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Who Else Has Esophageal Spasms And Difficulty Swallowing?


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18 replies to this topic

#1 nasalady

 
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Posted 18 August 2009 - 10:55 AM

I have had increasing problems with esophageal spasms in the past several years.

Sometimes it's really difficult to swallow food or pills....my throat just seems to try to close up on me. Other times the spasms are lower down, in the chest area.

I had one in my chest last year that was so intense they hospitalized me for 3 days and ran TONS of tests because they were sure I'd had a heart attack!

My mom has this same problem.

Does anybody else experience this?? Is it related to celiac disease or not? (I hate to blame EVERYTHING on celiac disease!)
  • 0
Multiple autoimmune diseases, including celiac, Hashimoto's, psoriasis, autoimmune hepatitis, RA, SLE. Also have fibromyalgia.

Tested Fall 2008: bloodwork, biopsy negative; HLA DQ8. Doctor believes results negative due to prednisone and Imuran taken for autoimmune hepatitis.

Dx with celiac disease because of dietary response, genetics, and family history of celiac disease.


Dx with Lyme Disease Jan 2010; Lyme likely triggered some of the AI diseases.

Gluten free since 25 Nov 2008

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#2 momxyz

 
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Posted 18 August 2009 - 01:13 PM

it could be esophageal reflux.

I was diagnosed with reflux and treated briefly for it. Once in a blue moon I will have an episode and it feels like the bite I have taken just won't go down. Sometimes I end up regurgitating a lot of mucous.

There's probably not any connection to celiac disease, but I have not researched this, maybe someone else knows more.
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#3 mushroom

 
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Posted 18 August 2009 - 01:29 PM

I have trouble swallowing things sometimes, especially pills (which I used to swallow even without water, now I can't even choke or flush them down). I think, though, that mine has more to do with forming a gas bubble in the esophagus which the peristaltic waves can't force the food to penetrate. I have learned to always burp a couple of times to try and get rid of that gas bubble but still sometimes things stick and I feel like I am choking and it is quite distressing. Several times before I got a handle on it I would end up retching and vomiting up the pills I just took.Bah!!!
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

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Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
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Now tolerant of lactose

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#4 nasalady

 
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Posted 18 August 2009 - 01:38 PM

it could be esophageal reflux.

I was diagnosed with reflux and treated briefly for it. Once in a blue moon I will have an episode and it feels like the bite I have taken just won't go down. Sometimes I end up regurgitating a lot of mucous.

There's probably not any connection to celiac disease, but I have not researched this, maybe someone else knows more.


Thanks momxyz!

I searched on celiac acid reflux and came up with this:

http://infantrefluxd...flux-celiac.php

So apparently celiac disease can cause acid reflux. But now that I'm gluten free I think that what's causing my reflux is the prednisone I'm on. I do remember my GI saying something about acid reflux possibly triggering the chest spasms.
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Multiple autoimmune diseases, including celiac, Hashimoto's, psoriasis, autoimmune hepatitis, RA, SLE. Also have fibromyalgia.

Tested Fall 2008: bloodwork, biopsy negative; HLA DQ8. Doctor believes results negative due to prednisone and Imuran taken for autoimmune hepatitis.

Dx with celiac disease because of dietary response, genetics, and family history of celiac disease.


Dx with Lyme Disease Jan 2010; Lyme likely triggered some of the AI diseases.

Gluten free since 25 Nov 2008

#5 nasalady

 
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Posted 18 August 2009 - 01:44 PM

I have trouble swallowing things sometimes, especially pills (which I used to swallow even without water, now I can't even choke or flush them down). I think, though, that mine has more to do with forming a gas bubble in the esophagus which the peristaltic waves can't force the food to penetrate. I have learned to always burp a couple of times to try and get rid of that gas bubble but still sometimes things stick and I feel like I am choking and it is quite distressing. Several times before I got a handle on it I would end up retching and vomiting up the pills I just took.Bah!!!


Thanks mushroom....I'm sorry to hear that you had this sort of problem!

It sounds somewhat similar in that I do end up gagging and retching sometimes when trying to swallow but I'm not sure that it's gas that's in the way. It actually feels like my throat has suddenly become too small (spasm?). If it happens when the food or pills are part way down everything just sits there until my throat relaxes.
  • 0
Multiple autoimmune diseases, including celiac, Hashimoto's, psoriasis, autoimmune hepatitis, RA, SLE. Also have fibromyalgia.

Tested Fall 2008: bloodwork, biopsy negative; HLA DQ8. Doctor believes results negative due to prednisone and Imuran taken for autoimmune hepatitis.

Dx with celiac disease because of dietary response, genetics, and family history of celiac disease.


Dx with Lyme Disease Jan 2010; Lyme likely triggered some of the AI diseases.

Gluten free since 25 Nov 2008

#6 mushroom

 
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Posted 18 August 2009 - 01:54 PM

Thanks mushroom....I'm sorry to hear that you had this sort of problem!

It sounds somewhat similar in that I do end up gagging and retching sometimes when trying to swallow but I'm not sure that it's gas that's in the way. It actually feels like my throat has suddenly become too small (spasm?). If it happens when the food or pills are part way down everything just sits there until my throat relaxes.

Yeah, that's how it is for me too. I thought I was the only one that weird. But it does seem to help if I burp first. You might try it :)
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#7 nasalady

 
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Posted 18 August 2009 - 03:25 PM

Yeah, that's how it is for me too. I thought I was the only one that weird. But it does seem to help if I burp first. You might try it :)


OK, I'll try it....unfortunately I've never been very good at burping (unlike my my brothers!).
:P
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Multiple autoimmune diseases, including celiac, Hashimoto's, psoriasis, autoimmune hepatitis, RA, SLE. Also have fibromyalgia.

Tested Fall 2008: bloodwork, biopsy negative; HLA DQ8. Doctor believes results negative due to prednisone and Imuran taken for autoimmune hepatitis.

Dx with celiac disease because of dietary response, genetics, and family history of celiac disease.


Dx with Lyme Disease Jan 2010; Lyme likely triggered some of the AI diseases.

Gluten free since 25 Nov 2008

#8 darlindeb25

 
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Posted 18 August 2009 - 04:14 PM

I have this problem too. Have had it for years, there are certain foods that trigger it more so for me. People tell you chewing your food before swallowing is required. I hate when they say that, thinking they are being funny. I can have this problem swallowing pudding, and there is no chewing to it. Pistachio pudding, pineapple, and used to be bread was the worst for me. At least once a week this happens with my supper, sometimes, I can't even catch my breath. It can be very scary.

I don't think it probably has anything to do with celiac/gluten intolerance. It happens to me now, just as much as it did before I went gluten free, and that's been over 9 years.
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Deb
Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

#9 nasalady

 
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Posted 18 August 2009 - 04:43 PM

I have this problem too. Have had it for years, there are certain foods that trigger it more so for me. People tell you chewing your food before swallowing is required. I hate when they say that, thinking they are being funny. I can have this problem swallowing pudding, and there is no chewing to it. Pistachio pudding, pineapple, and used to be bread was the worst for me. At least once a week this happens with my supper, sometimes, I can't even catch my breath. It can be very scary.

I don't think it probably has anything to do with celiac/gluten intolerance. It happens to me now, just as much as it did before I went gluten free, and that's been over 9 years.


I know....there's nothing funny about it! It is scary.

That's really interesting about the food triggers. Do processed foods tend to give you problems?
  • 0
Multiple autoimmune diseases, including celiac, Hashimoto's, psoriasis, autoimmune hepatitis, RA, SLE. Also have fibromyalgia.

Tested Fall 2008: bloodwork, biopsy negative; HLA DQ8. Doctor believes results negative due to prednisone and Imuran taken for autoimmune hepatitis.

Dx with celiac disease because of dietary response, genetics, and family history of celiac disease.


Dx with Lyme Disease Jan 2010; Lyme likely triggered some of the AI diseases.

Gluten free since 25 Nov 2008

#10 darlindeb25

 
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Posted 18 August 2009 - 05:25 PM

I do not eat processed foods. I am very limited on what I can eat. I do eat peanut butter, and I guess that could be called processed. I use Skippy Natural, 4 ingredients. I can't have pudding anymore, so cant test the pistachio pudding (dairy free).

It is very scary. You either have to get the food to come up, or hope it goes down...sometimes, taking several minutes.

Now, it seems even worse than it had been. I have issues with dry mouth, and I think my epophagus is effected too. I have very dry eyes too, and was tested for Sjogrens, which came back negative.
  • 0
Deb
Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

#11 flourgirl

 
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Posted 18 August 2009 - 06:22 PM

Darlin'Deb.....I was for sure going to suggest testing for Sjogrens reading your reply.....then you said you tested negative for it. I've had increasing difficulty with swallowing, dry mouth, eyes etc. Turns out that's what's been going on with me. Not "you're just upset from being so ill". Don't ever fall for that line about symptoms. :P I don't even try to eat bread or "dry" foods anymore 'cause it sticks all over the inside of my mouth and then it's murder to get it down. My gag reflex seems to be much more sensitive than it used to be, too.

I had not considered the reflux idea. I do have a hiatus hernia, so I suppose it all comes in to play. Good luck all of you in finding the proper answers for yourselves.
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#12 jerseyangel

 
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Posted 18 August 2009 - 07:01 PM

Interesting...I have a hiatal hernia too and 2 years ago I was having symptoms like nasalady. I had the cardiac testing (echo stress test and wore a Holter Monitor) and those were negative. I was diagnosed with bronchial spasms.

I don't think it's necessarily related to the Celiac but who knows. My bronchial spasms and chronic allergic rhinitis are caused by allergies, according to my ENT and he told me that Celiacs are prone to allergies. Related--maybe??

I believe some of my symptoms (difficulty swallowing, food getting stuck in my throat, reflux) improved when I cut out legumes.
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#13 elle's mom

 
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Posted 18 August 2009 - 07:19 PM

I don't have this, but what you guys are describing sounds like what my twin cousins have, they have been diagnosed with "eosinophilic esophagitis".........they were because of this, and that celiac is in the family (my daughter), given the blood test for celiac, and it was supposedly negative. Not that they don't have it of course, because I believe they also exhibit other symptoms. But the negative blood test was enough for everyone in the family to drop the celiac issue for them. They would never follow the gluten-free diet. Anyway, I believe they were prescribed allergy medicine for it, but I'm not 100% sure. They are 16 and have suffered with this from an early age, like 5 or 6. It occurs randomly, I don't think they've realized a particular trigger.
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~Jackie (Mom of a gluten & dairy-free home)
Myself: Neg blood tests despite myriad of life-long symptoms. Enterolab testing positive for gluten sensitivity: DQ5DQ5. Currently gluten, dairy, grain, & sugar free and on rotation diet.
5yo dd diagnosed celiac by blood test/biopsy Oct/Nov 2007: DQ2DQ5
7yo dd: neg blood tests, DQ5DQ6
3yo ds: neg blood tests, IgA deficient, DQ5DQ6
21mo dd: DQ2DQ5
DH: Neg blood tests, by deductive reasoning: DQ2DQ6.

#14 mushroom

 
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Posted 18 August 2009 - 07:55 PM

I don't have this, but what you guys are describing sounds like what my twin cousins have, they have been diagnosed with "eosinophilic esophagitis".........they were because of this, and that celiac is in the family (my daughter), given the blood test for celiac, and it was supposedly negative. Not that they don't have it of course, because I believe they also exhibit other symptoms. But the negative blood test was enough for everyone in the family to drop the celiac issue for them. They would never follow the gluten-free diet. Anyway, I believe they were prescribed allergy medicine for it, but I'm not 100% sure. They are 16 and have suffered with this from an early age, like 5 or 6. It occurs randomly, I don't think they've realized a particular trigger.

Funny you should say that, because my eosinophils are usually out of range :o
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#15 ang1e0251

 
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Posted 19 August 2009 - 08:12 AM

This doesn't sound exactly like the condition you all described but I thought you might find it interesting.


http://drcarolyndean...d-from-gagging/
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