Help
I've been working for about 8mths to get an article written locally about Celiac awareness & it's finally come to fruition! I'm hoping it helps get the word out especially with school starting in a few days.
http://www.nwherald.com/articles/2009/08/1...78381/index.xml
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Finally Got An Article Written About Awareness W/my Dd!
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#2
Lisa 
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Posted 16 August 2009 - 09:33 AM
Super article. Who knows how many people you may have helped in your community. Cheers to you! 
Lisa
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
Celiac.com - Celiac Disease Board Moderator
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
Celiac.com - Celiac Disease Board Moderator
#3
ravenwoodglass
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Posted 16 August 2009 - 10:22 AM
Very well done. Clear and informative. Thanks for helping get the word out.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#5
kbdy
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Posted 16 August 2009 - 01:01 PM
Mskedi, on Aug 16 2009, 02:59 PM, said:
That's a great article!
Thanks
I've tried so hard to get this done & have been told that there was no interest or that summer fun was more important than this 
#6
Ahorsesoul
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Posted 16 August 2009 - 01:14 PM
Well done!!!!
1960s-had symptoms-could have been before but don't remember
1970s-told had colitis or nervous stomach-was given phenobarbital, felt great but still had symptoms
Me, dd and ds diagnosed with Lactose Intolerance
2000-osteopenia
2001-had stroke because of medications I was given
June 2003-saw Chiropractor who specialized in nutrition: Celiac Disease not Lactose Intolerance, went gluten free with once in awhile cheating, off soy and dairy for about 6 months
June 2003-found excellent doctor for fibromyalgia (who has found out she has Celiac Disease)
May 2006-went gluten free with NO cheating-excellent! Made all the difference in the world
1970s-told had colitis or nervous stomach-was given phenobarbital, felt great but still had symptoms
Me, dd and ds diagnosed with Lactose Intolerance
2000-osteopenia
2001-had stroke because of medications I was given
June 2003-saw Chiropractor who specialized in nutrition: Celiac Disease not Lactose Intolerance, went gluten free with once in awhile cheating, off soy and dairy for about 6 months
June 2003-found excellent doctor for fibromyalgia (who has found out she has Celiac Disease)
May 2006-went gluten free with NO cheating-excellent! Made all the difference in the world
#7
elle's mom
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Posted 16 August 2009 - 05:40 PM
kbdy, on Aug 16 2009, 07:24 AM, said:
I've been working for about 8mths to get an article written locally about Celiac awareness & it's finally come to fruition! I'm hoping it helps get the word out especially with school starting in a few days.
http://www.nwherald.com/articles/2009/08/1...78381/index.xml
http://www.nwherald.com/articles/2009/08/1...78381/index.xml
Thanks for the link. My daughter is starting pre-school in a few weeks and I am going to forward this on to her teacher so she can read it, I think it will be very valuable.........much appreciated!
~Jackie (Mom of a gluten & dairy-free home)
Myself: Neg blood tests despite myriad of life-long symptoms. Enterolab testing positive for gluten sensitivity: DQ5DQ5. Currently gluten, dairy, grain, & sugar free and on rotation diet.
5yo dd diagnosed celiac by blood test/biopsy Oct/Nov 2007: DQ2DQ5
7yo dd: neg blood tests, DQ5DQ6
3yo ds: neg blood tests, IgA deficient, DQ5DQ6
21mo dd: DQ2DQ5
DH: Neg blood tests, by deductive reasoning: DQ2DQ6.
Myself: Neg blood tests despite myriad of life-long symptoms. Enterolab testing positive for gluten sensitivity: DQ5DQ5. Currently gluten, dairy, grain, & sugar free and on rotation diet.
5yo dd diagnosed celiac by blood test/biopsy Oct/Nov 2007: DQ2DQ5
7yo dd: neg blood tests, DQ5DQ6
3yo ds: neg blood tests, IgA deficient, DQ5DQ6
21mo dd: DQ2DQ5
DH: Neg blood tests, by deductive reasoning: DQ2DQ6.
#8
kbdy
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Posted 16 August 2009 - 06:02 PM
elle's mom, on Aug 16 2009, 08:40 PM, said:
Thanks for the link. My daughter is starting pre-school in a few weeks and I am going to forward this on to her teacher so she can read it, I think it will be very valuable.........much appreciated!
I really hope it helps! We went through a lot to get the teachers/directors to understand what needed to be done. Feel free to send me a message if you need anything, good luck!
#9
Lynayah
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Posted 17 August 2009 - 06:54 PM
kbdy, on Aug 16 2009, 07:24 AM, said:
I've been working for about 8mths to get an article written locally about Celiac awareness & it's finally come to fruition! I'm hoping it helps get the word out especially with school starting in a few days.
http://www.nwherald.com/articles/2009/08/1...78381/index.xml
http://www.nwherald.com/articles/2009/08/1...78381/index.xml
You ROCK!!!!!
Gluten Intolerant with double HLA-DQ6. Pre-diagnosis: Weight gain, swelling, diarrhea, mouth sores, back pain, body aches, fatigue, muscle weakness, BRAIN FOG, runny nose, recurrent sinus infections, bruising, low white cell count (whole life), and more. My feet were so bad, I could hardly walk. Toward the end: Chronic Vit. D deficiency (almost no D in my body despite a quality multi-vit. each day).
There is hope! Gluten-free since Sept. '09, and I have my life back - I feel better than in many, many years!
Favorite quotation: "You must do the thing you think you cannot do." - Eleanor Roosevelt
There is hope! Gluten-free since Sept. '09, and I have my life back - I feel better than in many, many years!
Favorite quotation: "You must do the thing you think you cannot do." - Eleanor Roosevelt
#10
mommida
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Posted 18 August 2009 - 04:08 PM
Great job!
It is important to let people know how very small amounts can be harmfull.
People push food on kids too much.
You pointed out the facts, behaviour of adults can hurt Celiac children.
It is important to let people know how very small amounts can be harmfull.
People push food on kids too much.
You pointed out the facts, behaviour of adults can hurt Celiac children.
Michigan
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