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#1 User is offline   jasonD2 

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Posted 31 August 2009 - 11:21 AM

Avoiding just gluten for the rest of my life wouldnt be that big of a deal...but I also have to avoid all dairy, eggs and soy as well...not to mention other foods that give me problems. why does it seem like im the only person on the planet that has to be so restricted?

I'm currently focusing on my candida so is there a chance that someday I will be able to introduce some things back into my diet? will it be possible to ever eat dairy again?
Endoscopy & blood panel all negative 12/09 after being strict w/ gluten free diet

As of 8/09 - Candida Overgrowth, C.difficile overgrowth, elevated fecal anti-gliadin, elevated putrefactive SCFA's

Developed severe lactose intolerance, IBS and food sensitivities in 02 after contracting Giardia from a river in Oregon

Had negative celiac blood work in 02

Elevated stool anti-gliadin Ab (21 with 10 being cutoff for normal) - 2008

Positive for DQ8- 2008

Tested high positive for egg, dairy, soy, ginger, mustard - 2008

Lactulose/Mannitol (leaky gut) test indicated slight intestinal permeability

Improved with gluten free diet but still have spastic constipation
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#2 User is offline   mushroom 

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Posted 31 August 2009 - 11:39 AM

No, Jason, you are not the only one. Just reading some of the signatures here will tell you that. I agree that the gluten hurdle seems comparatively easy compared to some of the other ones. Soy is probably harder than gluten. I am just finding out how hard potato starch and citric acid are because these are certainly not intolerances that are catered to. While you will find things labelled egg, dairy and soy free, you do not find anything labelled citric acid free or potato starch free :P
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator
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#3 User is offline   burdee 

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Posted 31 August 2009 - 11:49 AM

View PostjasonD2, on Aug 31 2009, 12:21 PM, said:

Avoiding just gluten for the rest of my life wouldnt be that big of a deal...but I also have to avoid all dairy, eggs and soy as well...not to mention other foods that give me problems. why does it seem like im the only person on the planet that has to be so restricted?

I'm currently focusing on my candida so is there a chance that someday I will be able to introduce some things back into my diet? will it be possible to ever eat dairy again?


I would love to just have gluten, dairy, eggs and soy allergies. However I also have diagnosed (ELISA blood test) allergies to cane sugar, vanilla and nutmeg. Those allergies eliminate all but a few desserts, baked goods or treats I could buy online or in a local gluten-free bakery. So I bake my own goodies at home or just enjoy fresh fruits. I also have sensitivities to alcohol, caffeine, aspartame and any sorbitol like sweeteners. The good news is all those restrictions force me to eat a very healthy diet of fruits, vegies, gluten-free grains, meats, nuts, legumes and healthy oils. I've also learned to find 'freedom from restriction' in other areas of my life, beyond food and eating.

I eliminated candida without following the very restrictive candida diet. Because I had those other restrictions, I chose to treat candida with nystatin and follow that with probiotics.

If you have a diagnosed (blood test, not skin test) dairy allergy, you probably won't ever be able to eat dairy without reactions. However, if you really just have lactose intolerance or reaction to milk sugar, rather than milk protein, you may be able to reintroduce dairy after your intestinal villae heal from gluten damage.

Rather than focus on what you can't eat, explore all the foods, especially in different ethnic cuisines, that you CAN safely eat. I have more than enough variety despite 7 food allergies and several other sensitivities. Also my husband has 9 food allergies. Since we share 5 of those allergies, I need to only prepare foods for 11 different food allergy restrictions.

SUE
Gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg free. Enterolab diagnosed gluten/casein intolerant 7/04; soy intolerant 8/07. ELISA test diagnosed egg/cane sugar IgG allergies 8/06; vanilla/nutmeg 8/06. 2006-10 diagnosed by DNA Microbial stool tests and successfully treated: Klebsiella, Enterobacter Cloaecae, Cryptosporidia, Candida, C-diff, Achromobacter, H. Pylori and Dientamoeba Fragilis. 6/10 Heidelberg capsule test diagnosed hypochloridia. Vitamin D deficiency, hypothyroiditis, hypochloridia and low white blood cells caused vulnerability to infections. I now take Betaine HCl, probiotics, Vitamin D, thyroid supplement, arabinogalactan and DHEA to improve immunity.
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#4 User is offline   jststric 

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Posted 31 August 2009 - 01:05 PM

It certainly is comforting to see others in this forum that are like us!! I am not only gluten-intolerant, but also dairy, eggs, nuts, rice, beans and spices like pepper, chili powder. Rice and bean flours are the usual alternatives to gluten-free foods and rice flour is often on restaurant items like french fries and other things to keep them from sticking in their packaging before being cooked. I've been at this for 3 1/2 yrs and I still throw myself pity parties quite often, lol. I do have a friend that is allergic to citric acid and I will admit that I have learned how many things THAT is in and its certainly not a fun one to deal with either!!! Hang in there. There's MANY of us out here and you are NOT alone!!
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#5 User is offline   darlindeb25 

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Posted 31 August 2009 - 03:25 PM

Quote

Avoiding just gluten for the rest of my life wouldnt be that big of a deal...but I also have to avoid all dairy, eggs and soy as well...not to mention other foods that give me problems. why does it seem like im the only person on the planet that has to be so restricted?


I wish I could just avoid gluten too, even just dairy and soy would be nice. I can't eat any grains, none, no nightshades, no cruciferous veggies, no dairy, no red meat, no shellfish...no "gluten free" labeled foods because most still contain up to 20ppm of gluten, and 5ppm is too much for me. I get glutened by the tiniest amount of gluten, simple CC makes me sick for weeks.

You are not alone in this, you are joining a huge group. Sometimes when you listen to people who only avoid gluten talk about all the foods they can eat, it's really hard. We do get by though, and often times I feel those of us who do not eat any grains are being much better to our bodies than those who do eat grains.
Deb
Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!
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#6 User is offline   yolo 

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Posted 31 August 2009 - 10:49 PM

Ah--we are led to believe that gluten is the main problem maybe with also a milk allergy. But like you many of us are pretty restricted well beyond that as well. I am having some real success at improving my diet by going on the specific carbohydrate diet (scd). You might want to check it out.

I actually have found that with it I can expand my diet a little since I already figured out grains did not agree with me. Now I can eat home made 24 hour yogurt and make a kind of yogurt cheese--whereas before cheese was completely out. And yes I can also eat some cheddar now from time to time whereas just a month ago it made me feel horrible... Ditto with fruit. I now can eat fruit every day--and can even eat raw tomatoes.

In addition today I tried an egg and it actually was just fine--haven't been able to eat eggs in years without getting a migraine after. No, I am not going to eat eggs every day, however this and the above other items are great signs that my gut is actually healing with this scd.

There is a thread here on scd started by AliB. The paleo diet is also another alternative.
Diagnosed celiac sprue as infant: failure to thrive & pneumonia-back on grains age 4. Began herbs 1971 combating chronic kidney disease/general ill health 1973. Avoid wheat family and "allergens" by 1980. Late 80's doc. diagnosed candida: cave-man diet. Diagnosed degraded myelin sheath 2006; need co-enzyme B vitamins. Discovered celiac fall 2007; finally told diagnosis as infant. Recently found I am salicylic acid intolerant. Ironically can't tolerate most herbs now. Can now eat brown rice & other gluten-free grains (except corn) & even maple syrup & now homeopathic medicine works! Am still exploring the shape of this elephant but I've made progress!
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#7 User is offline   jasonD2 

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Posted 01 September 2009 - 07:22 PM

Well Im on the candida diet so im pretty much limiting my carbs anyway- what exactly is the SCD? just avoiding starches, breads, pastas, etc? right now its rice cakes, brown rice and quinoa for me in limited amounts with an occasional sweet potatoe. my BIGGEST problem is maintaining my weight...im already underweight and now im loosing even more. so i cant cut out carbs completely
Endoscopy & blood panel all negative 12/09 after being strict w/ gluten free diet

As of 8/09 - Candida Overgrowth, C.difficile overgrowth, elevated fecal anti-gliadin, elevated putrefactive SCFA's

Developed severe lactose intolerance, IBS and food sensitivities in 02 after contracting Giardia from a river in Oregon

Had negative celiac blood work in 02

Elevated stool anti-gliadin Ab (21 with 10 being cutoff for normal) - 2008

Positive for DQ8- 2008

Tested high positive for egg, dairy, soy, ginger, mustard - 2008

Lactulose/Mannitol (leaky gut) test indicated slight intestinal permeability

Improved with gluten free diet but still have spastic constipation
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#8 User is offline   yolo 

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Posted 01 September 2009 - 07:31 PM

It may be that most grains are fine for you, its just for me and some others here who are really sensitive who don't do well with grains. Some of us have found in addition however that by being on this diet its way easier to get rid of the candida or candida like symptoms. The scd doesn't mean no carbs however--just no carbs or sugars that form complex saccharides. You can still eat squash and most (though not all) starchy vegetables. You can also enjoy eating more fat in your diet--including coconut oil, nuts, cheese as well as animal fats and full fat 24 hour yogurt etc. While you are killing off the candida its probably best to stay off the fruit and honey. Check it out online--Breaking the Vicious Cycle by Elaine Gottschall. There is also a scd support thread here on celiac.com.
Diagnosed celiac sprue as infant: failure to thrive & pneumonia-back on grains age 4. Began herbs 1971 combating chronic kidney disease/general ill health 1973. Avoid wheat family and "allergens" by 1980. Late 80's doc. diagnosed candida: cave-man diet. Diagnosed degraded myelin sheath 2006; need co-enzyme B vitamins. Discovered celiac fall 2007; finally told diagnosis as infant. Recently found I am salicylic acid intolerant. Ironically can't tolerate most herbs now. Can now eat brown rice & other gluten-free grains (except corn) & even maple syrup & now homeopathic medicine works! Am still exploring the shape of this elephant but I've made progress!
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#9 User is offline   AliB 

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Posted 03 September 2009 - 04:13 PM

Yup, all of the above. I know I've posted on the other thread but just to reiterate about your weight.

Carbohydrates can actually cause weight loss.

It seems that if you are naturally inclined to be a 'carb-burner', then your body burns carbs as its fuel of choice. Any fats you eat with the carbs and any extra carbs you consume over what your body needs will be converted to fat and stored. That causes weight gain.

If you are a 'fat-burner', then your body will convert the carbs that you consume and any fats and you will not store any fat. Hence the weight loss.

The remedy is actually the same. Reduce the carbs and up the fats. A fat-burner will then have enough fats to fuel the cells properly, and will take on more fat storage, the carb-burner, without enough carbs will be forced to become a fat-burner and will then start to burn their stored fats. The skinny ones put weight on and the fat ones lose it. Amazing!

It's a win-win scenario. Plus, the low-carb, higher fats makes the gut extremely uncomfortable for 'the beasties'. No food, and lots of fatty acids to destroy their membranes. Bye bye beasties. Fantastic.

Carbs also drive blood sugar imbalances. Fats don't affect them at all. Protein a bit but much slower. Carbs spike the blood sugar sending the Pancreas into a panic as it shoves out loads of insulin to bring the sugar level back down. Eventually the cells get tired of the constant bombardment of sugar and start shutting the doors. Insulin resistance sets in. All that extra insulin floating around encourages weight gain. Eventually people develop diabetes.

Those pesky carbs are a pain in the neck.


Jason, if you are concerned about losing more weight on low-carb read this.......

http://stanford.wellsphere.com/weight-loss...-athletes/94841
Ali - 50 - struggled with what I now know to be GI symptoms and poor carb digestion for at least 35 years! Diabetic type II (1997). Mother undx Celiac - lifelong diabetic Type 1 & anemic (plus 1 stillborn and 10 miscarriages after me). Father definitely very GI.

Stopped gluten & dairy, Jan 08, but still other issues so dropped most carbs and sugar and have been following the Specific Carb Diet (SCD) since March 08. Recovery slow but steady and I can now eat a much broader range of foods especially raw which are good for my digestion and boost my energy level.

Not getting better? Try the SCD - it might just change your life.........
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#10 User is offline   Northland Lady 

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Posted 17 September 2009 - 01:09 AM

I completely agree! I have so many food intolerance's that i am still trying to find. I definately have gluten, white rice, potatoes and goodness knows what else, i cant seem to eat ANYTHING without getting problems.

This site is soo great because most of us understand how hard it is!
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#11 User is offline   debmidge 

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Posted 17 September 2009 - 01:23 AM

Mike has other food intolerances - see in ending message line
Husband has Celiac Disease and
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006
It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003
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#12 User is offline   missy'smom 

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Posted 17 September 2009 - 03:39 AM

I'm starting to GAIN on a very low-carb(6 to 12 g per meal), grain-free, starchy vegetable free, fruit-free, mostly dairy, egg and sugar(all forms)free diet by doing what AliB said-upping protein and fats. I was underweight and loosing before I started it, haven't ever gone back to where I was before I started and have slowly gained, which was my goal. I eat 4 smaller meal a day to try to keep calories up because I seem to need alot of calories to keep my weight on and even more to gain. I'm assuming you don't have a challenged pancreas like I do, so I would think that you could see results sooner than I did. Just letting you know, it can be done!
Me: GLUTEN-FREE 7/06, multiple food allergies, T2 DIABETES DX 8/08, LADA-Latent Autoimmune Diabetes in Adults, Who knew food allergies could trigger an autoimmune attack on the pancreas?! 1/11 Re-DX T1 DM, pos. DQ2 Celiac gene test 9/11
Son: ADHD '06,
neg. CELIAC PANEL 5/07
ALLERGY: "positive" blood and skin tests to wheat, which triggers his eczema '08
ENTEROLAB testing: elevated Fecal Anti-tissue Transglutaminase IgA Dec. '08
Gluten-free-Feb. '09
other food allergies
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