Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts


9 posts in this topic

Hi, ive just found this site and im extremely concerned about my partner. She is currently being tested for Celiac after her 1st blood test was only borderline for positive. It


Share this post

Link to post
Share on other sites

Ads by Google:

Depression does go with celiac. When she is gluten free that will clear up as she starts to feel better. Different people take longer to heal. She may see a difference right away or it may take months. It took me 3 months to have my symptoms go away and another few months to get back to normal. She will get back to her normal self. Biopsy results come back fairly quick. Remember though if there is not damage in her intestines yet her biopsy could come back negative but she could still have celiac. I would recommend doing research on what is gluten free and what is not ahead of time. It may seem like an easy change but it's not..gluten is hidden under so much. She is very lucky to have someone who cares so much about her...hope she feels better soon...hang in there :D

This is a great place to get info about what you can and can't have..

This is a link to safe and forbidden foods that will help as a guideline...there are some things like a new toaster she will need...and she has to check things such as lipsticks as well...once she learns everything it will be very may not seem easy at first. It is definitely worth it


Share this post

Link to post
Share on other sites

Thanks Kaiti.

I have saved that link into my favorites.

Before the depression started to take a turn for the worse she ordered a book from a website listing all the types of food that can be eaten. Hopefully once diagnosed and the depression starts to ease she will see a dietician. At the moment she doesn


Share this post

Link to post
Share on other sites

If she has bad depression right now she may need to see a doctor though. You don't want her to do anything crazy. Maybe she needs to be on meds until she can go gluten free and get better.I had anxiety for a while and I haven't taken any Xanax in about 10 months because the diet has helped so hopefully it will do the same for her.

There are some really good brands of bread that are gluten free too.

Here is also a list of some brands that will put wheat,rye,barley, oats on labels.

If you do not see one of those ingredients on these following labels then they are safe...they will not hide anything under otherwise questionable ingredients. Alot of these brands are in a regular grocery store too...

Aunt Nelly's


Baskin Robbins

Ben & Jerry

Betty Crocker

Blue Bunny



Cascadian Farms

Celestial Seasonings

Country Crock


General Mills

Good Humor

Green Giant

Haagen Daz




Hungry Jack



Kozy Shack




Martha White




Old El Paso






Russell Stover

Seneca Foods



Sunny Delight

T Marzetti






Also there are some conagra, utz, and frito lay products that are gluten free.

If you need any help with info just let me know and I can help you out there...


Share this post

Link to post
Share on other sites

Thanks again.

Im not a person who would push anyone into taking any sorta drug but I would feel alot more at ease if she was to agree to some sort of anti-depresent, just until shes started on the correct diet after offically being diagnosed. Like i said before I have mentioned anti-depresents several times but everytime shes become more adiment that she is not gonna take them :o/ What more can I do !

Thanks for the list, im saving all the info onto the PC so when shes feeling upto it I will show her this site and what you have told me. Knowing more about what she can and cant eat before being diagnosed is a real boost I reckon. Ive also notcied a few of bars and restaurants now have menus that tell you what they serve that people with celiac can eat. Only downfall is you have to ask for it and if theres someone working that doesnt even know what celiac is then thats when it becomes a little more difficult.


Share this post

Link to post
Share on other sites

Dear KMS. So sorry to hear of the trouble that you and your dear one are going through. I suffered from severe depression almost ten years ago. I've only recently figured out that I have Celiac and suspect that that was the cause of it. I remember what it felt like to be in the depths of despair. There is utter hopelessness, emptiness and it is impossible to fathom even an ounce of joy or goodness in your own life, regardless of the true, positive conditions of your existence. There is self loathing as well. My husband and kids were kind and loving to me, but I was unable to feel it, and their tender efforts only annoyed and angered me. It is, unfortunately a very self-absorbed state. I know that your partner has indicated that she doesn't want to talk, but still, try to be attentive, because she will probably feel neglected and even more depressed! I know that this is hard. My husband looks back on that time as a nightmare, but it did pass. A weaker man would have left me. I agree with Kaiti that she should probably see a doctor...a psychiatrist, because when depression reaches a certain level, suicidal thoughts can take hold. I honestly didn't think that I would see my next birthday, for a while. Anti-depressants can (as I recall) take up to 2-4 weeks to take effect. As a rule, I think that they are much too widely prescribed, especially when the cause is something in a person's life that can be addressed; an event-triggered depression. But her depression could be strictly biological in nature, as was mine, and she may temporarily need a little help from medication until she can get back on track again. I wish you both the best!



Share this post

Link to post
Share on other sites

Remember 'depression' is just a fancy term for sadness turned to hopelessness turned to giving up on life. Longterm undiagnosed, debilitating and even painful symptoms of celiac disease can make people feel hopeless about ever living a normal life again. Fears about unexpected celiac reactions which may produce embarassing gas, bloating or diarrhea or even excruciating abdominal pain make every day scary and hopeless for undiagnosed celiacs. Even after diagnosis people who have lived with such ever worsening symptoms may take weeks or months to believe they can return to normal activities or life without symptoms.

My celiac symptoms were gas, bloating, constipation and excruciating abdominal pain. For many years my doctors misdiagnosed my symptoms as 'irritable bowel syndrome' and handed me an IBS diet sheet which recommended eating more whole grains and especially WHEAT BRAN (exactly what I should have avoided). I felt angry at doctors who couldn't help me, powerless to resolve every worsening painful symptoms, and scared to plan any activities away from home or familiar bathrooms. After I learned I had celiac, abstained from gluten (and then dairy and soy to which I also have intolerances), I experienced my first pain free hours in years. I wondered how I would plan my daily activities WITHOUT pain, how I would adjust to a life WITHOUT pain, a better life, but nevertheless, a very different life. Despite many gluten/dairy/soy contamination 'slips' I eventually became confident that I could experience painfree days, eventually plan vacations and most recently serve jury duty, despite fears of being away from bathrooms should I have a 'slip'.

Many doctors see 'depression' as a 'disorder' separate and unrelated from celiac disease. However, I understand how anyone with lifelong, undiagnosed, embarassing, painful and debilitating symptoms can feel sad, scared and hopeless enough to receive that 'depression' label. Support your partner's efforts to maintain a gluten free diet, encourage her to talk about her experiences with celiac symptoms, fears about unexpected gluten reactions, powerless feelings about a life ruled by celiac symptoms or whatever she feels about celiac disease. With time, knowledge and encouragement, her 'depression' will lift. Taking antidepressants may numb the sad feelings, but the beliefs which she developed during years of undiagnosed symptoms will remain, until she talks about those and/or experiences wellness to change feelings of hopelessness about her life. I also hope you show her posts on this message board from other people who overcame depression as they recovered from celiac symptoms.



Share this post

Link to post
Share on other sites

KMS, I wanted to clarify what I had said in my previous post about the anti-depressants. You probably read what I wrote and thought that I hadn't seen what you had said about how you've tried to get her to take meds. I don't know if she has already seen a psychiatrist, but that would be a good starting point. If she already has and has been given a prescription but refuses to take it, then I think that it would be wise to make an appointment, with her knowledge, so that you all can talk this thing through. If it is biological, it is probably also being fueled by her fears and discomforts as Burdee mentioned. Whatever the underlying cause, she needs help and with the meds, she could be feeling much better in the very near future...sure hope so!



Share this post

Link to post
Share on other sites

Thank you for your replies.

I understood what you said Paula and I'm very gratefulll for what you said. Also Kaiti & Burdee's replies too.

She has been seeing a psychiatrist for a good few weeks up until about 3 weeks ago as her psychiatrist took ill, phoned her and cancled that weeks app. It was that week when she made a massive improvment and then she herself took ill with flu and throat infection the following week and thats when things started to become worse at a rapid rate and this also was the time when she was told to eat the foods that make her sick until the biopsy has been carried out. It cant be nice sitting down to a meal knowing about 20mins (max) later your gonna see it again !! Before being told by her doctor that she must eat the foods she normally has she started to eat the foods that didnt make her ill or not eat at all as she didnt see the point as it wasnt gonna stay down. It may seem wise at the time to her but looking back now it was prob the worst mistake to make! as thats what caused the blood test results to come back as borderline.

I'm trying and hoping she will go back and start having regular weekly sessions again with her psychiatrist until she starts to feel better. It's just timing when to bring up the subject without her thinking im nagging, or her to take what im saying the wrong way. Because to be fare it must not be a nice thing to be told by someone that they think it would be wise to see a psychiatrist ! I know I would feel a bit upset and confused if someone told me that.

Im still gatherig info and feedng myself with info about Celiac to get a better understanding of it all. The more i read the better I understand what shes going through. This forum is amazing and everyone who helps and replies should be proud !!


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • Hi AWOL, Since you weren't able to complete the 2 weeks gluten challenge for the endoscopy the results are not necessarily reliable.   So to be err on the side of caution I think you should assume you have celiac disease.  Your doctor should not assume you don't have it either since the challenge was not completed.  He has no proof that you don't have celiac disease.  He does have evidence that you have negative reactions to eating gluten though.
    • Hi Ironic Truth, Thanks for Replying. Wow I get bad joint pain too. So my opinion especially if he is eating gluten is to get him tested. I wish I had been tested when I was eating gluten 8 years ago .  I had tried 8 years ago initially to figure out what the heck was going on with me and my immune system. I started with a GP, went to Allergist/Immunologist etc. I gave up 4 doctors later when nothing seem to be found and you sense they start thinking lady you're a nut job . My cousin a diagnosed Celiac took over 2 years to be diagnosed and she is a nurse. My husband said for years "I think bread is bad for you" and in a desperate attempt to help myself -I gave up wheat after 2 weeks felt better 2 months later I went total gluten-free and felt very much better that was 4 years ago. So I have suspected NCGS or Celiac for a few years now. However getting someone to test you for it when you were classified IBS 20 years prior-well as is chronically heard on the forums here is perhaps the biggest challenge of all. One then just finally says ok I will just try this gluten-free thing myself. I was gluten-free for 3 1/2 years and improving. Then  I got gluten-ed in March of 2016 and I had worse symptoms then ever the joint pain arrived. I went to a new allergist who refereed me to another Allergist/Immunologist who deals with Celiacs and Food Intolerances. I did see a Rheumotologist in July 2016 since the muscle and joint pain was still lingering, who tested me and reported no antibodies. Back to the specialist who did more test and suggested the gluten challenge. It's likely me failing to complete 2 weeks caused it but the symptoms got real bad and I thought I'm going to have worse issues if I don't stop this.  Today my fingers are just starting to heal they were peeling during the gluten challenge among all the other symptoms I get, which I attribute to dehydration. The dry peeling fingers did not improve until I got the IV the day of the scope. Bizarrely I was looking forward to the scope hoping I'd get an IV with Meds and fluids becaus eI felt I needed it. I did see one abstract, I can't get my hands on the full article as you stated their is a link: Dig Dis Sci. 2005 Jan;50(1):126-9. Celiac disease and intestinal metaplasia of the esophagus (Barrett's esophagus). Maieron R1, Elli L, Marino M, Floriani I, Minerva F, Avellini C, Falconieri G, Pizzolitto S, Zilli M So I will pursue the path of monitoring the  Barrett's. Despite no official diagnosis for me, you are right Gluten is bad for me, I should avoid it, I will, and I'll stay on the forums. Good luck with you Boyfriend he is lucky to have you looking out for him.
    • Hi Sunshine, There is a program called a 504 plan that some schools will follow if you get one approved.  It helps the school identify proper ways to deal with a child's particular needs.  Probably it is helpful to have a 504 plan, but they may require a formal diagnosis for it.  I suggest you talk to the school and ask them about it.  Tell them the situation with the kid and about the stress he would need to go through to get diagnosed.  They may be willing to work with you without a formal diagnosis.   I am not saying you absolutely have to have a 504 plan for him.  School districts vary and some may be more accommodating than others.  A 504 plan may give you certain rights, but I  am no expert on them. The gluten challenge is 12 weeks of eating gluten for blood tests.  The payback for being formally diagnosed is questionable IMHO.  Treatment is the same regardless, eating gluten-free for life.  One thing to be aware of is that celiac disease has a genetic factor.  So he got the gene from one of the parents.  Anyone else in the family could have celiac develop at some point.  So testing every couple years for all family members is a good idea. Welcome to the forum!
    • Thank you everyone. I appreciate all of the information and support.  I am feeling overwhelmed right now and it was really getting me down yesterday. I don't feel so hopeless now. 
    • Okay. I think I will start with an allergist and a dietitian. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member