Whats The Deal With Drs?

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#1 crimsontopper

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Posted 16 August 2009 - 10:15 PM

i am new to the forum. i am currently exhibiting many of the symptoms most posters talk about. during my reading i have come across one thing that seems to be consistant throughout diagnosis and that is that drs easily dismiss celiac. why is this? i asked my dr to prefrom the test and after asking why they agreed easily.

#2 mushroom

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Posted 17 August 2009 - 08:24 AM

You were one of the lucky ones, first of all to know about celiac, and secondly to have a doctor willingly test you for it. Count yourself as fortunate

Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#3 OptimisticMom42

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Posted 17 August 2009 - 08:31 AM

It was easy for us also. There are three of us in our house and we didn't have and problem getting the dr's to dx us.

Dx Celiacs March '09

#4 Jestgar

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Posted 17 August 2009 - 08:36 AM

I had no problem getting tested, and even though it was neg (anti gliadin only was run) my doc feels that the improvement in my health is proof enough.

"But then, in all honesty, if scientists don't play god, who will?"
- James Watson

My sources are unreliable, but their information is fascinating.
- Ashleigh Brilliant

Leap, and the net will appear.

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#5 ENF

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Posted 17 August 2009 - 09:14 AM

It seems that various states have different rules for allowing insurance companies to deny coverage for testing and other procedures. My state is pretty good in this regard, and I can usaually get whatever tests I want.

Celiac diagnosis from positive blood work & endoscope (2005)

Serologic equivalent: HLA-DQ 2,3 Subtype 2,8 (double Celiac genes)

#6 G-freegal12

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Posted 18 August 2009 - 07:01 AM

They are all so under educated it's crazy. :angry:

I am gonna be a doctor so I can be educated and fix people

....why did everyone start screaming and running away when I said I wanted to be a doctor...?

Went gluten free as of the summer of 2009
I have also now declared doctors as not really very smart
(No offense to all the good ones)
Gluten is sneaky and not to be trusted...

#7 GarBear

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Posted 19 August 2009 - 12:25 AM

crimsontopper, on Aug 16 2009, 11:15 PM, said:

Ugh! i went to my (mediocre) doctor yesterday to ask him for the lab slip to get tested for celiac (I've been gluten-free for three months now), and anyway... he was SO RUDE about it! I was really upset! He had originally told me that i had irritable bowel (which in my opinion is a total cop-out diagnosis and it just means that they have no idea what's wrong with you). It seemed like he was offended that i didn't agree at all with his original diagnosis.

Anyway... i've been rambling.. Took my blood tests this morning (anxiously waiting for the results! haha)

#8 ravenwoodglass

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Posted 19 August 2009 - 02:01 AM

GarBear, on Aug 19 2009, 12:25 AM, said:

IF you have been gluten-free for 3 months chances are the test will be negative. You need to be consuming gluten for the tests to be positive. If you need a doctors diagnosis you need to go back on gluten. If the challenge makes you very ill IMHO you have your answer no matter what the test results.

Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)

celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom

Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#9 jkr

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Posted 19 August 2009 - 04:54 AM

crimsontopper, on Aug 17 2009, 01:15 AM, said:

Yes, I had to have two endoscopies to prove it to the GI. When I first told him last year I thought I had celiac, he said to me "but you don't diarrhea." After the first endoscopy I told him I wanted the blood tests, then he took me seriouisly when they were very abnormal. Then he took the biopies for the second one. I know a lot of people would have switched doctors but I didn't want to go to another doctor and start over.

Good luck.

#10 ang1e0251

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Posted 19 August 2009 - 04:55 AM

You're lucky because you had a clue to your illness. Those of us that are clueless go to our dr's with these seemingly random symptoms expecting our dr to put it all together. Many dr's are just undereducated about celiac disease and don't see the pattern. So we are stuck spinning our wheels while test after test is run with no results. Oh if I only could have had the knowledge to ask for a celiac panel....

#11 GarBear

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Posted 22 August 2009 - 12:54 PM

ravenwoodglass, on Aug 19 2009, 03:01 AM, said:

Interesting.. Well thanks for the info =)

#12 ann72601

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Posted 24 August 2009 - 08:59 AM

crimsontopper, on Aug 16 2009, 11:15 PM, said:

It seems that if you are a woman, it's harder to be heard. If you're an uninsured woman, it's even harder. If you are alone........bring someone with you :lol:

#13 Li'l Buck

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Posted 24 August 2009 - 10:36 AM

At 40, my lifetime GP retired. My new doctor checked my history and had me tested almost immediately. I think he has celiac disease and so has a vested interest in learning about the disease. What kills me are the Drs in emergency (presumably they are supposed to have the most current medical info?) and paramedics who know nothing about it.

I think that most Doctors get their information (post medical school and perhaps even during) from the drug companies and since they don't have a drug to patent to cure us; they prefer to focus on the drugs to treat our symptoms... far more profitable for the drug companies.

#14 ann72601

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Posted 24 August 2009 - 11:27 AM

Li'l Buck, on Aug 24 2009, 11:36 AM, said:

In my case, I had to kiss a lot of frogs before I found the prince. I use an MD and ND, both are older and wiser having experienced more than med school. It doesn't matter what there is in life to learn; there is nothing like experiencing it and this means doctors too. My thanks actually goes to the people here who have been there and done that. They've helped me know how to deal with docs and all the daily challenges that come with celiac. I love them!!