[DinaB]

Hello,

My dermatologist finally gave me Dapsone topical ointment yesterday, after trying Valtrex and Bactroban. Had anyone had any experience with the ointment? I could tell it worked pretty well already, but belly has been real bad so I am confused about ingredients. Something that is for DH couldn't have Gluten, right?

[momxyz]

DinaB, on Aug 13 2009, 03:21 PM, said:

Hello,

My dermatologist finally gave me Dapsone topical ointment yesterday, after trying Valtrex and Bactroban. Had anyone had any experience with the ointment? I could tell it worked pretty well already, but belly has been real bad so I am confused about ingredients. Something that is for DH couldn't have Gluten, right?

I don't have an answer to your question but I do have another question for you:

Was he thinking your blisters were caused by herpes virus (therefore the Valtrex) and then Staph (therefore the use of Bactroban)?

[DinaB]

momxyz, on Aug 13 2009, 01:17 PM, said:

I don't have an answer to your question but I do have another question for you:

Was he thinking your blisters were caused by herpes virus (therefore the Valtrex) and then Staph (therefore the use of Bactroban)?

Yes. Was on Valtrex for 3 weeks and the breakouts were still happening. Then he put me on Bactroban and made it a little worse. Just started Dapsone last night. My belly has been killing me all day and bad D.

[captaincrab55]

DinaB, on Aug 13 2009, 03:21 PM, said:

Hello,

My dermatologist finally gave me Dapsone topical ointment yesterday, after trying Valtrex and Bactroban. Had anyone had any experience with the ointment? I could tell it worked pretty well already, but belly has been real bad so I am confused about ingredients. Something that is for DH couldn't have Gluten, right?

I'm using Fluocinonide .05%, but I'll inquire about the Dapsone cream when I see my Dermatologist in 5 weeks.. Your Pharmacist should be able to answer the Gluten question... One should start a Patient Profile @ their Pharmacy..

[DinaB]

captaincrab55, on Aug 13 2009, 12:26 PM, said:

I'm using Fluocinonide .05%, but I'll inquire about the Dapsone cream when I see my Dermatologist in 5 weeks.. Your Pharmacist should be able to answer the Gluten question... One should start a Patient Profile @ their Pharmacy..

My Pharmacy is useless and I cannot trust them. They told me twice that something was Lactose Free/Gluten Free and I got sick and wound up with welts on my scalp. I asked them to flag my profile, but still they cannot be trusted. After more research this afternoon, I realized that the ointment is an antibiotic, which is why my stomach is upset with bad D.

[captaincrab55]

DinaB, on Aug 13 2009, 06:59 PM, said:

My Pharmacy is useless and I cannot trust them. They told me twice that something was Lactose Free/Gluten Free and I got sick and wound up with welts on my scalp. I asked them to flag my profile, but still they cannot be trusted. After more research this afternoon, I realized that the ointment is an antibiotic, which is why my stomach is upset with bad D.

One would think that a Pharmacist could be held accountable.... I'm sure the Government Agency that Licensed the Pharmacist will listen and take action if warranted..

[lovegrov]

Dapsone isn't just for DH. I think it was originally used for leprosy and has been helpful for some symptoms of AIDS.

BTW, I've never heard of the ointment. I always just took the pills.

richard

[DinaB]

lovegrov, on Aug 14 2009, 08:26 AM, said:

Dapsone isn't just for DH. I think it was originally used for leprosy and has been helpful for some symptoms of AIDS.

BTW, I've never heard of the ointment. I always just took the pills.

richard

Yes, it's rather new. And you are correct about leprosy as well.

[ChemistMama]

Topical dapsone (Aczone) is used for certain types of acne.

http://www.aczone.com/home_teens.aspx

The ingredients are below:

Inactive ingredients: Carbomer 980, diethylene glycol monoethyl ether (DGME), methylparaben, sodium
hydroxide, and purified water.

All the ingredients are not synthesized from anything wheat-based (I'm a chemist), but as for it being totally gluten free, I don't know.

Oral dapsone is gluten free, since they know the only two indications for it are leprosy and DH, and the DHers wouldn't use it if it wasn't gluten free!! I got several small tubes from my dermatologist, but since I"m on the oral right now I'll try it when I'm done with the dapsone.