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Celiac & Carrageenan Sensitivity?

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I was never diagnosed with Celiac disease (my test came back negative). I decided to go with a gluten free/casein free and completely dairy free diet anyway, but I still have a few symptoms that haven't cleared up. I have lost almost all faith in modern medicine as the answer to my health problems - I don't believe that antibiotics or medications with side effects will do me any good. I have been working to cure my ailments by trying to eliminate offending foods before going to the doctor again.

Since cutting out wheat/gluten, my skin cleared up and I was no longer having really abnormal bowel movements (constipation and very hard stools). After removing milk and dairy from my diet, the blue hue under my eyes started to fade away and look natural again. I had intensely painful anal fissures/internal hemorrhoids which were bleeding whenever I went to the bathroom. The bleeding is gone now, but the hemorrhoids are still painful, and haven't completely cleared up. I was also still experiencing eczema breakouts around my nose and mouth. I am lightheaded on a daily basis even after drinking considerable amounts of water and eating a healthy diet. The last problem I am experiencing is pain in my right abdomen, which I can't attribute to anything other than my daily black coffee.

I came across some information on carrageenan recently and found that it is an additive that actually affects a lot of people - especially people w/Celiac or other food allergies/sensitivities. You can read posts people left here:

Since cutting out carrageenan as carefully as I can, the eczema around my mouth/nose has been clearing up. My other symptoms (stomach pain, hemorrhoids, lightheadedness) have not completely cleared up, but it's only been a week since I've noticed the eczema is going away. I keep a detailed food journal and eat a good amount of fiber, fruit and vegetables daily.

Sorry for the long post and explanation. I am hoping maybe there is someone out there who has experienced similar issues and what you did to alleviate the symptoms. I have read a couple other posts who said they have cut out all grains completely. I would prefer not to have to do that, but I'm starting to feel like I'm insane. My symptoms never end and my doctors have yet to help me.


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    • Long pause because I wanted my latest lab results and they took forever.  Cortisol, ACTH, estadiol, vitamin a and whatever else were all fine. They are retesting my thyroid in four weeks. I definitely bought the wrong product and glutened myself a few weeks back so I guess that has to wait which really irritates me. My gliadin iga ab was greater than 100 almost two yrs ago at diagnosis so I guess sometime next yr I'll redo that and hope it's down :-/. Trying to do all the right things and get bad information from doctors.  Thanks for all the info you've shared and helped me with. I've had lab work every month since May and will next month for the thyroid again. Sigh. 
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