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Depression
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Hi, ive just found this site and im extremely concerned about my partner. She is currently being tested for Celiac after her 1st blood test was only borderline for positive. It

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Depression does go with celiac. When she is gluten free that will clear up as she starts to feel better. Different people take longer to heal. She may see a difference right away or it may take months. It took me 3 months to have my symptoms go away and another few months to get back to normal. She will get back to her normal self. Biopsy results come back fairly quick. Remember though if there is not damage in her intestines yet her biopsy could come back negative but she could still have celiac. I would recommend doing research on what is gluten free and what is not ahead of time. It may seem like an easy change but it's not..gluten is hidden under so much. She is very lucky to have someone who cares so much about her...hope she feels better soon...hang in there :D

This is a great place to get info about what you can and can't have.. http://www.celiac.com/st_main.html?p_catid=12

This is a link to safe and forbidden foods that will help as a guideline...there are some things like a new toaster she will need...and she has to check things such as lipsticks as well...once she learns everything it will be very easy..it may not seem easy at first. It is definitely worth it

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Thanks Kaiti.

I have saved that link into my favorites.

Before the depression started to take a turn for the worse she ordered a book from a website listing all the types of food that can be eaten. Hopefully once diagnosed and the depression starts to ease she will see a dietician. At the moment she doesn

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If she has bad depression right now she may need to see a doctor though. You don't want her to do anything crazy. Maybe she needs to be on meds until she can go gluten free and get better.I had anxiety for a while and I haven't taken any Xanax in about 10 months because the diet has helped so hopefully it will do the same for her.

There are some really good brands of bread that are gluten free too.

Here is also a list of some brands that will put wheat,rye,barley, oats on labels.

If you do not see one of those ingredients on these following labels then they are safe...they will not hide anything under otherwise questionable ingredients. Alot of these brands are in a regular grocery store too...

Aunt Nelly's

Balance

Baskin Robbins

Ben & Jerry

Betty Crocker

Blue Bunny

Breyers

Campbells

Cascadian Farms

Celestial Seasonings

Country Crock

Edy's

General Mills

Good Humor

Green Giant

Haagen Daz

Hellman's

Hershey

Hormel

Hungry Jack

Jiffy

Knorr

Kozy Shack

Kraft

Libby's

Lipton

Martha White

McCormick

Nabisco

Nestle

Old El Paso

Ortega

Pillsbury

Popsicle

Post

Progresso

Russell Stover

Seneca Foods

Smucker

Stokely's

Sunny Delight

T Marzetti

Tyson

Unilever

Wishbone

Yoplait

Zatarain's

Also there are some conagra, utz, and frito lay products that are gluten free.

If you need any help with info just let me know and I can help you out there...

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Thanks again.

Im not a person who would push anyone into taking any sorta drug but I would feel alot more at ease if she was to agree to some sort of anti-depresent, just until shes started on the correct diet after offically being diagnosed. Like i said before I have mentioned anti-depresents several times but everytime shes become more adiment that she is not gonna take them :o/ What more can I do !

Thanks for the list, im saving all the info onto the PC so when shes feeling upto it I will show her this site and what you have told me. Knowing more about what she can and cant eat before being diagnosed is a real boost I reckon. Ive also notcied a few of bars and restaurants now have menus that tell you what they serve that people with celiac can eat. Only downfall is you have to ask for it and if theres someone working that doesnt even know what celiac is then thats when it becomes a little more difficult.

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Dear KMS. So sorry to hear of the trouble that you and your dear one are going through. I suffered from severe depression almost ten years ago. I've only recently figured out that I have Celiac and suspect that that was the cause of it. I remember what it felt like to be in the depths of despair. There is utter hopelessness, emptiness and it is impossible to fathom even an ounce of joy or goodness in your own life, regardless of the true, positive conditions of your existence. There is self loathing as well. My husband and kids were kind and loving to me, but I was unable to feel it, and their tender efforts only annoyed and angered me. It is, unfortunately a very self-absorbed state. I know that your partner has indicated that she doesn't want to talk, but still, try to be attentive, because she will probably feel neglected and even more depressed! I know that this is hard. My husband looks back on that time as a nightmare, but it did pass. A weaker man would have left me. I agree with Kaiti that she should probably see a doctor...a psychiatrist, because when depression reaches a certain level, suicidal thoughts can take hold. I honestly didn't think that I would see my next birthday, for a while. Anti-depressants can (as I recall) take up to 2-4 weeks to take effect. As a rule, I think that they are much too widely prescribed, especially when the cause is something in a person's life that can be addressed; an event-triggered depression. But her depression could be strictly biological in nature, as was mine, and she may temporarily need a little help from medication until she can get back on track again. I wish you both the best!

Paula

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Remember 'depression' is just a fancy term for sadness turned to hopelessness turned to giving up on life. Longterm undiagnosed, debilitating and even painful symptoms of celiac disease can make people feel hopeless about ever living a normal life again. Fears about unexpected celiac reactions which may produce embarassing gas, bloating or diarrhea or even excruciating abdominal pain make every day scary and hopeless for undiagnosed celiacs. Even after diagnosis people who have lived with such ever worsening symptoms may take weeks or months to believe they can return to normal activities or life without symptoms.

My celiac symptoms were gas, bloating, constipation and excruciating abdominal pain. For many years my doctors misdiagnosed my symptoms as 'irritable bowel syndrome' and handed me an IBS diet sheet which recommended eating more whole grains and especially WHEAT BRAN (exactly what I should have avoided). I felt angry at doctors who couldn't help me, powerless to resolve every worsening painful symptoms, and scared to plan any activities away from home or familiar bathrooms. After I learned I had celiac, abstained from gluten (and then dairy and soy to which I also have intolerances), I experienced my first pain free hours in years. I wondered how I would plan my daily activities WITHOUT pain, how I would adjust to a life WITHOUT pain, a better life, but nevertheless, a very different life. Despite many gluten/dairy/soy contamination 'slips' I eventually became confident that I could experience painfree days, eventually plan vacations and most recently serve jury duty, despite fears of being away from bathrooms should I have a 'slip'.

Many doctors see 'depression' as a 'disorder' separate and unrelated from celiac disease. However, I understand how anyone with lifelong, undiagnosed, embarassing, painful and debilitating symptoms can feel sad, scared and hopeless enough to receive that 'depression' label. Support your partner's efforts to maintain a gluten free diet, encourage her to talk about her experiences with celiac symptoms, fears about unexpected gluten reactions, powerless feelings about a life ruled by celiac symptoms or whatever she feels about celiac disease. With time, knowledge and encouragement, her 'depression' will lift. Taking antidepressants may numb the sad feelings, but the beliefs which she developed during years of undiagnosed symptoms will remain, until she talks about those and/or experiences wellness to change feelings of hopelessness about her life. I also hope you show her posts on this message board from other people who overcame depression as they recovered from celiac symptoms.

BURDEE

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KMS, I wanted to clarify what I had said in my previous post about the anti-depressants. You probably read what I wrote and thought that I hadn't seen what you had said about how you've tried to get her to take meds. I don't know if she has already seen a psychiatrist, but that would be a good starting point. If she already has and has been given a prescription but refuses to take it, then I think that it would be wise to make an appointment, with her knowledge, so that you all can talk this thing through. If it is biological, it is probably also being fueled by her fears and discomforts as Burdee mentioned. Whatever the underlying cause, she needs help and with the meds, she could be feeling much better in the very near future...sure hope so!

Paula

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Thank you for your replies.

I understood what you said Paula and I'm very gratefulll for what you said. Also Kaiti & Burdee's replies too.

She has been seeing a psychiatrist for a good few weeks up until about 3 weeks ago as her psychiatrist took ill, phoned her and cancled that weeks app. It was that week when she made a massive improvment and then she herself took ill with flu and throat infection the following week and thats when things started to become worse at a rapid rate and this also was the time when she was told to eat the foods that make her sick until the biopsy has been carried out. It cant be nice sitting down to a meal knowing about 20mins (max) later your gonna see it again !! Before being told by her doctor that she must eat the foods she normally has she started to eat the foods that didnt make her ill or not eat at all as she didnt see the point as it wasnt gonna stay down. It may seem wise at the time to her but looking back now it was prob the worst mistake to make! as thats what caused the blood test results to come back as borderline.

I'm trying and hoping she will go back and start having regular weekly sessions again with her psychiatrist until she starts to feel better. It's just timing when to bring up the subject without her thinking im nagging, or her to take what im saying the wrong way. Because to be fare it must not be a nice thing to be told by someone that they think it would be wise to see a psychiatrist ! I know I would feel a bit upset and confused if someone told me that.

Im still gatherig info and feedng myself with info about Celiac to get a better understanding of it all. The more i read the better I understand what shes going through. This forum is amazing and everyone who helps and replies should be proud !!

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    • Hello I'm happy to join, any help is greatly appreciated as it can be difficult by times for sure. Unfortunately, I have been told my doctor has definitely not been doing anything correctly and very backwards about Alot of things. I live in canada, and there are celiac support groups I have found but I am about 2 hours away from any. I live in a pretty rural area. Although,  I have still received some help from them , they prefer a diagnosis before helping out to much. My doctor has me on a waiting list to see a gastrointestinal specialist but whenever I called her office to inquire about an appointment time I was told there was a very long wait and that I was considered to be a non emergency. So I am waiting to get an appointment. I have seen a dermatoligist for some of my rashes and she said it was dermatitis and gave me different creams for them.  It is frustrating because I don't know how to go about getting a actual diagnosis besides this biopsy. I was told to request a different specialist, but supposedly there is a waiting period for most in our area. 
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    • I really am iffy on talking about this side of my gluten issues, I think I am about to ruin my reputation on this forum coming about as some extreme crazy guy saying this but I wanted to get this off my chest and perhaps see if anyone else might share a similar trauma. I get emotional recalling it, this side of my reactions, as it is most ingrained and very traumatizing experience, and I am not proud of it as the mentality I have now disgust me but I am going to come out about it. One of the scariest things in this world is when your own mind turns against you, when you can not think about what you want to think about, when you can not do what you know you should be able to do. When I got glutened really bad these where things I felt with my own mind would start looping, and thoughts would not come together. I would loose comprehension, feel like I know I should be able to think about something but my mind was not working. The same thing looped over and over and over like a broken record, This led to anger, anxiety, depression, panic, top it off with loss of feeling in my hands and feet, and the pains in the gut......it was a nightmare. I would go as far as beating my head against walls and punching them out of frustration as to why my own body and mind where not working, I just wanted it to end the pain to stop. I still have scars on my fist from punching into a nail in a stud once and kept going.....I scared everyone and myself distanced my self from loved ones. And started running a bucket list accepting that I was going to die soon. Hell to this day parts of the brain damage seem to be permanent as I can no longer do computer programing or some forms of math, they just no longer make any sense or connect. Then we learned what was causing it, and once the symptoms started to fade, I would get very angry if someone in the shared house did something stupid and got me sick again. The fear of going back to that caused violent and drastic actions to get away from what was making me sick. The sheer fear of my own mind turning on me led me to drastic actions to prevent it, throwing everything away I thought could make me sick, making sure no one else used that kitchen, used freezer paper and gloves when fixing my foods and working in there. I really destroyed and burned all bridges I had then and alienated myself from others. In the end it motivated me to learn how to cook, to get and renovate my own apartment in a building downtown, and start a business to pay for my new diet, by selling safe food to others with this issues locally at farmer markets. But it changed me on a very deep level, that traumatic experience to this day I have a issue looking at others and dealing with other humans who eat that stuff.......the stuff that breaks my mind and body so horrifically. If I have to compare it to something its like watching aliens drinking antifreeze and eating poison.....it causes a subconscious level of disgust and slight envy. I really can not even look at the stuff without recall what it does and feeling a twitch. I know I am the alien here, but it feels vise versa, and I look down on the normal people as odd creatures.  I go to the store and find myself overly avoiding contamination, keeping stuff in my own bags, asking the cashier to scan and bag it as I pass it not letting it touch that flour I see on the belt. I am hyper sensitive to the stuff I know and that fear semi dominates my mind as crazy as it sounds.  I am recovering and am forcing myself to try to mingle with other humans overlooking that one thing, but that deep rooted trauma still flares up as a protective measure especially around foods.  I could talk on and on about the other side effects but this one is the hardest to talk about it, and I feel others might be able to relate to it.    
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