Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Kiahrea


  • Please log in to reply

18 replies to this topic

#16 Ally2005

 
Ally2005

    Community Member

  • Advanced Members
  • PipPipPip
  • 34 posts
 

Posted 25 April 2005 - 10:18 AM

It sounds like he was very ill. As I mentioned I also had stage three. I was working, running 50K (about 35 miles per week) and taking a night class. The only reason I went to the doctor was to ask if I could take immodium on a regualr basis to control the D I was having. I must admit that for six months prior to diagnosis I was feeling more mentally and phsycially fatigued but not to the point I couldn't do what I had been doing. It's so odd that two people can have the same disease and to the same extent and have symptoms soooo different. What neurological symptoms does he have? What did "ill" look like for your husband?
  • 0

Celiac.com Sponsor:

#17 nikki-uk

 
nikki-uk

    Out running.

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,957 posts
 

Posted 26 April 2005 - 02:29 AM

Hi Ally,
to describe my husbands neurological symptoms,they are;
Numbness,pain,tingling,burning pain in feet and legs.
Soles of feet hurt to stand on
Extreme difficultly getting to standing from chair(although he wants to get up nothing happens,takes about 5 mins)
Spatial awareness problems(bumping into things-like he's drunk!
Terrible headaches
Dizzy spells and balance problems
'freezing up' as day goes on-(he says it feels like he slowly being paralysed.
Shuffling gait(can't pick feet up)
Needs to sleep at least 16-18hrs a night
Constant 'brain fog'

To describe how he looks on a bad day,
I suppose like an emaciated little old man(he's only 40)as he can't seem to stand up straight,and shuffles.
Or a terminally ill cancer patient-people have asked me if he has cancer.
Not a good look,-still ,hoping the steriods will help with him gain some weight.
The battle against celiac disease is not over yet,but he's heading in the right direction.
  • 0
It's not enough that we do our best; sometimes we have to do what's required - Sir Winston Churchill

Nikki



Son diagnosed with Coeliac Disease Oct 2006 by biopsy (at age 13yrs)

Posted Image

#18 Ally2005

 
Ally2005

    Community Member

  • Advanced Members
  • PipPipPip
  • 34 posts
 

Posted 26 April 2005 - 06:10 AM

That totally sucks!! You both must be very frustrated by now. Thank goodness he is starting to improve a bit. Will these neuro symptoms improve once the celiac disease is under control.? How do YOU cope with all this?

Ally
  • 0

#19 nikki-uk

 
nikki-uk

    Out running.

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,957 posts
 

Posted 26 April 2005 - 09:16 AM

Thanks Ally.
I can't tell you how frustrating it's been!.You just have to get on with it though.Whilst on steriods all of my hubbie's symptoms have quietened down,but I don't know if the neuro symptoms will return.Suppose we'll have to wait until we've seen the neurologist.
-Will keep you all posted on his progress-cases like his seem so rare.
Hope things improve for you soon!
  • 0
It's not enough that we do our best; sometimes we have to do what's required - Sir Winston Churchill

Nikki



Son diagnosed with Coeliac Disease Oct 2006 by biopsy (at age 13yrs)

Posted Image




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: