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Just Diagnosed With Celiac
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I was just diagnosed Wed. with Celiac. I was diagnosed as a baby back in the late 60's also but since they didn't know a whole lot about Celiac I've been eating normal food up until now (age 36). After reading about Celiac in a digestion book I decided to get checked for sure. The blood results definetely pointed to Celiac and I had an Endoscopy with biopsies on Wed. I'm wondering if it's normal to have biopsies and what the results usually tell you. I'm hoping to hear in a few days. My next Dr.'s appt is May 9th.

This is a fantastic sight and I've actually started the gluten-free diet but eating out has me very confused. :blink:

Since I'm very new at this any help would be greatly appreciated.

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Biopsies are a pretty regular occurence after positive bloodwork. The biopsy will usually show either complete damage to the villi (where all the samples come back as positive), patchy damage (some samples showing villous atrophy, some not), or no damage, which could be the result of taking samples from all the areas that were not damaged. With positive bloodwork, though, a negative biopsy should not be taken too seriously. It could be due to a number of factors.

Don't start the gluten-free diet until after all testing is complete--you don't want a false negative.

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Yes I agree with celiac3270 100%.

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    • I use to get them before I went gluten-free.  I stopped eating oats because it also does give me canker sores and causes my toes to get cracked underneath.  
    • I had quite a few of the medical problems that you have before I figured out that gluten was the problem. I can’t do basic math or writing when I eat gluten also I get depressed, irritable, low energy, etc. The best route to go is to do an elimination diet and monitor how certain foods affect you. I eliminated MSG (Monosodium Glutamate), Nitrite, and oat based on the reactions that I get once I consume them. You must be disciplined on a gluten free diet, there is not such a thing as –It is just one cookie! If you can manage to go 100% gluten-free for three weeks and you see those problems going away, you will have a good idea if that is the cause of your problems. The blood test I did after being gluten-free for two years came back negative so the doctor just make me feel that I was crazy and making things up. I have a stool test done which came back with elevated igA also a gene test indicating I have two genes that code for gluten sensitivity. My lactose intolerance went away too, eating a lot of cheese now. Rash in arms? gone, Brown spots in teeth? Gone, Intestinal noises? Gone, Lack of bladder control? Gone, Constipation? Gone, and a lot others.   
    • Oh you're most welcome!  Another thing --- no steroids, oral or injected for 2 months prior to a dh biopsy. Lay off any topical steroid creams for 2 weeks prior. Really, stand your ground with them. It would also be great if you can get a friend or family member to go with you in case they take the biopsy from somewhere that you can't see such as the back of your neck. Your friend/family member can watch to make sure they don't take it directly ON a lesion. Do you have a primary care doc? You can also go to that doc & ask for a full celiac panel PLUS an eTG or TG3. 60% of people with dh test negative on the celiac blood panel but maybe you're one of the 40% who will test positive. It's worth a shot.
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