Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Colorectal Cancer
0

9 posts in this topic

I have seen a few other posts about this, but none that were real recent. Hoping someone has some advice or something.

I am 29 - a bit young to have cancer I know.

My Celiac was just diagnosed last Nov. It had caused a series of problems from heart arrhythmia to my organs just shutting down. I have had the symptoms and digestive problems my whole life. IE: hiatal hernia at 15. The dr's have given me a ton of tests and a few different diagnoses, but My friends mom was the one who told me about celiac and essentially saved my life.

Now one of my tests has come back positive for colorectal cancer. I am waiting for my scope {apt is set - but the waiting sucks} I am also a bit nervous because I am allergic to caines so I cannot be numbed locally when they do this. I think they may have to sedate me completly.

Several people in my family have had this cancer, and some have died at a very young age because of digestive/cancer problems.

My mom's mom was 52 when she died - and had been resuscitated 8 different times in her life due to heart complications. My aunt was 38 when she had to have a pacemaker - think she has celiac as well but refuses to follow the diet. Mom brother and father all have Celiac. I know it is Genetic. The more I read the more I find where Celiac and Colon cancer seem to be related even though they are several feet of intestines apart and etc. Yet the Celiac reaction is felt thought the whole body so why not right.

Is there anyone else going through this also or has been through it?

I am ready to pull my hair out!! {well what isn't falling out already.}

The stress and constant illnesses are awful. My husband has been super supportive, but I wonder how much is enough for him. He is constantly telling me I need to eat because I am loosing to much weight.

I have a 7 year old and a wonderful husband who I love dearly and they keep me going. Yet it is just one thing after another and it really wears me out. I feel like just giving up.

IBS, IC, endometreosis, heart arrhythmia, mitral valve prolapse, lactose intolerant, and way to many other allergies to list

0

Share this post


Link to post
Share on other sites


Ads by Google:

I am sorry you have had to go through so much. What was the test that came back positive? Was it the test for occult blood in the stool or was it an xray or CT? If it was the test for blood in the stool that can have many reasons for a positive result and not all are as dire as cancer. Whichever test it was it is good that they are checking things out. It sounds like you have been good at keeping an eye out for problems which is also a good thing as the sooner something is found the better the outcome is. Please keep us posted and try your best not to worry too much until the tests are complete. I don't know if you are aware of this but from what I have read for celiacs after 5 years on the diet our chances of developing an intestinal cancer go down to the same rate as for the rest of the population. We are here for you. Ask anything you need to and vent if you need to. I hope the testing goes well and the outcome is a good one.

0

Share this post


Link to post
Share on other sites

The test was positive for blood and then the Dr sent that to the lab to check for cancer cells and they found some. Well I had a scope done yesterday and guess what NO CANCER YAY!!!

The Dr still seems to be concerned about the bleeding though they really didn't see much wrong.

Hopefully my intestines are still just healing from the celiac - keeping fingers crossed on that one.

On top of that and the IBS and IC the dr's seem to think that's where my pain and bleeding are coming from. Still a bit scary thought because all of the cancer and genetic disease that runs in my family. Thank you for all of your concerns and letting me vent its helped a lot!!

0

Share this post


Link to post
Share on other sites

Thank you for posting this really did put my mind at ease a bit. Especially the tip about going gluten free and after 5 yrs our chances of cancer go down. I hope everything is going well for you and your family as well!! :rolleyes:

I am sorry you have had to go through so much. What was the test that came back positive? Was it the test for occult blood in the stool or was it an xray or CT? If it was the test for blood in the stool that can have many reasons for a positive result and not all are as dire as cancer. Whichever test it was it is good that they are checking things out. It sounds like you have been good at keeping an eye out for problems which is also a good thing as the sooner something is found the better the outcome is. Please keep us posted and try your best not to worry too much until the tests are complete. I don't know if you are aware of this but from what I have read for celiacs after 5 years on the diet our chances of developing an intestinal cancer go down to the same rate as for the rest of the population. We are here for you. Ask anything you need to and vent if you need to. I hope the testing goes well and the outcome is a good one.
0

Share this post


Link to post
Share on other sites
The test was positive for blood and then the Dr sent that to the lab to check for cancer cells and they found some. Well I had a scope done yesterday and guess what NO CANCER YAY!!!

The Dr still seems to be concerned about the bleeding though they really didn't see much wrong.

Hopefully my intestines are still just healing from the celiac - keeping fingers crossed on that one.

On top of that and the IBS and IC the dr's seem to think that's where my pain and bleeding are coming from. Still a bit scary thought because all of the cancer and genetic disease that runs in my family. Thank you for all of your concerns and letting me vent its helped a lot!!

Thank goodness the scope results were good. I also get bleeding but only when I am glutened, thankfully, as that is scarey enough. Hopefully once you have healed a bit more the bleeding will be a thing of the past. Do make sure any meds they gave you for the IC, if any, are safe. I am also sure you will be proactive in getting your scopes done at the intervals the doctor reccommends. Mine is having me do them every 4 years but some wait longer as long as everything is okay. I hope you continue to improve and thanks for the update. Was kind of worried about you.

0

Share this post


Link to post
Share on other sites




I too have many problems:

ibs, liver enzymes elevated, skin cancer, can feel a strong beat on my chest from heart rate, especially after eating something salty, fibrocystic breast, anemia, fog brain, you name it.

Plus my mom and sister diagnosed with breast/ovarian ca.

Have you checked in to the budwig diet? Not only do we need to avoid gluten, but because we are more problems that can affect our immune system, it has been CRITICAL that I follow a diet lately that cancer patients are on.

There is a group on yahoo for the budwig diet.

She was a german doctor who cured 90% cancers and has been nominated for 7 nobel prize winners. Many people on the forum will tell you they feel like a new person after a few months of eating this way.

0

Share this post


Link to post
Share on other sites

Thank you for your post!!

I am looking into this - it was a very interesting article - I had never heard of this before. I knew about the green tea and have been taking that off and on. {as much as my body will allow}

I try to solve things the best I can by using a natural approach, as I am allergic and intolerant of so many things.

I use GSE {grapefruit seed extract} to help boost my immune system as well. The GSE cures the UTI's that I get all to frequently. It also helps with my acne.

I had severe arrhythmia and strong heart beats before I went gluten free - it damaged my mitral valve causing a prolapse. I was on steroids for it for almost 4 years. Because of it I have to be on antibiotics for all kinds of things like dental work. The GSE helps me not have to take nearly as many antibiotics. { like once a month vs 3 times a year :D }

Some of my health problems are finally starting to get better, but some are not. There were things that I thought would go away and haven't. I have been gluten free minus accidental contamination of course, since Nov. of last year. I hope with time things will change even more.

I always knew something wasn't right, and always thought when I finally got it figured out it would be the miracle "cure" and I would be perfectly healthy. I have come to the conclusion that was a childish wish and I will never be perfectly healthy, as the celiac was left untreated for way to long.

So THANK you for your time. I am always willing to give things a whirl to see if it will help.

You guys are all in my thoughts and prayers.

This board has helped me so so much!!

I too have many problems:

ibs, liver enzymes elevated, skin cancer, can feel a strong beat on my chest from heart rate, especially after eating something salty, fibrocystic breast, anemia, fog brain, you name it.

Plus my mom and sister diagnosed with breast/ovarian ca.

Have you checked in to the budwig diet? Not only do we need to avoid gluten, but because we are more problems that can affect our immune system, it has been CRITICAL that I follow a diet lately that cancer patients are on.

There is a group on yahoo for the budwig diet.

She was a german doctor who cured 90% cancers and has been nominated for 7 nobel prize winners. Many people on the forum will tell you they feel like a new person after a few months of eating this way.

0

Share this post


Link to post
Share on other sites
Thank you for your post!!

I am looking into this - it was a very interesting article - I had never heard of this before. I knew about the green tea and have been taking that off and on. {as much as my body will allow}

I try to solve things the best I can by using a natural approach, as I am allergic and intolerant of so many things.

I use GSE {grapefruit seed extract} to help boost my immune system as well. The GSE cures the UTI's that I get all to frequently. It also helps with my acne.

I had severe arrhythmia and strong heart beats before I went gluten free - it damaged my mitral valve causing a prolapse. I was on steroids for it for almost 4 years. Because of it I have to be on antibiotics for all kinds of things like dental work. The GSE helps me not have to take nearly as many antibiotics. { like once a month vs 3 times a year :D }

Some of my health problems are finally starting to get better, but some are not. There were things that I thought would go away and haven't. I have been gluten free minus accidental contamination of course, since Nov. of last year. I hope with time things will change even more.

Wow, what kind of GSE do you take. I could stand to keep some around:)

I always knew something wasn't right, and always thought when I finally got it figured out it would be the miracle "cure" and I would be perfectly healthy. I have come to the conclusion that was a childish wish and I will never be perfectly healthy, as the celiac was left untreated for way to long.

So THANK you for your time. I am always willing to give things a whirl to see if it will help.

You guys are all in my thoughts and prayers.

This board has helped me so so much!!

0

Share this post


Link to post
Share on other sites

I use Nutribiotic brand Grapefruit Seed Extract {not grape seed} because it is "safe and all natural".

The pills are what I take for like uti's, and when I feel like I am getting an infection from my heart going bonkers lol

I also have it in liquid form. If you don't want to purchase both - because it can be quite pricey depending on the size- I would suggest the pills first just because it is cheaper. It is like 8$ here at the heath food store for a bottle of 50. Which taken twice a week is quite cheap, and Cheaper then what I was spending on antibiotics.

Anyways I use the liquid as a topical for the most part - although it can be added to your drink. It has a bit of a bitter taste, but works just like the pills. The liquid I use ans an acne cure. I get some bad ones when I have a reaction and the GSE clears them by the next day where usually I have them 2-3 weeks - even with prescription acne meds ;)

It is 20$ for a 4 oz bottle, but is super concentrated. One drop in my palm and mixed with water {as much as my hand can hold.} I then wash my face nightly with it. If i get a blemish I use it full strength - which is not recommended for first time uses - it can burn you seriously.

Anyways Good luck and I hope you get as much good out of it as I have. I think it is wonderful - AND ALL NATURAL which is even better!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,092
    • Total Posts
      920,313
  • Topics

  • Posts

    • I got cross contaminated some time ago & the rash came back pretty badly. I've attached a photo taken on June 11th of my back. It was also in my scalp, around my neck, on my front, shoulders, inner wrists and more.   Tonight I am not itching at all! I haven't itched all day long!!!! I can't take Dapsone because I'm allergic to sulfa drugs & Dapsone is a sulfa drug. Obviously that means I also can't take any of the other sulfa drugs that are used to treat dh after Dapsone is not an option. After those comes tetracycline. I really needed some relief! I began researching the dosage & particulars on tetracycline for dh. Extensive & exhaustive research did not pan out. The best I could find was treating Bullous phemphigoid. That said something like 500mg of tetracycline 4 times per day and about an equal amount of niacinimide. I really didn't want to take that much medication and in such strong doses. So my doctor (my PC doc) & I began experimenting. We tried Doxycycline 100mg twice a day. It seemed to be helping some but it just wasn't enough. Then we upped it to 200mg Doxycycline twice per day. It has taken about 5 days of that & I sit here not itching all day for the first time in a long, long time! This may not work for everyone. I did want to post it though as it is, at present, working for me. I am not thrilled at taking it but I have toughed this rash out before for years with no meds and I just couldn't do it again.
    • I laughed out loud at the 'little notebook' comment!😂 It has been interesting to see how much progress has actually been made over the past 10 years that there is even a notebook to be offered or a restaurant to eat in that will accommodate our 'allergy'. 10 years ago I feared that I would never eat in a restaurant again.  But the notebook comment is spot on.  Hopefully within the next 10 years restaurants will evolve enough to offer us a menu that clearly lists the delicious and extensive offerings that they have lovingly prepared just for us...and not just an ingredient list with nutritional values that take longer to read than War and Peace.   I am grateful that there are places to go that at least make the effort.  Who knows?  Eventually there may be restaurants which will have to offer menus with GLUTEN options available!
    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,122
    • Most Online
      1,763

    Newest Member
    ForeverYoung&GlutenFree
    Joined