I Wish All I Had Was Celiac
#1
Posted 31 August 2009 - 11:21 AM
I'm currently focusing on my candida so is there a chance that someday I will be able to introduce some things back into my diet? will it be possible to ever eat dairy again?
As of 8/09 - Candida Overgrowth, C.difficile overgrowth, elevated fecal anti-gliadin, elevated putrefactive SCFA's
Developed severe lactose intolerance, IBS and food sensitivities in 02 after contracting Giardia from a river in Oregon
Had negative celiac blood work in 02
Elevated stool anti-gliadin Ab (21 with 10 being cutoff for normal) - 2008
Positive for DQ8- 2008
Tested high positive for egg, dairy, soy, ginger, mustard - 2008
Lactulose/Mannitol (leaky gut) test indicated slight intestinal permeability
Improved with gluten free diet but still have spastic constipation
#2
Posted 31 August 2009 - 11:39 AM
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
#3
Posted 31 August 2009 - 11:49 AM
jasonD2, on Aug 31 2009, 12:21 PM, said:
I'm currently focusing on my candida so is there a chance that someday I will be able to introduce some things back into my diet? will it be possible to ever eat dairy again?
I would love to just have gluten, dairy, eggs and soy allergies. However I also have diagnosed (ELISA blood test) allergies to cane sugar, vanilla and nutmeg. Those allergies eliminate all but a few desserts, baked goods or treats I could buy online or in a local gluten-free bakery. So I bake my own goodies at home or just enjoy fresh fruits. I also have sensitivities to alcohol, caffeine, aspartame and any sorbitol like sweeteners. The good news is all those restrictions force me to eat a very healthy diet of fruits, vegies, gluten-free grains, meats, nuts, legumes and healthy oils. I've also learned to find 'freedom from restriction' in other areas of my life, beyond food and eating.
I eliminated candida without following the very restrictive candida diet. Because I had those other restrictions, I chose to treat candida with nystatin and follow that with probiotics.
If you have a diagnosed (blood test, not skin test) dairy allergy, you probably won't ever be able to eat dairy without reactions. However, if you really just have lactose intolerance or reaction to milk sugar, rather than milk protein, you may be able to reintroduce dairy after your intestinal villae heal from gluten damage.
Rather than focus on what you can't eat, explore all the foods, especially in different ethnic cuisines, that you CAN safely eat. I have more than enough variety despite 7 food allergies and several other sensitivities. Also my husband has 9 food allergies. Since we share 5 of those allergies, I need to only prepare foods for 11 different food allergy restrictions.
SUE
#4
Posted 31 August 2009 - 01:05 PM
#5
Posted 31 August 2009 - 03:25 PM
Quote
I wish I could just avoid gluten too, even just dairy and soy would be nice. I can't eat any grains, none, no nightshades, no cruciferous veggies, no dairy, no red meat, no shellfish...no "gluten free" labeled foods because most still contain up to 20ppm of gluten, and 5ppm is too much for me. I get glutened by the tiniest amount of gluten, simple CC makes me sick for weeks.
You are not alone in this, you are joining a huge group. Sometimes when you listen to people who only avoid gluten talk about all the foods they can eat, it's really hard. We do get by though, and often times I feel those of us who do not eat any grains are being much better to our bodies than those who do eat grains.
Long Island, NY
Double DQ1, subtype 6
We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!
#6
Posted 31 August 2009 - 10:49 PM
I actually have found that with it I can expand my diet a little since I already figured out grains did not agree with me. Now I can eat home made 24 hour yogurt and make a kind of yogurt cheese--whereas before cheese was completely out. And yes I can also eat some cheddar now from time to time whereas just a month ago it made me feel horrible... Ditto with fruit. I now can eat fruit every day--and can even eat raw tomatoes.
In addition today I tried an egg and it actually was just fine--haven't been able to eat eggs in years without getting a migraine after. No, I am not going to eat eggs every day, however this and the above other items are great signs that my gut is actually healing with this scd.
There is a thread here on scd started by AliB. The paleo diet is also another alternative.
#7
Posted 01 September 2009 - 07:22 PM
As of 8/09 - Candida Overgrowth, C.difficile overgrowth, elevated fecal anti-gliadin, elevated putrefactive SCFA's
Developed severe lactose intolerance, IBS and food sensitivities in 02 after contracting Giardia from a river in Oregon
Had negative celiac blood work in 02
Elevated stool anti-gliadin Ab (21 with 10 being cutoff for normal) - 2008
Positive for DQ8- 2008
Tested high positive for egg, dairy, soy, ginger, mustard - 2008
Lactulose/Mannitol (leaky gut) test indicated slight intestinal permeability
Improved with gluten free diet but still have spastic constipation
#8
Posted 01 September 2009 - 07:31 PM
#9
Posted 03 September 2009 - 04:13 PM
Carbohydrates can actually cause weight loss.
It seems that if you are naturally inclined to be a 'carb-burner', then your body burns carbs as its fuel of choice. Any fats you eat with the carbs and any extra carbs you consume over what your body needs will be converted to fat and stored. That causes weight gain.
If you are a 'fat-burner', then your body will convert the carbs that you consume and any fats and you will not store any fat. Hence the weight loss.
The remedy is actually the same. Reduce the carbs and up the fats. A fat-burner will then have enough fats to fuel the cells properly, and will take on more fat storage, the carb-burner, without enough carbs will be forced to become a fat-burner and will then start to burn their stored fats. The skinny ones put weight on and the fat ones lose it. Amazing!
It's a win-win scenario. Plus, the low-carb, higher fats makes the gut extremely uncomfortable for 'the beasties'. No food, and lots of fatty acids to destroy their membranes. Bye bye beasties. Fantastic.
Carbs also drive blood sugar imbalances. Fats don't affect them at all. Protein a bit but much slower. Carbs spike the blood sugar sending the Pancreas into a panic as it shoves out loads of insulin to bring the sugar level back down. Eventually the cells get tired of the constant bombardment of sugar and start shutting the doors. Insulin resistance sets in. All that extra insulin floating around encourages weight gain. Eventually people develop diabetes.
Those pesky carbs are a pain in the neck.
Jason, if you are concerned about losing more weight on low-carb read this.......
http://stanford.wellsphere.com/weight-loss...-athletes/94841
Stopped gluten & dairy, Jan 08, but still other issues so dropped most carbs and sugar and have been following the Specific Carb Diet (SCD) since March 08. Recovery slow but steady and I can now eat a much broader range of foods especially raw which are good for my digestion and boost my energy level.
Not getting better? Try the SCD - it might just change your life.........
#10
Posted 17 September 2009 - 01:09 AM
This site is soo great because most of us understand how hard it is!
#11
Posted 17 September 2009 - 01:23 AM
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003
#12
Posted 17 September 2009 - 03:39 AM
Son: ADHD '06,
neg. CELIAC PANEL 5/07
ALLERGY: "positive" blood and skin tests to wheat, which triggers his eczema '08
ENTEROLAB testing: elevated Fecal Anti-tissue Transglutaminase IgA Dec. '08
Gluten-free-Feb. '09
other food allergies

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