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Just Diagnosed With Celiac


Lisa Ann

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Lisa Ann Apprentice

I was just diagnosed Wed. with Celiac. I was diagnosed as a baby back in the late 60's also but since they didn't know a whole lot about Celiac I've been eating normal food up until now (age 36). After reading about Celiac in a digestion book I decided to get checked for sure. The blood results definetely pointed to Celiac and I had an Endoscopy with biopsies on Wed. I'm wondering if it's normal to have biopsies and what the results usually tell you. I'm hoping to hear in a few days. My next Dr.'s appt is May 9th.

This is a fantastic sight and I've actually started the gluten-free diet but eating out has me very confused. :blink:

Since I'm very new at this any help would be greatly appreciated.

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celiac3270 Collaborator

Biopsies are a pretty regular occurence after positive bloodwork. The biopsy will usually show either complete damage to the villi (where all the samples come back as positive), patchy damage (some samples showing villous atrophy, some not), or no damage, which could be the result of taking samples from all the areas that were not damaged. With positive bloodwork, though, a negative biopsy should not be taken too seriously. It could be due to a number of factors.

Don't start the gluten-free diet until after all testing is complete--you don't want a false negative.

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KaitiUSA Enthusiast

Yes I agree with celiac3270 100%.

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    • Bayb
      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
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      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
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      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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