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Red Rash On Forearms
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5 posts in this topic

I posted this under someone else's topic in another catergory so I thought I would repost it here.

I am dealing with a crazy rash on my arms. Mine are tiny red raised bumps that are forming a huge raised patch on both of my forearms and are now extending up past my elbows. They are extremely itchy. I don't have blisters that I can see, but when I scratch them I can feel a watery liquid. Even though it has raised bumps my skin feels slick like everything is burned together. I have had them since last Wednesday and no medicine is working on it. I suspected my daughter as having celiac and she was diagnosed with DH in May. I went gluten free with her to make it easier on her. We both ended up getting glutened last week. She has a few bumps, I have a ton. Any idea what this could be. Thanks, Claudia

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Could be exactly what you think it is, DH. Why don't you go have it tested where your daughter was tested? As you know, celiac disease is hereditary.

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Hi ang1e0251,

Thanks for your reply. I didn't get it tested because we don't have insurance anymore. With all of my daughters health problems they raised it twice in one year and we couldn't afford it anymore. The itching isn't as bad as it was, but the bumps are still there. We are double checking everything we eat now and we are making sure we are gluten free. I don't want her to get as sick as she was last year. She missed her junior year of high school and was on the homebound program. She also doesn't want the rash to come back like it was in March. It lasted 2 months.

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Hi ang1e0251,

Thanks for your reply. I didn't get it tested because we don't have insurance anymore. With all of my daughters health problems they raised it twice in one year and we couldn't afford it anymore. The itching isn't as bad as it was, but the bumps are still there. We are double checking everything we eat now and we are making sure we are gluten free. I don't want her to get as sick as she was last year. She missed her junior year of high school and was on the homebound program. She also doesn't want the rash to come back like it was in March. It lasted 2 months.

Wow, I'm sorry to read that you and your daughter have to deal with DH. After living with it for about ten years undiagnosed (and have only been self diagnosed since March) I can tell you that nothing you use topicly will help, I'v tried everything! The only thing that makes a diffrence is a STRICT gluten free diet. Be careful about soap, lotion, makeup, shampo, ect. I have dicovered that those items can contain gluten as well! After my last rash I tried to figure out what I ate that had gluten in it and came up empty handed, while the rash stayed for days I finaly figured out it was a new body lotion! Once I switched back to my old stand by the rash cleared up. Good luck, I hope this helps.

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Thanks for your reply. Sorry it has taken me so long to get back to you. My internet has been off and on for about a month and a half. AT&T has been having problems with it. Thanks for reminding me about lotions. I totally forgot to check that. Thank goodness it has gone away. My forearms now have scarring on it that looks like I've had a bad burn that has healed.

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    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
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