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#1 User is offline   kpatillo 

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Posted 29 July 2009 - 08:06 PM

Hi, I’m ranting. and theres alot. sorry :huh:
It’s nice to have other people who know what I’m going thru and understand exactly :D
Everyone, so I’m 22 and I’ve lived with "symptoms" all my life and just dealt with them. Never thinking anything of it they were just normal for me. In the past years it’s gotten allot worse I would get sick and severe stomach pains every time I ate, even the simplest of foods. Ill spare you the other issues lol anyway, I kept calling off work and coming home early and my parents finally had enough. They took me to the doc after thinking maybe I had an ulcer or some stomach problem, and flat out told the doc "Fix her! we are tired of seeing her in pain" so after the battery of tests, and living off chewable papaya enzymes, they diagnosed me with Celiac disease.... well here’s where I’m frustrated I just graduated college, I go to school land work about an hour from home, I’m here from 8am to 8pm. like others college students on here I don’t have time (or gas) to run home and make food, so I have scoured the net for gluten-free fast-food options. I have found some and tried finding my own. but frustrated because there are very little options (I’m picky too. lol) I have found a store that sells all things natural called the Whole Wheatery(go figure) that had a gluten free isle, they have Asian rice noodles and a few others things but they are expensive,

I am happy to report that since being about 99% gluten free for almost a month now I feel allot better. Not sick when I eat and I’m only taking about 2 papaya pills a week. Papaya is my instant fix it’s like a natural ant acid or natural pepto... .

I say in only 99% Gluten free because I slip every now and then without thinking. I was at a BBq last weekend and without thinking I popped a cracker with dip in my mouth and scarified it down... oops I realized when that familiar pain came back lol...

Another rant Gluten free breads and wraps are gorse.... there’s a very reason gluten is in bread lol
So a few things that have helped me so far,
I bought a book called "Tell me what to eat if I have Celiac Disease" that’s pretty helpful (the doctor just said avoid wheat products)

I tried gluten-free breads bagels, and wraps all gorse (to me)
gluten-free pasta is pretty good for a college student I’m a mac and cheese and hamburger helper fan all the way. So I’ve been tolling out the normal pasta when making them:)
Tried protein bars (I’m always hunger now) didn’t like them
Tried protein drinks didn’t like ant of them either....
Found awesome Top Raman like things that are rice noodles very yummy
Found these ricekrispies bars that’s are gluten-free and are awesome called "EnviroKidz Organic Crispy Rice" I like the Fruity blast
As far as fast-food goes here’s my list of things I’ve tried with success
In-N-Out(best food ever)
Ask for a 3X3 Protein style(if you’re adventurous and like all the fixings add Animal style)
Protein style is your normal burger just with no bun they wrap it all in lettuce it’s really good
Fry’s are safe too
McDonalds:
Grilled chicken bacon ranch salad
Large French fry’s
Taco Bell: (note there food is 100% unnatural even the veggies have growth hormones now)
2 orders of 3 layer nachos (tostada chips, enchilada sauce, and beans Can ask for ground beef on them too
Panda Express:
Panda Bowl with Rice (half steamed half Fried rice) and your main option (not orange chicken it’s breaded)
Subway
I’ve asked at a few subways around where I live and explained my problem (in as little detail as possible)
And they have said that I can bring my own wrap or bread for the sandwich:D
I haven’t tried it yet but I will soon

Another thing I’ve been making sandwiches, hotdogs tacos and a bunch of other stuff with a big piece of lettuce instead of bread and tortilla(don’t like corn tortilla)

Another note for those who want to drink Alcohol(21 and over please)
I am also allergic to sulfates so I’ve found clear Rum (Bacardi Silver) and Soda (Mountain Dew is my choice) is really awesome. I just pour the rum right into the 20oz bottle.

So coping with Celiac Disease??? How do you guys do it? There are sooo many things I miss, like not being able to eat at that BBq because all they had was Wheat infested food lol
I’m missing bread and tortilla:( I would make everything with tortilla, my boyfriend is nice and will not eat bread around me, my parents know about it and are supporting me but they forget allot. So I’m usually fending for myself at dinner time lol
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#2 User is offline   Roda 

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Posted 29 July 2009 - 08:25 PM

View Postkpatillo, on Jul 30 2009, 12:06 AM, said:

Subway
I’ve asked at a few subways around where I live and explained my problem (in as little detail as possible)
And they have said that I can bring my own wrap or bread for the sandwich:D
I haven’t tried it yet but I will soon

I would reconsider going to Subway. We stopped at one so my two boys and husband could get something to eat on the way home from a trip. I would not eat from one because they grab the bread and sit it in front of the meat, cheese and toppings. Then they reach in and grab the stuff out of the bins and place it on the bread. I have even seen them put things back it the bin after it touched the bread. Not to mention all the bread crumbs. It is just one of those places that are you are better off not going to. I've had luck with Wendy's baked potato and side salads and Mcdonalds french fries, shakes, sundaes, and m & m mcflurry. Could you take a cooler and put in deli meat and cheese and make your own wraps on long days?
Me:
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease


DS2(age 7):
celiac disease(positive IgA tTG, no biopsy- 11/2010)


DS1(age 11):
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.
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#3 User is offline   tarnalberry 

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Posted 30 July 2009 - 08:18 AM

If you eat out and packaged foods all the time, you are going to get glutened. And if you're getting glutened once a week, you're not healing.

I would highly recommend three things:
1) taking half a day on the weekend and making two or three large meals that you can have leftovers from during the rest of the week
2) recruiting your parents (whichever cooks most) to help make you gluten free foods when you're too busy; yes, it's asking them for a lot of help, but when you need help, you need help!
3) learning what things you can make at home quickly (really, if you can't find 10 minutes to make lunch, it's time to reset priorities - being rushed constantly, particularly while eating, doesn't allow the sympathetic nervous system (which dampens digestion) to shut down)

Some ideas on the last one:
If you make rice ahead of time, and keep it in the fridge, you've got a base to make fried rice (takes about 8 minutes, using frozen veggies and eggs), to make stir fry (takes about 10 minutes using meat and frozen veggies), to make a soup (frozen shrimp, frozen veggies), etc. (Add five minutes to chop up fresh veggies.) Making a tuna salad takes about 10 minutes, and that includes mixing up the tuna, chopping half a red onion, a whole tomato, and lettuce.

There are a lot of options for really quick meals, and they will keep you healthier, and gluten-free.

(Of course, I don't - despite the post - mean to imply that you should never ever eat out or grab food on the run. Everyone else can help with that far better than I can.)
Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA
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#4 User is offline   daphniela 

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Posted 30 July 2009 - 10:14 AM

I don't think the meat at Taco Bell is gluten free. I could be wrong. For a quick meal there are rice noodle bowls bt Simply Asia that are gluten free. I have found them at Walgreens and CVS as well as regular grocery stores. Chef Boyardee makes a chicken and rice microwaveable bowl that is free of gluten ingredients.
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#5 User is offline   hannahp57 

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Posted 07 August 2009 - 07:18 AM

you are SO much braver than i am. i cannot make myself eat any form of fast food other than a salad. and i cant even eat most of the dressings because of stupid MSG

make you are inquiring about safe ingredients and food handling at all these places. is every fryer dedicated? have they made sure that they washed there hands before they put your burger patty on the lettuce? is the enchilada sauce safe at every location?
im going to restate what was previously mentioned: if you are eating at fast food places often you are going to get glutened. you may not be sensitive to CC but the damage can be happening still. i got glutened at a nice sit down restaurant that had a gluten free option menu and the waistaff and kitenstafff has previously proven themselves very knowledgable about safe practices. i had eaten there before no problem. but while one visit may go perfectly the next time, someone can misunderstanf or forget. whatever the case may be. fast food is not worth it i promise.
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#6 User is offline   mamaw 

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Posted 07 August 2009 - 09:12 AM

Taco Bell meat is not gluten-free...
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#7 User is offline   KathiSharpe 

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Posted 07 August 2009 - 09:38 AM

I hate to tell you this, but McDonald's chicken has wheat in it:

Grilled Chicken Breast Filet:
Chicken breast filets with rib meat, water, seasoning (salt, sugar, food starch-modified, maltodextrin, spices, dextrose, autolyzed yeast extract, hydrolyzed [corn
gluten, soy, wheat gluten] proteins, garlic powder, paprika, chicken fat, chicken broth, natural flavors (plant and animal source), caramel color, polysorbate 80,
xanthan gum, onion powder, extractives of paprika), modified potato starch, and sodium phosphates.
CONTAINS: SOY AND WHEAT.

That's what goes in that salad you've been eating.

Ditto for McD's french fries:

French Fries:
Potatoes, vegetable oil (canola oil, hydrogenated soybean oil, natural beef flavor [wheat and milk derivatives]*, citric acid [preservative]), dextrose, sodium acid
pyrophosphate (maintain color), salt. Prepared in vegetable oil ((may contain one of the following: Canola oil, corn oil, soybean oil, hydrogenated soybean oil with
TBHQ and citric acid added to preserve freshness), dimethylpolysiloxane added as an antifoaming agent).
CONTAINS: WHEAT AND MILK *(Natural beef flavor contains hydrolyzed wheat and hydrolyzed milk as starting ingredients).

http://nutrition.mcdonalds.com/nutritionex...edientslist.pdf


I've said before and I'll say again - there's a tremendous market "out there" for a "natural" fast food joint (you know, where food is really food)
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#8 User is offline   Amyleigh0007 

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Posted 07 August 2009 - 11:02 AM

View PostKathi Sharpe, on Aug 7 2009, 12:38 PM, said:

I hate to tell you this, but McDonald's chicken has wheat in it:

Grilled Chicken Breast Fillet:
Chicken breast fillets with rib meat, water, seasoning (salt, sugar, food starch-modified, maltodextrin, spices, dextrose, autolyzed yeast extract, hydrolyzed [corn
gluten, soy, wheat gluten] proteins, garlic powder, paprika, chicken fat, chicken broth, natural flavors (plant and animal source), caramel color, polysorbate 80,
xanthan gum, onion powder, extractives of paprika), modified potato starch, and sodium phosphates.
CONTAINS: SOY AND WHEAT.

That's what goes in that salad you've been eating.

Ditto for McD's french fries:

French Fries:
Potatoes, vegetable oil (canola oil, hydrogenated soybean oil, natural beef flavor [wheat and milk derivatives]*, citric acid [preservative]), dextrose, sodium acid
pyrophosphate (maintain color), salt. Prepared in vegetable oil ((may contain one of the following: Canola oil, corn oil, soybean oil, hydrogenated soybean oil with
TBHQ and citric acid added to preserve freshness), dimethylpolysiloxane added as an anti foaming agent).
CONTAINS: WHEAT AND MILK *(Natural beef flavor contains hydrolyzed wheat and hydrolyzed milk as starting ingredients).

http://nutrition.mcdonalds.com/nutritionex...edientslist.pdf


I've said before and I'll say again - there's a tremendous market "out there" for a "natural" fast food joint (you know, where food is really food)



The fries are gluten free. See the link below and click on McDonald's fries or search this forum for many, many, many, many, many conversations/debates about the fries. My son and I both eat them about once a week with no ill effects.

http://health.groups.yahoo.com/group/stlou...ral%20Interest/
Amy

1989: I am diagnosed with IBS.
3/08: 8-year-old son diagnosed with Celiac (blood test and biopsy) and allergies to corn, egg whites, soy, peanuts, walnuts, wheat, and clam.
6/08: My Celiac test is negative.
7/08: I go completely gluten free despite negative test and NO MORE IBS SYMPTOMS!!
7/09: My Enterolab gluten sensitivity gene testing results indicate I have one Celiac gene and one gluten sensitivity gene.
8/09: I am diagnosed with Celiac based on gene testing results and positive response to diet.
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#9 User is offline   mamaw 

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Posted 07 August 2009 - 04:05 PM

As I have more time now I read your post again.Just because something states organic doesn't mean it is gluten free ( organic rice krispies)
Protein burgers or fake burgers are not always gluten free.Fried rice can also include soy sauce again not gluten-free. Wal-mart & LaChoy or San J are gluten-free soy sauces.
It appears you may be getting gluten quite often.
Here is a great place to order a few things from. For bagels, english muffins & pizza --- Joans gluten free great bakes.
Bristol buns for burgers, deli sandwiches are delicicious
For ficeille italian rolls & baguettes, Everybody Eats are the best
Protein bars are not my idea of foods but they do come in handy. Pure Fit, Zing or Comfort Bars are truly great.
Whole Foods has a gluten-free bakery dept. They have several breads . I like their breads for grilling (pannini type things)
If you like earthy breads the Anna's Bread mix is wonderful. Schar also makes a good mix as well as Pamela's.
Pamela's cake mixes are very good
Conte's makes ravioli, pierogi's & pizzas plus frozen meals that are very good.
Celiac specialities has the world's best gluten-free donuts! Plus the stuffing mix is easy & great tasting.
If you like to make your own things then Betterbatter flour is a one to one replacement flour.
Other good ones or top of the line are: Domata living FLour, we love their seasoned flour!
Jules flour blend
Meister's flour blend
I also use annalise roberts cookbook often & her flour mixture. the best.......
Gary West Meats has jerky & steak strips that are very tasty.
Bi-Aglut pasta are excellent.
All the above are mail order. In my area that is the way we have to go to get the best of the best in gluten-free.
If you are a beer drinker Green's is the tops.....3 varieties
Hth

mamaw
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