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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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O.K. Here it goes. I thought I was diagnosed with celiac disease in Feb. I have been gluten free since then. I had blood tests done. My results were....IgA 14, IgG 41 and IgA 2. I am 45 and have had fibromyalgia for years, osteo-arthritis most of my life, so many gastro-intestinal problems that I won't list them, Started having what the doctors thought were MS symptoms abot 18 months ago! and the list goes on and on! I have also had allergy testing....allergies include.....eggs, yeast, dairy, malt and wheat. I feel great on the gluten-free diet. I have had all five of my children and husband tested, mom still waiting for results 3 of my 5 children have #'s larger than mine on the tests but my 22 year old says we don't have celiac disease. She has been to 2 different doctors and they have said her #'s mean nothing! She is making me crazy! Won't let up on how wrong I am and how right she is! Anyway, I feel better physically than I have felt in my whole life. I just need some input!

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What your mom thinks doesn't matter, period. You know what you need to do for your own health; you live in your own body. Keep doing what you need to do to feel healthy! :-)

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I am new to this posting stuff! Maybe I am doing it all wrong. I thought I posted a reply but lost it! Anyway, I think I confused the situation. It is my daughter who is armed with ALL the knowledge(!) She thinks my doctor is wrong. 3 of my five children have #'s on their blood tests higher than mine. My husbands #'s also came back showing similar results. It is my mom who is still waiting dor her eesults to her blood tests. I continue to get phone calls from daughter questioning everything I do concerning what I thought was my celiac disease diagnosis.

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So your blood test came up high and your daughter says you don't have it? I'm sorry but she sounds wrong...you have alot of things connected with celiac..osteo-arthritis, fibromyalgia, and gastrointestinal symptoms and then a high blood test...numbers do mean something...when they are elevated you have celiac...doesn't matter if they are alot over or a little over. Maybe she is in denial.

If you feel better go with that and don't let anyone tell you otherwise. Only you know how your body reacts to foods so stick with it.

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Thanks, Katie!

Yes, that's what my daughter thinks. Her blood tests show elevated levels as well but her GP and a specialist have told her the #'s mean nothing! It's just that I have 3 other children with elevated #'s and am trying to help them, as well. Two of those children are still teens and living at home. I know from all the postings that I have read that I am not alone when it comes to people not understanding celiac disease, but................right now I am in the HOT SEAT and it is very uncomfortable! :blink:

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Her blood tests came back high and her doctor said it was nothing????? GET HER A NEW DOC...alot of doctors don't know what they should about celiac and he seems to be one of them

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Sorry for the typo, but the advice still holds. It doesn't matter what your daughter thinks on the issue. In fact, it needn't even be a topic up for discussion. I know you want to help her with your numbers, and the most you can do is give her accurate information and accurate resources. Beyond that... you can lead the horse... you can't make it drink.

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Thanks for your replies. I am a mom and probably need to be in re-hab for being a "chronic fixer"! I know I can't change how my daughter feels> She just gets under my skin and is able to push my buttons and then I get confused and don't know quite how to respond to her comments. Don't get me wrong, she's a wonderful daughter! I am so proud of her. She is a very gifted and intelligent individual! I am just wondering if anyone knows exactly what the #'s mean. I keep reading everything I can find about celiac disease and it seems that there is mixed answers everywhere. Does this just go along with the disease? Oh, Yeah, Sorry I mis-spelled your name Kaiti! Again, thanks for trying to help a confused ol' lady!!!!! :huh:

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There are always questions along with celiac. I do believe that there are some blood tests that test specifically for celiac and have a there is very rarely a false positive. The gene tests are good to have done for celiac too. Biopsies can be good but if you don't have damage yet that can come back negative so again that can leave another confusing answer.

I think maybe your daughter doesn't want to think her or you guys could have celiac or maybe she just believes the unhelpful doctor . Would she listen to a doctor who knows alot about celiac or not?

My family(extended) is great, but they are stubborn when it comes to being tested and so forth so I can understand what you are going through.

Maybe you should have her come to this board....I know people on here know more then alot of these doctors

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A lot of family members of people on the board seem to have a blind spot when it comes to being willing to believe they may be gluten intolerant, so you're not alone. It still sucks, I'm sure. :-( If she has that much faith in the medical community, I agree with Katie's suggestion of seeing if you can find a doctor who's well versed in celiac disease for her to talk to.

Good luck toughening those buttons! ;-)

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    • Weird Reaction
      Thank  you Flowerqueen and Cristiana for your replies. I'm actually feeling much better today. I got my appetite back yesterday lunchtime (a few hours after I typed the original post) and managed to keep in/hold down some chicken and lettuce!!! I also had a "fat" coffee (as I call it) before work with MCT Oil and butter (your probably going "yuk" right now but it's really nice...really haha) and started feeling a bit better after that. The nausea went away almost immediately after that although just the thought of having all that fat nearly made me sick but I just wanted to get back to normal asap. I usually have a lot of fat in my diet anyway which is normal for me so the coffee choice isn't unusual. Plus it was also the third day which was when I started feeling better after the first time. I didn't eat til lunchtime and I was good and hungry by then so I knew I was coming out of it. That nausea and trembling feeling is something I don't want ever again. I think after the workout and tearing down muscle tissue (which is a form of stress) and then not being able to hold the nutrients in for repair affected my nervous system. My theory only but to me it makes sense. Although Vitargo also comes in flavors I always get the Natural / Unflavored one so the barley is the only ingredient. As for there being something wrong with that particular batch, well, you be on to something there. Also I'm not knocking the product because as I said, I have used it before and it did exactly what it was supposed to do. But, I will never have it again. Cristiana, my last blood test revealed I had slight anaemia which really surprised me with the amount of red meat I've eaten during my life and the anxiety thing is also new as I'm usually a happy, positive person. Life is good but after this recent reaction I think it is an indirect cause of the glutening. I'm also surprised at how sensitive I've become to it and how quickly. Also what is DX? I also follow a FODMAP eating plan (I can give you more info if you haven't heard of it) which also eliminates certain foods. It's a plan directed mostly at IBS but is well worth looking into if you are suffering any gut health, digestion issues or any ailment you may have which you can't get to the bottom of. Broccoli was one of the foods which I have cut back on and I've eaten HUGE amounts of broccoli so it is a superfood for some but apparently not for others. (I even think I read somewhere it has MSG naturally in it) It's hard to find any bad articles on broccoli so this also really surprised me. It also answered a few other questions I had. Many, many thanks again to you both for your replies. It actually settled me just reading them. I'm glad I found these forums so I don't think i'll be a stranger around here for long.   Richard
    • Confused
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    • Silent Celiac or Non-digestive symptoms
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    • Confused
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    • Could this possibly be related to celiac or a gluten intolerance?
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