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Who Uses A Dietician/nutritionist?
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#2
Amyleigh0007 
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Posted 05 August 2009 - 06:38 PM
I spoke to one on the phone after my son was diagnosed and she gave me some websites to check out and wanted to schedule an appointment. I declined. My son is so picky about food and I didn't want him to feel like he was going to be forced to eat all different foods. We started slowly, substituting the foods he actually ate (chicken nuggets, mac and cheese, and that's about it) with gluten free versions. We did just fine.
Amy
1989: I am diagnosed with IBS.
3/08: 8-year-old son diagnosed with Celiac (blood test and biopsy) and allergies to corn, egg whites, soy, peanuts, walnuts, wheat, and clam.
6/08: My Celiac test is negative.
7/08: I go completely gluten free despite negative test and NO MORE IBS SYMPTOMS!!
7/09: My Enterolab gluten sensitivity gene testing results indicate I have one Celiac gene and one gluten sensitivity gene.
8/09: I am diagnosed with Celiac based on gene testing results and positive response to diet.
1989: I am diagnosed with IBS.
3/08: 8-year-old son diagnosed with Celiac (blood test and biopsy) and allergies to corn, egg whites, soy, peanuts, walnuts, wheat, and clam.
6/08: My Celiac test is negative.
7/08: I go completely gluten free despite negative test and NO MORE IBS SYMPTOMS!!
7/09: My Enterolab gluten sensitivity gene testing results indicate I have one Celiac gene and one gluten sensitivity gene.
8/09: I am diagnosed with Celiac based on gene testing results and positive response to diet.
#3
JillianLindsay
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Posted 06 August 2009 - 07:13 AM
I saw a dietitian last week (~3 weeks after my Dx). I had already done a lot of research on my own and she really couldn't tell me anything new. We just went through my diet and made sure I was following the food guide. Luckily it was covered by insurance, so I didn't pay to be told I was already doing everything right.
gluten-free since July 8, 2009!
#4
wendstress
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Posted 06 August 2009 - 09:04 AM
JillianLindsay, on Aug 6 2009, 07:13 AM, said:
I saw a dietitian last week (~3 weeks after my Dx). I had already done a lot of research on my own and she really couldn't tell me anything new. We just went through my diet and made sure I was following the food guide. Luckily it was covered by insurance, so I didn't pay to be told I was already doing everything right.
DITTO! She said we don't see too many Celiacs.... Best advice she gave me was to join the local Celiac Support Group. THEY have been extraordinarily helpful!!!!!!
Dx with Celiac Disease on 12/31/08, went gluten-free shortly after
Dx with Gastritis and Lymphocytic Colitis on 3/4/09
Summer 2009 - Lite on the Caffeine and Dairy
Mom to 2 amazing boys: James - 4, and Alex - 2
Dx with Gastritis and Lymphocytic Colitis on 3/4/09
Summer 2009 - Lite on the Caffeine and Dairy
Mom to 2 amazing boys: James - 4, and Alex - 2
#5
cat3883
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Posted 10 August 2009 - 01:29 PM
I was fortunate to find a nutritionist in my area that has Celiac Disease. She has been very helpful. I spoke to a dietician before I met my nutritionist and she said she wouldn't be able to help me.
#6
darlindeb25
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Posted 10 August 2009 - 04:42 PM
I would be a dietician's nightmare! 
I am my own dietician. My sister is a dietician, and celiac, so I do have someone to discuss things with. Of course, reading in all these forums, often times I am telling her something she didn't know! 
I am my own dietician. My sister is a dietician, and celiac, so I do have someone to discuss things with. Of course, reading in all these forums, often times I am telling her something she didn't know!
Deb
Long Island, NY
Double DQ1, subtype 6
We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!
Long Island, NY
Double DQ1, subtype 6
We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!
#7
Lisa16
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Posted 11 August 2009 - 07:37 AM
I had an excellent experience with one a few years back. He was extremely knowledgeable about celiac and we did a specific carb diet type thing for awhile. He was very supportive and I learned a lot and lost weight (20+ lbs.). Kept a journal, became aware of other allergies and really started to recover. I loved my guy. He was technically a specialist in diabetes, but he helped me.
I think that anybody who gets a celiac diagnosis should automatically be referred to somebody who knows about the diet. Unfortuantely, I don't think there are very many of those out there. I got lucky.
I hope you get lucky too!
I think that anybody who gets a celiac diagnosis should automatically be referred to somebody who knows about the diet. Unfortuantely, I don't think there are very many of those out there. I got lucky.
I hope you get lucky too!
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