I went to a dermatologist who has treated my husband for skin cancer and he is a very good doctor. I was seeing him for a small wart removal. I asked him questions about my recent sensitivities due to celiacs. He said the rash I had that went away when I stopped eating grits, the rash that appeared after one day of using a cream with wheat ingredients and the awful itching hands after using a mixed spice, had nothing to do with the celiacs. Totally unrelated....just new allergies. Am I nuts or did this guy not have a clue about celiac sensitivities?
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Did He Have A Clue? or am I misinformed.....
#1
Posted 15 August 2009 - 03:42 AM
Fran
Gluten free since Dec. 2008
New food sensitivities rear their ugly heads as time goes on.
Diagnosed with follicular Non Hodgkin Lymphoma Sept. 2010
Gluten free since Dec. 2008
New food sensitivities rear their ugly heads as time goes on.
Diagnosed with follicular Non Hodgkin Lymphoma Sept. 2010
#2
Posted 15 August 2009 - 04:46 AM
fran641, on Aug 15 2009, 04:42 AM, said:
I went to a dermatologist who has treated my husband for skin cancer and he is a very good doctor. I was seeing him for a small wart removal. I asked him questions about my recent sensitivities due to celiacs. He said the rash I had that went away when I stopped eating grits, the rash that appeared after one day of using a cream with wheat ingredients and the awful itching hands after using a mixed spice, had nothing to do with the celiacs. Totally unrelated....just new allergies. Am I nuts or did this guy not have a clue about celiac sensitivities?
He doesn't have a clue. Thankfully you didn't go to him with the active rash looking for a diagnosis. Unfortunately this is the case with too many derms.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#3
Posted 15 August 2009 - 06:23 AM
Docs can be clueless, but shouldn't be. Mine ordered celiac blood test knowing I had been gluten free for a month. At the time, I didn't know any better, but she should have.
#4
Posted 15 August 2009 - 08:46 AM
Thanks for the responses. I spent so many years and untold money looking for 1 doctor who could tell me why I had diarrhea for the last 30 years. I no longer think that all docs have all the answers. That dermatologist looked at me like I was kooky. "celiac is not the issue" he repeated more than once.
Fran
Gluten free since Dec. 2008
New food sensitivities rear their ugly heads as time goes on.
Diagnosed with follicular Non Hodgkin Lymphoma Sept. 2010
Gluten free since Dec. 2008
New food sensitivities rear their ugly heads as time goes on.
Diagnosed with follicular Non Hodgkin Lymphoma Sept. 2010
#5
Posted 15 August 2009 - 11:29 AM
fran641, on Aug 16 2009, 05:46 AM, said:
Thanks for the responses. I spent so many years and untold money looking for 1 doctor who could tell me why I had diarrhea for the last 30 years. I no longer think that all docs have all the answers. That dermatologist looked at me like I was kooky. "celiac is not the issue" he repeated more than once.
I have found only one dermatologist in my life who impressed me. Unfortunately she is in Petaluma, CA. Stuff my dermatologists at home ignored, she biopsied...several basal cell and one squamous cell carcinoma. Unfortunately, I think like anesthesiologists, it is a specialty for those who graduated bottom of their class.
Neroli
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
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