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Terrible Back/kidney Pain After Being Glutened. Why?


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4 replies to this topic

#1 NOT-IN-2gluten

 
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Posted 28 July 2009 - 12:10 PM

Hello,
I am newbee so I hope this is the right are for my question.

I am self diagnosed gluten intolerant at this point. Gluten free for 6 weeks. (But still learning and have been glutened several times!)
I ate in a restaurant two days ago and I could tell immediately that I had been glutened. I don't have the major stomach issues that so many people mention here, but I have terrible foot pain and pain in the kidney area. Within 20 minutes of eating spinach artichoke dip, my feet were aching and my back pain was so bad I could barely sit in the car on the way home. It has been two days. The back pain is still persistant and I don't understand it. Could it be kidneys, adrenals, gall bladder? I have no idea but it so uncomfortable. I had this symptom often if not all of the time (for years) before trying a gluten free diet.
It has been so much better and almost nonexistant since eating gluten free. I would appreicate any comments on this. Also, is it weird that I have terrible foot pain? That also seems so much better when gluten-free. Thanks for any replies!
Sandra
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#2 dadoffiveboys

 
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Posted 30 July 2009 - 04:22 AM

Hello,
I am newbee so I hope this is the right are for my question.

I am self diagnosed gluten intolerant at this point. Gluten free for 6 weeks. (But still learning and have been glutened several times!)
I ate in a restaurant two days ago and I could tell immediately that I had been glutened. I don't have the major stomach issues that so many people mention here, but I have terrible foot pain and pain in the kidney area. Within 20 minutes of eating spinach artichoke dip, my feet were aching and my back pain was so bad I could barely sit in the car on the way home. It has been two days. The back pain is still persistant and I don't understand it. Could it be kidneys, adrenals, gall bladder? I have no idea but it so uncomfortable. I had this symptom often if not all of the time (for years) before trying a gluten free diet.
It has been so much better and almost nonexistant since eating gluten free. I would appreicate any comments on this. Also, is it weird that I have terrible foot pain? That also seems so much better when gluten-free. Thanks for any replies!
Sandra

No that was the primary reason I stopped eating gluten - severe back pain. As a note, my dad (who has also stopped eating gluten) was diagnosed with Focal Segmental Glomerial Sclerosis (spelling?) (FSGS) and he was getting nearer to needed a kidney transplant. He went off gluten and his kidney numbers improved to the point where he may NEVER need the transplant!! I assume my back pain may be involved with the Kidney. Gluten can affect any part of the body and my only sign was an abnormal IgA Anti-gliadin blood test and gastritis in my endoscopy. After being gluten free for 2 years now I haven't had any back pain UNLESS I get cross-contaminated and I notice it almost immediately. If you are feeling better gluten free you are intolerant.

BTW I had the gene test and came up as a DQ8 celiac gene (which is not the typical DQ2). Hope this helps!
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#3 ravenwoodglass

 
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Posted 30 July 2009 - 05:53 AM

Count me in to for the kidney issues. My reasoning is that since our bodies react to gluten as a toxin and the kidneys help with clearing toxins from the body it is not surprising that this would be an effect of gluten injestion.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#4 Mother of Jibril

 
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Posted 30 July 2009 - 05:56 AM

If you think the pain is centered in your kidneys you should get that checked out!! CKD (chronic kidney disease) is a lot more common than you might think. Ask a primary care doctor for a urinalysis... the presence of protein and/or blood will tell you if you have any damage. It's cheap and very easy.

BTW... although CKD is most common in people with diabetes and/or high blood pressure, it's not necessary to have either one. I don't.
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Gluten free 08/08
Son has IgE allergies to peanuts and corn
Hashimoto's, MCAD, pregnancy loss at 17 weeks
HLA-DQB1*0302 (celiac), HLA-DQB1*0301 (gluten sensitive)
Serological equivalent 3,3 (subtype 8,7)
Extensive family history of autoimmune disorders and related symptoms

#5 NOT-IN-2gluten

 
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Posted 31 July 2009 - 08:21 PM

[quote name='Mother of Jibril' date='Jul 30 2009, 06:56 AM' post='551058']
If you think the pain is centered in your kidneys you should get that checked out!! CKD (chronic kidney disease) is a lot more common than you might think. Ask a primary care doctor for a urinalysis... the presence of protein and/or blood will tell you if you have any damage. It's cheap and very easy.

BTW... although CKD is most common in people with diabetes and/or high blood pressure, it's not necessary to have either one. I don't.
[/quote



Thank you. I will have it checked. I have had some simple blood work where most things look fine.
But no doctor has tested for protien/blood in a few years. I certainly can't get much help for my local doctors. If I specifically ask, they will test for it. Thank you, I greatly appreciate the reply!
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