Posted 15 August 2009 - 11:57 AM
Once your body starts producing antibodies they can basically attack any organ in your body. I think it is the antibody reaction that can cause the effects on our mood and behavior. I have severe neuro effects from gluten including ataxia and overwhelming depression that now that I am gluten free is short lived. Unfortunately it seems doctors have a hard time understanding this and even when brought research on the neuro effects of gluten they still seem to just stick it in my file without even looking at it. I am seeing a therapist and psychiatrist to try and resolve my panic attacks and agoraphobia and I am still fighting them both over this issue. My last visit my therapist asked how my depression was and when I stressed once again that I am only depressed when I get glutened she gave me 'the look' and said ooookay....
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)