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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Having A Positive Attitude Helps Me
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5 posts in this topic

I just have to tell you all that I am thankful for your support and understanding. I love coming here to read your posts because you know what I am going through.

I was just excitedly updating my husband yesterday about how wonderful its been to be "grain free" for about 7 weeks - gluten is not a word he cares about. I explained about how my symptoms have gone away, I have more energy and just feel so much better. I don't even have to take a nap every afternoon anymore! But he hasn't been too interested in my health or recovery. I just thought he was at least aware of the basic facts.

So, he goes to our county fair a couple of hours later and brings me home a FUNNEL CAKE! :o But instead of getting upset or angry, I just had to shake my head and laugh. He just does not get it. So I slipped the funnel cake to my teenage son, and he was glad to eat it for me. I will have to try to explain to him this life long change that I have made a little more clearly, I guess....

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Sorry, he's taking it slow. It is hard to get your mind around. I mentioned on another thread how disapointed I was in my sister as I've been on the gluten-free diet for almost two years and this is the first time she's asked me about it. She was shocked that I dx'd myself and wasn't getting a DX from my dr so I could get treatment. When she had a health scare last year, I was researching it in depth to try and understand it and help her. I was disapointed she hadn't even looked up what I was talking about with celiac disease. I've been after her to be tested and she doesn't seem to have the simplest knowledge of the disease. It wouldn't matter so much but her daughter's health is so bad and she is the one who should be on the lookout for it. But my sister is the one with the most influence over her so it probably won't happen.

Sorry for the rant. I guess with your husband patience will be your guide. Of course if he thinks you ate that funnel cake, it will be harder to convince him. Don't you think?

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Hello, I wanted to let you know that we are listening and supporting you!

Is there something else your husband could do for you that would replace the feelings you both used to get from gifts of food?

My BF was with me at the dr's when I was dx'ed and he still didn't believe it. But he's coming around now and even says that he feels better eating more fruit and vegetables and less pasta.

My mom (who probably has celiacs) on the other hand hears white everytime I say black! I told her for years that meat has no carbs. When her dr told her she was diabetic she wrote down "no meat, has carbs" and went out and bought veggie burgers! errrrrr!

Take Care, Ra

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I have pretty much surrendered to the fact that I am on my own in taking care of myself - but I am glad that there are people who understand. The important thing is how much better I am feeling.

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I totally know what you are going through...my family is not very understanding at all. My mom is getting better but I can't trust my dad to cook dinner. When he cooks dinner for the family I have to hover over him and make sure I can eat what he's making, and that he doesn't cc my food. He doesn't understand my symptoms either, because he doesn't think it makes sense to get a headache and feel really tired from an "allergy". Kind of annoying, but I don't live at home as of last week :)

My boyfriend on the other hand is really good with my celiac. he lives in Portland and I have been down here for a while, and he loves taking me Gluten Free shopping, and we've been checking out a bunch of restaurants. (I highly reccommend Corbett's Fish House!!). He even eats gluten-free while around me so that he can kiss me after :) If only the family could be as careful as him!

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    • Will my doctor test me? So many symptoms...
      Remember that you have to be eating a normal gluten diet for the testing so don't cut back & don't stop eating it. Make sure they do the full, current celiac panel: Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
      Anti-Endomysial (EMA) IgA
      Anti-Tissue Transglutaminase (tTG) IgA
      Deamidated Gliadin Peptide (DGP) IgA and IgG
      Total Serum IgA   
      Also can be termed this way: Endomysial Antibody IgA
      Tissue Transglutaminase IgA 
      GLIADIN IgG
      GLIADIN IgA
      Total Serum IgA 
      Deamidated Gliadin Peptide (DGP) IgA and IgG
    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
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