Hi ang1e0251,

Thanks for your reply. I didn't get it tested because we don't have insurance anymore. With all of my daughters health problems they raised it twice in one year and we couldn't afford it anymore. The itching isn't as bad as it was, but the bumps are still there. We are double checking everything we eat now and we are making sure we are gluten free. I don't want her to get as sick as she was last year. She missed her junior year of high school and was on the homebound program. She also doesn't want the rash to come back like it was in March. It lasted 2 months.

Wow, I'm sorry to read that you and your daughter have to deal with DH. After living with it for about ten years undiagnosed (and have only been self diagnosed since March) I can tell you that nothing you use topicly will help, I'v tried everything! The only thing that makes a diffrence is a STRICT gluten free diet. Be careful about soap, lotion, makeup, shampo, ect. I have dicovered that those items can contain gluten as well! After my last rash I tried to figure out what I ate that had gluten in it and came up empty handed, while the rash stayed for days I finaly figured out it was a new body lotion! Once I switched back to my old stand by the rash cleared up. Good luck, I hope this helps.

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Thanks for your reply. Sorry it has taken me so long to get back to you. My internet has been off and on for about a month and a half. AT&T has been having problems with it. Thanks for reminding me about lotions. I totally forgot to check that. Thank goodness it has gone away. My forearms now have scarring on it that looks like I've had a bad burn that has healed.

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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
    • High Positive Test Results - Your thoughts please...
      With blood results like these, your husband most definitely has Celiac Disease.  The biopsy is just to check to see how much damage.  Keep in mind that even with high, high test scores like these, damage can still be patchy. Although I would be very surprised if they didn't find enough with numbers like these!  Thank goodness he was able to have a definitive diagnosis and reason for his symptoms!  Good luck!
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