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Having A Positive Attitude Helps Me
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5 posts in this topic

I just have to tell you all that I am thankful for your support and understanding. I love coming here to read your posts because you know what I am going through.

I was just excitedly updating my husband yesterday about how wonderful its been to be "grain free" for about 7 weeks - gluten is not a word he cares about. I explained about how my symptoms have gone away, I have more energy and just feel so much better. I don't even have to take a nap every afternoon anymore! But he hasn't been too interested in my health or recovery. I just thought he was at least aware of the basic facts.

So, he goes to our county fair a couple of hours later and brings me home a FUNNEL CAKE! :o But instead of getting upset or angry, I just had to shake my head and laugh. He just does not get it. So I slipped the funnel cake to my teenage son, and he was glad to eat it for me. I will have to try to explain to him this life long change that I have made a little more clearly, I guess....

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Sorry, he's taking it slow. It is hard to get your mind around. I mentioned on another thread how disapointed I was in my sister as I've been on the gluten-free diet for almost two years and this is the first time she's asked me about it. She was shocked that I dx'd myself and wasn't getting a DX from my dr so I could get treatment. When she had a health scare last year, I was researching it in depth to try and understand it and help her. I was disapointed she hadn't even looked up what I was talking about with celiac disease. I've been after her to be tested and she doesn't seem to have the simplest knowledge of the disease. It wouldn't matter so much but her daughter's health is so bad and she is the one who should be on the lookout for it. But my sister is the one with the most influence over her so it probably won't happen.

Sorry for the rant. I guess with your husband patience will be your guide. Of course if he thinks you ate that funnel cake, it will be harder to convince him. Don't you think?

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Hello, I wanted to let you know that we are listening and supporting you!

Is there something else your husband could do for you that would replace the feelings you both used to get from gifts of food?

My BF was with me at the dr's when I was dx'ed and he still didn't believe it. But he's coming around now and even says that he feels better eating more fruit and vegetables and less pasta.

My mom (who probably has celiacs) on the other hand hears white everytime I say black! I told her for years that meat has no carbs. When her dr told her she was diabetic she wrote down "no meat, has carbs" and went out and bought veggie burgers! errrrrr!

Take Care, Ra

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I have pretty much surrendered to the fact that I am on my own in taking care of myself - but I am glad that there are people who understand. The important thing is how much better I am feeling.

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I totally know what you are going through...my family is not very understanding at all. My mom is getting better but I can't trust my dad to cook dinner. When he cooks dinner for the family I have to hover over him and make sure I can eat what he's making, and that he doesn't cc my food. He doesn't understand my symptoms either, because he doesn't think it makes sense to get a headache and feel really tired from an "allergy". Kind of annoying, but I don't live at home as of last week :)

My boyfriend on the other hand is really good with my celiac. he lives in Portland and I have been down here for a while, and he loves taking me Gluten Free shopping, and we've been checking out a bunch of restaurants. (I highly reccommend Corbett's Fish House!!). He even eats gluten-free while around me so that he can kiss me after :) If only the family could be as careful as him!

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    • I havent used it, not much of a baker tbh, but this one looks good: http://alittleinsanity.com/gluten-free-pie-crust-recipe/
    • As you say, there's no test, it's diagnosed by exclusion, so there's no metrics to check to assess compliance other than anecdotal response to symptoms. Conversely, I've not seen anything that says that NCGI can resolved or be cured either.  This paper gives a good summation.  Basically, there's not much research period! That is changing though, I think there's research underway which could help give answers.
    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
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