Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Very Confused
0

4 posts in this topic

Hello, my name is Stephanie. I have three children, two that have been recently diagnosed with celiac disease. I am having a very hard time getting them to eat. My son is 9 and my daughter will be 6 next Tuesday. She (Abbey-Rose) is the tough one. She was very picky to begin with. Now I am afraid she is going to starve to death :( . Her biopsy was done on Monday, her GI doctor said that her duodenum looked suspicious, does anyone know what that means. I will gladly take any advice anyone has on how to cope with all of the info. and ways to get them to eat.

Thanks,

Stephanie

0

Share this post


Link to post
Share on other sites


Hi Stephanie.

There is a book out about fun foods for kids to eat that are gluten free. I have made my niece (celiac) corn dogs, ravioli, etc. Also, Danna Korn has a book about raising your children gluten-free and also you may want to see if there is a ROCK (raising our celiac kids) group in your area -- they're bound to have some good ideas.

Does your daughter like chicken nuggets? There are gluten free chicken nuggets -- sold at Whole Foods and other health food stores. Also, there is good gluten-free pasta in different shapes. Kraft macaroni and cheese -- the cheese sauce packet is gluten free (you should call to check, I haven't checked in several months) so you can so you can use gluten-free pasta and then make the cheese sauce.

Also, Kinnikinnick makes good gluten-free bread (www.kinnikinnick.com) for PB&J sandwiches or grilled cheese, etc. (the bread is better if it is lightly toasted, but it is the only ready made bread I will eat).

Hope that helps. Good luck.

Kim, gluten-free for 5+ years

0

Share this post


Link to post
Share on other sites

Kim, I was wondering if you have the name of those gluten-free chicken nuggets? My kids are nugget junkies and I would like to make sure our Whole Foods carries them before my kids go gluten-free. (The finish testing next month) Thanks.

Also, would you happen to know if Kinnikinnick carries any yeast free breads?

And are the breads really more like real bread, or are they very dense like the other store bought gluten-free breads? I can't get past how heavy they are, and I sometimes try to slice one in half since two pieces is just too heavy for a sandwich.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Mariann:

I ordered the white sandwich bread from Kinnikinnick and it was very good. Hope ate a grilled cheese and I had some french toast. It is worth the $$ and A LOT better than what is found in the local stores!!!!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      102,705
    • Total Posts
      914,501
  • Topics

  • Posts

    • Celiac in 10 month old?
      only the first one is a celiac test.  and you need the rest of them run.  What country are you in?
    • Second Panel has come back...advice?
      If you follow the gluten-free diet correctly, without being paranoid about it either......your DGP will drop because you won't be eating the food that makes it rise.  I think having a gluten-free house is a great idea because it allows you to relax in your own home. As for reading labels all the time, I have a few comments on that one.  In the beginning, and depending on just how much processed foods you plan on eating, it is a good idea to get into the habit of reading labels.  You learn how to do that correctly from experience.  However, in 11 years gluten free, I have never once seen any processed food I have bought that changed their ingredients. I'm sure it can happen but I've never seen it. Usually, with higher end brands, they never do that because if the product is a success, they don't mess with it.  I can't speak for generic or store brands because I do not buy them. I do not eat a lot of processed foods either. If you are buying a product specifically geared towards the Celiac population and is certified gluten-free, you do not have to check the label unless you have other food intolerance's. Glutino and the other companies which market a gluten-free line of products will not change their ingredients and put something in there we cannot have. Whole Foods Market Gluten Free Bakery line....same thing.  They are all dedicated facilities that make food for Celiac's and are not a worry. I am from New England and buy B & M baked beans, which are gluten free. They are a New England company and haven't changed their recipe for years and years...in fact, maybe never.  Those beans are an institution around here and they will not change their ingredients that have been popular for a very long time.....they have been around since my great-grandmother's time. I buy the basic ones without the added flavorings like onion, etc. I can't speak for every flavor they produce because I eat only the basic beans. But I no longer check the label....don't have to. The company specifically told me they don't mess with success and would not change ingredients. Supplements are something you need to read labels on every time but food items are a little different and you will become very good at understanding the whole thing the longer you do it. It becomes second nature. I am very happy you are on your way to a much healthier life! 
    • Nation's First Free Food Pantry for People with Food Allergies or Celiac Disease
      Kansas is wheat country, and like the rest of America, Kansans are generally not gluten-free. That means the food in their charity food pantries are not usually gluten-free. View the full article
    • Celiac in 10 month old?
      This is a link that will explain sreun panels for infants under 2 years of age. http://www.thepatientceliac.com/2013/04/18/update-on-celiac-disease-screening-in-infants-and-toddlers/ The author of that is a doctor, has celiac herself, and is a member of celiac.com. Here is a link that tells you about her: http://www.thepatientceliac.com/about-me/   This link will also give you information: http://www.beyondceliac.org/living-with-celiac-disease/info-for-parents/testing/ Quoting from it in part: Celiac Disease Testing in Children Under 3 Blood tests are not always accurate in very young children. If your child is less than 3 years old, you may be advised to see a gastroenterologist instead of relying on blood tests results.
    • Celiac in 10 month old?
      That was not a full celiac blood panel that was done. Plus, as I understand it, at that age the DGP is more likely to be high rather than the others. Here is the full celiac blood panel: Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
      Anti-Endomysial (EMA) IgA
      Anti-Tissue Transglutaminase (tTG) IgA
      Deamidated Gliadin Peptide (DGP) IgA and IgG
      Total Serum IgA   
      Also can be termed this way: Endomysial Antibody IgA
      Tissue Transglutaminase IgA 
      GLIADIN IgG
      GLIADIN IgA
      Total Serum IgA 
      Deamidated Gliadin Peptide (DGP) IgA and IgG  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      59,744
    • Most Online
      1,763

    Newest Member
    Anakinsmom2
    Joined