Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

New And Kind Of Depressed About The Diet
0

10 posts in this topic

Last night I made the enchilada sauce recipe at this site. It was SO yummy. I put it on bean enchiladas. Everything was gluten-free, except less than 1 percent of the chicken broth had wheat in it. And possibly my chili powder. I thought surely I would be okay. B)

Well, um, no. I have been mostly gluten-free since Dec. 04, and last night I ended up with lower GI problems last night. Today I suddenly and briefly got all red and itchy and hot on my hands, my elbows, my face, my feet, and the backs of my legs. :blink:

Well, there's no doubt that I need to not be eating that stuff. But it's also kind of depressing. I guess it is normal to get down when it's hitting home that this is for real, for the rest of your life.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Thats the importance of keeping a 100% gluten free diet. Even the smallest amount can damage your intestines even if you don't get symptoms. Why is it even worth it? The risks of cancer, diabetes, osteoporosis...is gluten worth that? it doesn't matter if you put a pinch of wheat starch in what you had....would you put a pinch of rat poison in? Well gluten is just as bad for you. Eat to live don't live to eat.

You find brands you can have, and you will get used to it and you will find it to be normal for you when you learn about it more.

Print out the safe and forbidden lists on here if you haven't

http://www.celiac.com/st_main.html?p_catid=12

And on this site you can find out about brands that won't hide anything, good gluten free brands, etc. This is a great site with wonderful people.

0

Share this post


Link to post
Share on other sites

I like the rat poison analogy. Just keep in mind that gluten is poison to your body and you are less likely to be tempted to cheat.

Every time I drive by Krispy Kreme donuts I get very depressed, but I keep saying to myself over and over "gluten is poison, gluten is poison, gluten is poison" and I'm able to keep driving right on past. I once got into the drive thru trying to convince myself that they were so processed that there couldn't possibly be any protein left in them!!!! :blink::blink: Fortunately I came to my senses before actually pulling up and ordering any! :rolleyes:

we all make occasional mistakes where we accidentally get glutened, but it's not worth it to risk being glutened with even a small amount if you can help it. If you know it has even the tiniest bit of gluten in it, just remind yourself it is poison. Works for me!

0

Share this post


Link to post
Share on other sites
Well, um, no. I have been mostly gluten-free since Dec. 04, and last night I ended up with lower GI problems last night. Today I suddenly and briefly got all red and itchy and hot on my hands, my elbows, my face, my feet, and the backs of my legs. :blink:

Well, there's no doubt that I need to not be eating that stuff. But it's also kind of depressing. I guess it is normal to get down when it's hitting home that this is for real, for the rest of your life.

I know, it's hard, but you're going to feel better afterward. Take that meal as your wake-up call. Time to stop being "mostly gluten-free," particularly with the proof of the swab diagnosis. You need to go 100% gluten-free from now on, with no cheating, no breaks, no temptations. Go to a large health food store, and start shopping! :D

One thing to keep in mind, it DOES get easier with time! Now we just need a Senator with Celiac, to really get this condition out into the open!

Cheers,

-Pat

0

Share this post


Link to post
Share on other sites

no gluten really does mean NO gluten, not even a little. it can take some time to get used to it, but you will eventually. there's plenty of gluten-free broth available, and gluten-free options for most things, so search those out so this won't happen again.

0

Share this post


Link to post
Share on other sites




Hey, that is a really good way to put it into perspective. Thanks, you two!!! I know that one reason I'm struggling because it's not just gluten, it's soy and cow's milk, too. Most gluten-free breads aren't even doable for me because the ones at my Whole Foods/Harry's usually have some soy or dairy in them at my grocery store.

Tonight I will put signs that say gluten, soy and cow's milk are poison in my house and my car, at my desk and on my fridge. And I am going to explore some of these links where you buy by mail. That must help loads, because if I don't go into the processed/prepared food sections of the store -- which I usually avoid anyway -- I can't be tempted.

Thanks!!

0

Share this post


Link to post
Share on other sites

westie - check out the Gluten-free Casein-free yahoo groups as well. they're mostly for parents of autistic kids, but they have a number of resources you may find helpful. I found giving up milk to be much harder than giving up gluten, and limiting soy to make giving up milk that much harder (I don't have soy often any more), and it did change the types of things I eat (no more yogurt - I make my own foods, but have things I'd rather make before a nut-milk based yogurt). That's not bad, however, it's just different. (Important mantra: different is not bad! :-) ) After a few months, I got used to it. Yeah, I still miss some of the old stuff, but it's better than being sick!

0

Share this post


Link to post
Share on other sites

Westie, Life Grocery in Marietta has a large selection of gluten-free and CF foods as well as soy free and even raw.... you may find nirvana there!

0

Share this post


Link to post
Share on other sites

Oh cool! I looked that up and it is only 30 minutes from here so I will check it out. Also just found some gluten-, soy- and dairy-free chocolate chips, as well as the same gluten-free/sf/df boullion in the gluten-free mall, so I ordered those to experiment with at home.

If I can find a) substitutes for the basics (I've got the dry ingredients down pat, it's the other stuff I'm struggling with), and B) some way to eat and enjoy chocolate with no gluten or dairy involved -- that will be a big morale booster!

0

Share this post


Link to post
Share on other sites

Tropical Source makes Gluten-free Casein-free chocolate. (It is made with soy-lecithin, though.)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,644
    • Total Posts
      921,580
  • Topics

  • Posts

    • Hi Kircket, Welcome to the forum! Yes, he could be wrong.  Not everyone passes the blood tests.  And they are just one part of the diagnostic process anyway, although an important one.   Did you have the complete celiac antibodies panel? Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
      Anti-Endomysial (EMA) IgA
      Anti-Tissue Transglutaminase (tTG) IgA
      Deamidated Gliadin Peptide (DGP) IgA and IgG
      Total Serum IgA If you didn't have the full celiac disease antibodies test panel, I'd insist on getting it done.  There have been numerous people on the forum who tested positive on one antibody but not on others.
    • Three years ago I lost about 40kgs (Aussie lol) by better diet & exercise. All was going great til I stopped losing. I upped my exercise but bizarrely started gaining weight. One night a week of not being able to sleep soon became two, then virtually every night with either 1-2hrs tops or none at all. These weird symptoms started about two years ago, becoming worse in say, the last 9mnths. Then I started to get diarrhea. Occasionally then weirdly 2-3 days with multiple occurences then a day or two with nothing, then back to loose & offensive. My GP ran tests, including the TTga (hope that's  right) antibody blood test. Negative so he tells me that's not it. After 9mnths of this he shrugs and says, "I don't know what it is I've run out of ideas what ideas do you have?" Finally refers me to a gastrointerogist.  Private, of course and can't really afford it but we (my fiance and I) go. Stools and blood samples are ordered, basically bye, see you in a month. I have looked my symptoms up and they seem to point to Celiac. Today we went back. I have been having bloated stomach, sore back and limbs,  lovely burps, constant urination and crushing anxiety attacks folowed by depression (which I have never had before in my life). Admitted over the last weekend I didn't sleep for two and a half days and found myself hallucinating and crying to just be able to sleep. Mr fancy pants gastrointerogist says," Hey great news, the stools samples rule out parasites and Crohns!" I tell him how excrutiating the last month has been to which he replies, "It's not Celiac disease, (points at negative blood test results). Celiac doesnt present with diarrhea, anxiety and frquent urination all together." I also had a fecal occult blood test which showed positive & notes say are maybe due to a lower gi bleed, and a ct scan that says shows some damage which, in their words, could be due to a condition such as Celiac disease. He has booked me for a double scope as the next step, has a few ideas what it could be (won't tell me because he doesn't want me to be 'anxious'). Told me to consider that all these symptoms could be me just worrying and being anxious. Told him when this started I was not worried about anything, shrugged and said, It could stil have happened, hey, sometimes we never find out what causes it and your just stuck with diarrhea forever." Then as I was leaving he slapped me on the back and said, "Don't worry so much, see you soon." I need to have the scopes done but is it me or are the things I was told today not true?  I would honestly love it not to be Celiac disease but could he be wrong?
    • Sigh. I totally do love the packs of stretch pants at Costco though...
    • hey, i'm vegetarian and gluten free as well
      have you tried making any recipes with cashew nuts like cashew cheese or pasta sauce? they're really good, easy to make and an excellent way to get more protein/iron
      i can send you some of the easy recipes if you like  
    • Right, fistulas or fissures are usually associated with Crohns, but not celiac.  It is not impossible to have both conditions though.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,651
    • Most Online
      3,093

    Newest Member
    Kricket73
    Joined