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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Symptoms That Go Away
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41 posts in this topic

I've been amazed at the scope and breath of symptoms that have gone away since going gluten-free and was interested in some of your symptoms that have resolved with the GFD.

Some of my more unusual ones are:

(complete resolution of)asthma, swollen throat, congestion, loss of voice, dry eyes, yeast infections, hypoglycemia, strange length of periods, neck and back pain, circles under eyes, fatigue, irritability, circular bruising, pain in lower right of belly...

What are your more unusual symptoms that are gone now that you eat gluten-free?

Leslie

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No terribly unusual ones, but: cramping, nausea, vomiting, diarrhea, gas, distention, low weight, pale complexion, and I guess mild depression/moodiness/irritability. The first...6 were very problematic, but are gone now. I've gained...26 pounds or 32% of my previous body weight (I was 5' 79 lbs at diagnosis and am now 5' 3" and 95.6 lbs and starting to gain rapidly (post-operation--in 2 months--15 pounds). :D Umm...I think I'm typically on the paler side, but I'm not ghostly pale like I used to be. Oh, and I'm happier now since I'm healthy!!!!! :lol:

Sorry, I'm not too unusual :lol:

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Extreme fatigue, brain fog (by far the worst of the symptoms), ringing ears, sporadic gut problems, dry mouth, seasonal allergies, circles under eyes, being overweight, pre-diabetes condition, high blood pressure.

My "female problems" went away when I got divorced. :lol::lol::lol::lol:

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:lol: Ianm, very funny!

Yes, I too lost the brain fog, shakes, moodiness, some joint pain etc. Celiac has so many different symptoms and I find they vary even now with the amount of accidental gluten intake. Dry mouth and nervousness is the first symptom to show up with an accidental intake. It gets worse from there.

I'm still keeping my husband (38 yrs this month) so still have some of the female problems :lol::rolleyes:

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I did have pain in my lower right gut once and it turned out to be my appendix that needed to be removed. :o

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I'm like celiac3270...I didn't have really unusual symptoms. My biggest 3 were nausea, anxiety, and weight loss. I did have some moodiness with it as well but that was not too bad(my parents may think otherwise :lol: )

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My dream is that doctors will care and read these symptoms and start looking for them in their patients. Even the 'usual' ones are good to hear about as this board gets questions every day about them being ok to have before and after.

Leslie

You all are sooo funny :lol:

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I'm like celiac3270...I didn't have really unusual symptoms. My biggest 3 were nausea, anxiety, and weight loss. I did have some moodiness with it as well but that was not too bad(my parents may think otherwise :lol: )

Oh, right...I was anxious, too :P .

Since I was getting sick all the time, but seemingly randomly and I didn't know when it would hit, I would try to get everything done as early as possible (for example, a lot of weekend homework done on Friday, or studying for a test a couple days before I actually had to, in case I got sick and couldn't study the day before...).

Ian...lol :lol: and I like the quote in your signature: "What does not kill you makes you stronger." It's so true, though......

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I had a long tough road of various symptoms - mood disorders (bipolar, depression, anxiety), insomnia, fatigue, migraine, IBS, constipation, irritability, foggy thinking, and weight gain. Most of this has been resolved, especially the mood disorders, though I still get irritable pretty easily at times. And my female issues haven't sorted themselves out yet but I just recently started taking sublingual B6 (and B12) so I'm hoping that helps (aparantly I'm pretty low on those). I'm hopeful those things will clear up some more...

Stephanie

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I did have pain in my lower right gut once and it turned out to be my appendix that needed to be removed. :o

That was my first thought when I read the post. Leslie, you should see if there's some sort of test your dr can do to check your appendix. Since it does filter out poisons.... it kinda makes sense that it could hurt when you eat gluten. Still might be a good idea to get that checked out though.

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If it is appendicitis the pain will steadily increase and won't go away. Also you will experience fever and chills at the same time. The only test is the doctor will poke you in the lower right gut and if it hurts even more then it is most likely appendicitis. There really is no other test other than what I have described.

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Thanks for the suggestion Ajlauer and your info Ianm. I really want to hear about all your symptoms. I said unusual at first because I thought it would be gory, but, this is Celiac.com and we expect gory. ;) I hope everyone will share their symptoms, cus they are all important.

I debate moving up my first colonoscopy because I assume that would check that sore spot in my gut but at day 90 gluten-free it is all gone. Maybe I'll just wait till I am 50 for that test? Or should I have the colonoscopy because I bled and was sore for 5 years even though it is gone now?

Leslie

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Interesting, I had horizontal ridges in my nails that appeared 10 years ago and have not gone away until I went gluten-free two months ago. This is the only tangible thing I can say is different/better. Anyone else relate to this.

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Ally-

I didn't have them but I know people who have had them(including my dad) and it signals deficiency in calcium or magnesium...it stands reason since celiacs can't absorb properly until going gluten free...

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Hi Leslie:

I don't know it can't hurt to just go ahead and have the colonscopy done. Even though the symptoms are gone now let me explain what happened to me. I had one done just before or around the time they diagnosed the celiac. He removed 5 pre-cancerous lesions. I guess there are 2 kinds, one that turns cancerous and one that does not. I hated the prep for the test but now I am glad I had it done.

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:lol: symptoms that went away:

headaches

migraines

joint/muscle pain

itchy,burning eyes

constipation

heartburn

nausea

some diarrhea

bloating

vertigo

rapid heartbeat

paleness

frequent sinus infections

wheezing

anxiety/panic attacks

hypoglycemia

thyroid nodule, removed 2000

hot flashes

Insomnia, continues but I'm exercising

irritability,sometimes occurs

fatigue

brain fog

weight gain

prickly feelings on face

chills

numbness in 4th/5th finger, still have it a little.

I feel like a hypochondriac when listing these but they truly happened, not all at once!! : :o

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Hi Judy:

I agree with everything you have said. I think because it takes so many years to diagnose we often feel like it's all in our heads and often times we have even been told that.

Well, except being cranky, I think I am that way sometimes but I don't believe it's related to the crankiness (lol) :D

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Judy- Every symptom you listed was one I had seen posted elsewhere as a symptom of Celiac. Like I hear reports of rapid heart rate a lot but am still not sure why it occurs. And the dry eyes could be sjogren's syndrome. And the peripheral neuropathy is so common too. Isn't it nice that they went away?

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Rapid heart beat was one of my symptoms but that was attributed to hyperthyroid. My doctor said 95% of celiacs she has seen have had a thyroid issue of some sort. She also said not alot of celiacs just have celiac.

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I went off gluten only because of my son's condition ... and then with the amazing, completely unexpected changes that came about for me, went back on gluten to do the testing and discovered I have celiac disease too.

Anyway, the most astonishing thing for me was the disappearance of all the aches and pains I had had from as far back as I can remember. I was so accustomed to these pains I really thought they were normal, just part of being human. The worst was in the lower back, where the pain could often be quite severe, but I had various shapes and sizes of pain all over. The other thing that has been quite striking for me is the vanishing act performed by the heaviness or numbness (hard to describe exactly) in my hands and forearms. It was bad enough 3 years ago that I was sent for an MRI, obviously they suspected MS. Everything looked fine on that test. No one thought to look into vitamin deficiency. I only happened upon that idea on these boards and between being gluten-free and taking B12 supplements the problem no longer exists. It still amazes me!

Kaylee

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I'm just happy not to feel so tired anymore. I had diarrhea, but it wasn't running to the bathroom all the time, it was just that when I DID go, it was loose all the time.

But being able to play with my kids and read them a story without getting tired out halfway through is the best part of being gluten-free for me. And my husband doesn't have to say "You're ALWAYS tired" anymore.

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Hey! I have a sensitive spot on the right side of my stomach (about 4 inches to the right of my belly button) that is tender when I push on it. Could this be related to celiac? It's been that way as long as I can remember. I've never done anything about it because...umm.. because I'm a scared wuss I guess! Does anyone know where the damage occurs ? Or if it just occurs throughout the intestinal tract?

As for symptoms that have gone away.. I haven't gone gluten-free yet so I don't know :unsure:

But I have fantasies of having a flat stomach, no more yeast infections, no more endless fatigue, and a clear head.

I wish I wish I wish!!!

Congratulations to all of you who have had the integrity to go long enough gluten-free that your symptoms have gone away! I kneel before all of you in respect ! You are my heroes!!!

*hug* - Michelle

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No more fatigue and a clear head are NOT fantasies. They will become reality when you go gluten-free. :) As for the flat stomach I'll get back with you on that one. Mine is flatter than it used to be. I am working on a six-pack but so far I'm looks more like a 1.6 pack :lol: . Looks like I have my work cut out for me on that one still.

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I read your post about length of periods. I have had unpredictable cycles and constant PMs I think. Would you mind sharing your cycle problems. How long were you off gluten before you started feeling better?

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Mine is kind of like an inflatable six pack - that gets too much air put into it about 10 minutes after I eat something :blink: Kinda funky actually. I usually feel ultra sexy in the morning and sometimes will wait hours to eat just so I can keep feeling skinny! I'm not saying I've got model abs or anything - but I like 'em - until somebody pulls that rip-cord :o

I've got work too, but it's nice to know that there's hope of keeping that morning thing all day! Wahoo!! :lol:

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