Conflicting Information In Product Guides
#1
Posted 01 August 2009 - 08:57 PM
#2
Posted 02 August 2009 - 04:42 AM
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#3
Posted 10 August 2009 - 09:28 PM
ravenwoodglass, on Aug 2 2009, 05:42 AM, said:
Thank you so much for this information. I am a basket case trying to figure all this out. I'm finding out that I don't really trust anything in a package, by trial and error(ssss), of course. I seem to make nothing but mistakes and keep myself accidentially glutened since I started this journey 5 weeks ago and wondering if I'll ever get it right.
Thanks again,
Ann
#4
Posted 11 August 2009 - 06:13 AM
While it's true that these lists can be outdated quickly (although in reality product formulations don't change all that often), my impression of Clan Thompson is that they're quite reliable.
richard
#5
Posted 11 August 2009 - 11:14 AM
lovegrov, on Aug 11 2009, 07:13 AM, said:
While it's true that these lists can be outdated quickly (although in reality product formulations don't change all that often), my impression of Clan Thompson is that they're quite reliable.
richard
I'm not sure how many examples you are wanting, but 'malt' is one. I have compared Clan Thompson with the unsafe list on Celiac.com and that's where I've found most of the conflicts. The other has been having a reaction to malt vinegar, and several other hidden ingredients. You can go so many websites to compare products, for example: www.healthcastle.com and go to "Finding Hidden Gluten in Your Foods" then compare. You will find natural flavorings, brown rice syrup, vitamin E and so on... I suggest that you do your own comparison. I have learned that we are all somewhat different in our journey and our own reactions. I'm happy to see that a product works well for you, but for others, it can mean getting sick, so it's best not for me not to list the ingredients that I react to as I have in the past.
#6
Posted 11 August 2009 - 11:33 AM
As Richard said, there is a lot of incorrect or outdated information out there. Just because you read it on the internet doesn't mean it is correct.
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)
Celiac.com - Celiac Disease Board Moderator
#7
Posted 12 August 2009 - 08:34 AM
psawyer, on Aug 11 2009, 12:33 PM, said:
As Richard said, there is a lot of incorrect or outdated information out there. Just because you read it on the internet doesn't mean it is correct.
If you read my original post, that is what I am asking.
#8
Posted 12 August 2009 - 08:45 AM
psawyer, on Aug 11 2009, 11:33 AM, said:
As Richard said, there is a lot of incorrect or outdated information out there. Just because you read it on the internet doesn't mean it is correct.
I found malt vinegar in the 2009 Clan Thompson Pocket Guide to Foods that are safe. My sources are not Internet, but books that I have bought through this site as well as ones through Celiac sites such as Clan Thompson. I am new to this journey and I asked for guidance on choosing the right publications. When I bought three books, I noticed that they differed. I also printed out this websites safe and unsafe list, which appears to agree with the Matison & Matison Grocery Shopping Guide 2009 edition.
Now, I posted the question to get help and not encourage debate.
#9
Posted 13 August 2009 - 02:56 PM
ann72601, on Aug 12 2009, 12:45 PM, said:
Now, I posted the question to get help and not encourage debate.
I think the answer is there is no definite answer. These books are made by humans, and humans are fallible. I can tell you brown rice syrup has always been safe for me, it's made from- brown rice. 'Malt' anything is not, it's almost always made from barley.
Basically, there is no perfect master list. Your best bet with any questions is to call the manufacturer and/or ask here if anyone uses it safely.

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